My sister told me she has some pills I can take. She experienced this before and ended up going to doc and has a bottle of something she never took. I am going to give it a try and see if it helps.
I just found out I have adrenal fatigue!!
queenbrc wrote: » My sister told me she has some pills I can take. She experienced this before and ended up going to doc and has a bottle of something she never took. I am going to give it a try and see if it helps.
Cherimoose wrote: » I just found out I have adrenal fatigue!! From who? "Adrenal fatigue" is not a valid diagnosis in the mainstream medical community. More on that here:http://www.webmd.com/a-to-z-guides/features/adrenal-fatigue-is-it-real
Catch_13 wrote: » Seriously, you need to stop bothering these people Cherimoose...I've noticed you on several of these forum questions. This is exactly the problem with doctors not giving people the time of day. If you have not gone through this, you have zero right to be commenting as you have no idea what people go through. If you have gone though this, enlighten people with your healing regimen.
Catch_13 wrote: » If you have not gone through this, you have zero right to be commenting as you have no idea what people go through.
aylajane wrote: » what is the "other" diagnosis that is being missed? Other options to look into that would mimic this?
aylajane wrote: » Thanks both of you for the discussion. After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much. I also have low blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help. All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare. I now drag myself through each day. I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
starwhisperer6 wrote: » I can't even imagine how frustrating this must be. I use to be in great shape, but my losing that was by my own lack of motivation, and it still frustrates me! I will say keep going, keep asking, keep insisting something is wrong. Doctors are only human too and they make mistakes. If you let it just become your norm they will let it be too.
aylajane wrote: » starwhisperer6 wrote: » I can't even imagine how frustrating this must be. I use to be in great shape, but my losing that was by my own lack of motivation, and it still frustrates me! I will say keep going, keep asking, keep insisting something is wrong. Doctors are only human too and they make mistakes. If you let it just become your norm they will let it be too. Thank you. I plan to keep trying. I force myself to go to the gym almost every day just to keep the habit. My only rule is showing up. Once there I am allowed to take a nap if that is what I want, but I have to be there. Usually I just walk the treadmill very slowly and do some stretches. I try to run and do other things, but most days it just is not happening. I am very hopeful with the days getting longer and the sun coming out that will help - I always have a little S.A.D. that happens in winter, but nothing anywhere close to this.
aylajane wrote: » Just curious for those who are saying adrenal fatigue is not real... I am just starting to do some research on this after having been to an endocrinologist who said that while my cortisol is low, my testosterone is way low, d is low and b12 is super high - nothing is outside "normal" range except testosterone, but that "rarely causes issues in women". This is a very highly regarded endo. I actually could not stay awake while he was talking to me. But his final result for me was "not endocrine related" and sent me back to my primary doc. Someone suggested I look up adrenal fatigue and I almost fell over - EVERY SINGLE SYMPTOM on their list is why I went to my primary doc in the first place. In my limited research so far, I see two very different camps - it is real but unrecognized, or - like here - it is made up and you should go see a "real" doc. So I am a little lost on what to do now. I am excited that my symptoms correspond with other peoples, but i am not a "snake oil" type person and I firmly believe there must be a cause (diet, perimenopause, etc). I have tried the doctor route and am now desperate for help or something to try - but I am on my own as doctors say I am fine. Do you all have any other insight on this? I.e. if people who seek these naturopaths are suffering from a condition that is not real, but all have very common collection of symptoms, what is the "other" diagnosis that is being missed? Other options to look into that would mimic this? My thought right now is simply to try what I can that doesnt require paying someone and I already know is healthy - Ie. following an elimination type diet, using the AFS guidelines on what to eat. Getting more and better sleep, etc. But I dont want to spend months on this and still have same issue because there was an actual medical cause everyone missed. Any insight is appreciated.
