adrenal fatigue
queenbrc
Posts: 29 Member
HELP!!!
I just found out I have adrenal fatigue!! I don't even have the strength to write about it. If you have adrenal fatigue you know what reply I'm talking about.
I just found out I have adrenal fatigue!! I don't even have the strength to write about it. If you have adrenal fatigue you know what reply I'm talking about.
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Replies
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I have to take hydroxycut hardcore to caffeinate my body enough to be able to stay up all day. If I do not caffeinate myself enough in the morning, I will not be able to stop myself from going to sleep at work or home. They say your body recovers in its sleep...I feel like my body's battlestation has been shut down for several days. I have not been able to "thoroughly recover" for years. I need to be able to really relax and allow my body to shut down.0
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I have a lot of the symptoms of adrenal fatigue. As in if I do an online survey I tick quite a few boxes. I have had low iron and b 12. My vitamin D is up and down. My thyroid is wonky. My GP is thinking I am hyper and that's why I have sleep trouble. Having kids doesn't help much.
What I have done to help myself in the mean time is, limit caffeine after 2 pm. I start work then and find if I have caffeine I have trouble getting to sleep when I finish. I am up at 6am most days so need to sleep. I am not eating as well as I could, but I am eating heaps. I have a higher metabolism than average. I am not sure if it's my thyroid , or the fact I am on my feet all day and lift heavy boxes at work. If I don't get enough to eat when I need to I notice it. I was able to take some holidays. This helped me to recover a bit as well as spend time with my girls and husband. I usually say no to overtime. I did some this week and just got away with it. I may have to say no this week. It is either say no, or have to take sick leave because of exhaustion. My main exercise is weight lifting and aikido. I average 1200 steps a day if not more, so don't think pushing myself with cardio is a good idea right now.
My advice to you is to try and eat well. I am not consistent , but feel better when I get plenty of veggies. Also I would ween yourself off the hydroxycut. I really don't think caffeine is good for you right now. From what I know about the condition is you can only help the symptoms and be gentle on yourself. Also who diagnosed you? Are you sure there isn't something else going on ?0 -
You need a caffeine detox!0
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You folks need to hash all this out with your docs, not a message board. Addison's disease and thyroid disease are both easily* treatable with a daily pill.
You don't need to go through all this rigamarole if you actually have a medical condition of being deficient in a hormone. Just get that hormone replaced--job done. Why suffer a day longer than you have to?
See your docs.
add: *"easily" for most cases. a few people have problems getting the right dose or a stable dose--fewer than you'd think from reading the web though--satisfied people don't post about their satisfaction, whereas people having trouble are over-represented on support boards.0 -
I have adrenal fatigue too, and it is hard to get through the day sometimes.
I really agree, though, that you should speak with your doctor.
Your doctor should give you very specific instructions on how to reset your body to get better and how to deal with daytime fatigue in the meantime.0 -
My sister told me she has some pills I can take.
She experienced this before and ended up going to doc and has a bottle of something she never took. I am going to give it a try and see if it helps.0 -
My sister told me she has some pills I can take.
She experienced this before and ended up going to doc and has a bottle of something she never took. I am going to give it a try and see if it helps.
Please be very careful taking another persons medication. Seriously you can end up much worse of if you have a reaction. Personally I would never do anything like that.0 -
I just found out I have adrenal fatigue!!
From who? "Adrenal fatigue" is not a valid diagnosis in the mainstream medical community. More on that here:
http://www.webmd.com/a-to-z-guides/features/adrenal-fatigue-is-it-real0 -
This may very well be a real condition. There are many other things which are now recognized that didn't used to be.0
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My sister told me she has some pills I can take.
She experienced this before and ended up going to doc and has a bottle of something she never took. I am going to give it a try and see if it helps.
Are you for real or are you trolling? If you got this diagnosis from an actual doctor, talk to them about any medications, etc. If you self diagnosed and are also planning to self medicate - seriously, stop being an idiot. Would you take someone else's heroin if they said it would help you? No, of course not. Just becuase it's a prescription drug doesn't mean it's safe for you to take. It wasn't prescribed to you and could be harmful to you! SMH
How about analyzing your lifestyle first. Are you eating well - meaning enough calories and a proper balance of nutrients? Are you taking a multivitamin? Have you had your thyroid or iron levels or Vit D levels checked? There could be several other problems going on besides adrenal fatigue that should be handled by a doctor.0 -
Cherimoose wrote: »I just found out I have adrenal fatigue!!
From who? "Adrenal fatigue" is not a valid diagnosis in the mainstream medical community. More on that here:
http://www.webmd.com/a-to-z-guides/features/adrenal-fatigue-is-it-real
Yup!0 -
Seriously, you need to stop bothering these people Cherimoose...I've noticed you on several of these forum questions. This is exactly the problem with doctors not giving people the time of day. If you have not gone through this, you have zero right to be commenting as you have no idea what people go through. If you have gone though this, enlighten people with your healing regimen.
You realize this thread is from 2 years ago?0 -
Cherimoose is right ...the concept of adrenal fatigue is not recognised by the medical or scientific community because that's not how the adrenal system actually works
There's even a fact sheet
"Myth vs. Fact: Adrenal Fatigue describes the theory behind this supposed disorder in which long-term mental, emotional or physical stress outstrips the adrenal glands’ ability to produce enough hormones. The fact sheet refutes this theory and warns against taking potentially harmful supplements designed to “treat” adrenal fatigue. It also differentiates adrenal fatigue from adrenal insufficiency, a real and rare condition in which the adrenal cortex does not produce enough steroid hormones. Adrenal insufficiency is not caused by mental or physical stress."
https://www.endocrine.org/news-room/press-release-archives/2010/new-fact-sheets-dispel-myths-of-adrenal-fatigue
It is rather unfortunate the lead MD is named Chevy Chase to be fair
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I've been told that's a place and MD is Maryland
Snorts0 -
If you have not gone through this, you have zero right to be commenting as you have no idea what people go through.
The symptoms are real, no doubt about that. But the diagnosis isn't correct, meaning the symptoms are due to something other than your adrenal glands.. according to most endocrine experts. The correct treatment path starts with a visit to a licensed physician.
Speaking of Chevy Chase and doctors, here he is pretending to be one
https://www.youtube.com/watch?v=q2yqUyRXGhI 0 -
Just curious for those who are saying adrenal fatigue is not real... I am just starting to do some research on this after having been to an endocrinologist who said that while my cortisol is low, my testosterone is way low, d is low and b12 is super high - nothing is outside "normal" range except testosterone, but that "rarely causes issues in women". This is a very highly regarded endo. I actually could not stay awake while he was talking to me. But his final result for me was "not endocrine related" and sent me back to my primary doc.
Someone suggested I look up adrenal fatigue and I almost fell over - EVERY SINGLE SYMPTOM on their list is why I went to my primary doc in the first place.
In my limited research so far, I see two very different camps - it is real but unrecognized, or - like here - it is made up and you should go see a "real" doc.
So I am a little lost on what to do now. I am excited that my symptoms correspond with other peoples, but i am not a "snake oil" type person and I firmly believe there must be a cause (diet, perimenopause, etc). I have tried the doctor route and am now desperate for help or something to try - but I am on my own as doctors say I am fine.
Do you all have any other insight on this? I.e. if people who seek these naturopaths are suffering from a condition that is not real, but all have very common collection of symptoms, what is the "other" diagnosis that is being missed? Other options to look into that would mimic this?
My thought right now is simply to try what I can that doesnt require paying someone and I already know is healthy - Ie. following an elimination type diet, using the AFS guidelines on what to eat. Getting more and better sleep, etc. But I dont want to spend months on this and still have same issue because there was an actual medical cause everyone missed.
Any insight is appreciated.0 -
aylajane: are you taking vitamin b12 supplements or anything else containing vitamin b12? If so, thenyour explanation is right there.
There are many conditions that cause similar symptoms. Vitamin D3 can cause something like that, as does low ferritin (it doesn't need to be below 15 or so. it's individual to each person). Actually, if you take a B12 supplement you might still be deficient if your body doesn't absorb B12 properly. Thus the standard serum test only tests for total B12, not for active one, the one your body needs. Stress can cause this. Anxiety. Thyroid problems. Lots of other things. But adrenal fatigue does not exist and does not make sense medically.0 -
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Thanks both of you for the discussion.
After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much.
I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help.
All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.0 -
Thanks both of you for the discussion.
After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much.
I also have low blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help.
All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare. I now drag myself through each day. I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
I can't even imagine how frustrating this must be. I use to be in great shape, but my losing that was by my own lack of motivation, and it still frustrates me! I will say keep going, keep asking, keep insisting something is wrong. Doctors are only human too and they make mistakes. If you let it just become your norm they will let it be too.0 -
starwhisperer6 wrote: »
I can't even imagine how frustrating this must be. I use to be in great shape, but my losing that was by my own lack of motivation, and it still frustrates me! I will say keep going, keep asking, keep insisting something is wrong. Doctors are only human too and they make mistakes. If you let it just become your norm they will let it be too.
Thank you. I plan to keep trying. I force myself to go to the gym almost every day just to keep the habit. My only rule is showing up. Once there I am allowed to take a nap if that is what I want, but I have to be there. Usually I just walk the treadmill very slowly and do some stretches. I try to run and do other things, but most days it just is not happening.