aylajane wrote: » Thanks both of you for the discussion. After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much. I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help. All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
azulvioleta6 wrote: » aylajane wrote: » Just curious for those who are saying adrenal fatigue is not real... I am just starting to do some research on this after having been to an endocrinologist who said that while my cortisol is low, my testosterone is way low, d is low and b12 is super high - nothing is outside "normal" range except testosterone, but that "rarely causes issues in women". This is a very highly regarded endo. I actually could not stay awake while he was talking to me. But his final result for me was "not endocrine related" and sent me back to my primary doc. Someone suggested I look up adrenal fatigue and I almost fell over - EVERY SINGLE SYMPTOM on their list is why I went to my primary doc in the first place. In my limited research so far, I see two very different camps - it is real but unrecognized, or - like here - it is made up and you should go see a "real" doc. So I am a little lost on what to do now. I am excited that my symptoms correspond with other peoples, but i am not a "snake oil" type person and I firmly believe there must be a cause (diet, perimenopause, etc). I have tried the doctor route and am now desperate for help or something to try - but I am on my own as doctors say I am fine. Do you all have any other insight on this? I.e. if people who seek these naturopaths are suffering from a condition that is not real, but all have very common collection of symptoms, what is the "other" diagnosis that is being missed? Other options to look into that would mimic this? My thought right now is simply to try what I can that doesnt require paying someone and I already know is healthy - Ie. following an elimination type diet, using the AFS guidelines on what to eat. Getting more and better sleep, etc. But I dont want to spend months on this and still have same issue because there was an actual medical cause everyone missed. Any insight is appreciated. But the endocrinologist did NOT diagnose you with adrenal fatigue, right? The only way you actually have such as thing is if you have a primary diagnosis of Addison's, panhypopituitarism, etc. A real endocrinologist would be treating you for these things. You would be taking daily injections, tons of pills, and perhaps steroids. The rest is woo. As someone with a real, serious, life-threatening set of endocrine disorders, I really don't appreciate people who make up their own diagnoses.
ilex70 wrote: » aylajane wrote: » Thanks both of you for the discussion. After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much. I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help. All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own. Have you checked in with your bariatric surgeon to see if it may be related to that? Or maybe they would prescribe the B12 for you. Other than that, do you have your ferritin number? I had some symptoms last spring. At first I was told that I was anemic "but not that bad...shouldn't cause symptoms". Well, guess my body didn't know that I wasn't supposed to have symptoms. Iron transfusions helped.
Lovee_Dove7 wrote: » It would be okay to have a cup of coffee in the morning, as that is when your cortisol levels should be at their highest. As the day progresses, cortisol levels should decline until they are at their lowest at night while you sleep. There is a supportive diet to help your adrenals, where you partition your slow-carbs through the day, the least at breakfast, more at lunch, the most at dinner. The idea is that if your intake of carbs are lower in the morning, this encourages cortisol release to increase your body's blood sugar. Hence encouraging higher cortisol in the morning. At dinner, your intake of carbs is the highest, encouraging your body to release less cortisol (in order to raise blood sugar), hence encouraging your body to have lower cortisol levels at night. It sounds like you need to take a look at your schedule and life style and make changes so you can rest and heal.
aylajane wrote: » ilex70 wrote: » aylajane wrote: » Thanks both of you for the discussion. After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much. I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help. All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own. Have you checked in with your bariatric surgeon to see if it may be related to that? Or maybe they would prescribe the B12 for you. Other than that, do you have your ferritin number? I had some symptoms last spring. At first I was told that I was anemic "but not that bad...shouldn't cause symptoms". Well, guess my body didn't know that I wasn't supposed to have symptoms. Iron transfusions helped. I no longer see the surgeon, but the endo was fully versed in the surgery I had and does a lot of follow up on it. When he first saw me he was convinced I must be malnourished and missing vitamins and minerals. When the tests all came back fine except low D and cortisol (and testosterone) and very high B12, he gave up that theory and basically had nothing more to say to me. He did a second follow up test that showed again I had low(er) cortisol (before 8am) but not low enough to do anything. He officially wrote down "not endocrine related" and to go back to my primary. My primary says she cannot see a cause based on the tests, and the items that are low are not low enough to be causing this. I had iron tested awhile back but I dont think they did it again this time. You are right, I wonder if my body is just unaware of the "normal range" numbers lol. Thanks