I am very hopeful with the days getting longer and the sun coming out that will help - I always have a little S.A.D. that happens in winter, but nothing anywhere close to this.0 -
starwhisperer6 wrote: »
I can't even imagine how frustrating this must be. I use to be in great shape, but my losing that was by my own lack of motivation, and it still frustrates me! I will say keep going, keep asking, keep insisting something is wrong. Doctors are only human too and they make mistakes. If you let it just become your norm they will let it be too.
Thank you. I plan to keep trying. I force myself to go to the gym almost every day just to keep the habit. My only rule is showing up. Once there I am allowed to take a nap if that is what I want, but I have to be there. Usually I just walk the treadmill very slowly and do some stretches. I try to run and do other things, but most days it just is not happening.
I am very hopeful with the days getting longer and the sun coming out that will help - I always have a little S.A.D. that happens in winter, but nothing anywhere close to this.
Have you ask about wellbutrin or something similar for the SAD?0 -
No, exercise has been extremely helpful for keeping mood issues at bay, and I prefer it that way. I really dislike taking any medications that change my personality or mood or thinking processes. In the past I have tried a few medications but found that in the last few years with working out regularly I dont need them. Of course, this winter is very different since my workouts are suffering. My doctor was totally on board with the exercise replacing any antidepressant type medication so I thought she would be more helpful with trying to figure out what is happening since in general NOTHING keeps me from working out. It has been the highlight of my day for years. I love it. I just cant seem to do anything anymore. I keep trying though. I see a personal trainer twice a week still (for almost 3 years) - he insisted I see the doc when he saw how fast my lifts were falling and how much I was struggling to get through our sessions.0
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Just curious for those who are saying adrenal fatigue is not real... I am just starting to do some research on this after having been to an endocrinologist who said that while my cortisol is low, my testosterone is way low, d is low and b12 is super high - nothing is outside "normal" range except testosterone, but that "rarely causes issues in women". This is a very highly regarded endo. I actually could not stay awake while he was talking to me. But his final result for me was "not endocrine related" and sent me back to my primary doc.
Someone suggested I look up adrenal fatigue and I almost fell over - EVERY SINGLE SYMPTOM on their list is why I went to my primary doc in the first place.
In my limited research so far, I see two very different camps - it is real but unrecognized, or - like here - it is made up and you should go see a "real" doc.
So I am a little lost on what to do now. I am excited that my symptoms correspond with other peoples, but i am not a "snake oil" type person and I firmly believe there must be a cause (diet, perimenopause, etc). I have tried the doctor route and am now desperate for help or something to try - but I am on my own as doctors say I am fine.
Do you all have any other insight on this? I.e. if people who seek these naturopaths are suffering from a condition that is not real, but all have very common collection of symptoms, what is the "other" diagnosis that is being missed? Other options to look into that would mimic this?
My thought right now is simply to try what I can that doesnt require paying someone and I already know is healthy - Ie. following an elimination type diet, using the AFS guidelines on what to eat. Getting more and better sleep, etc. But I dont want to spend months on this and still have same issue because there was an actual medical cause everyone missed.
Any insight is appreciated.
But the endocrinologist did NOT diagnose you with adrenal fatigue, right?
The only way you actually have such as thing is if you have a primary diagnosis of Addison's, panhypopituitarism, etc. A real endocrinologist would be treating you for these things. You would be taking daily injections, tons of pills, and perhaps steroids.
The rest is woo.
As someone with a real, serious, life-threatening set of endocrine disorders, I really don't appreciate people who make up their own diagnoses.0 -
Thanks both of you for the discussion.
After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much.
I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help.
All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
Have you checked in with your bariatric surgeon to see if it may be related to that? Or maybe they would prescribe the B12 for you.
Other than that, do you have your ferritin number? I had some symptoms last spring. At first I was told that I was anemic "but not that bad...shouldn't cause symptoms". Well, guess my body didn't know that I wasn't supposed to have symptoms. Iron transfusions helped.0 -
It would be okay to have a cup of coffee in the morning, as that is when your cortisol levels should be at their highest. As the day progresses, cortisol levels should decline until they are at their lowest at night while you sleep.
There is a supportive diet to help your adrenals, where you partition your slow-carbs through the day, the least at breakfast, more at lunch, the most at dinner. The idea is that if your intake of carbs are lower in the morning, this encourages cortisol release to increase your body's blood sugar. Hence encouraging higher cortisol in the morning. At dinner, your intake of carbs is the highest, encouraging your body to release less cortisol (in order to raise blood sugar), hence encouraging your body to have lower cortisol levels at night.
It sounds like you need to take a look at your schedule and life style and make changes so you can rest and heal.0 -
azulvioleta6 wrote: »Just curious for those who are saying adrenal fatigue is not real... I am just starting to do some research on this after having been to an endocrinologist who said that while my cortisol is low, my testosterone is way low, d is low and b12 is super high - nothing is outside "normal" range except testosterone, but that "rarely causes issues in women". This is a very highly regarded endo. I actually could not stay awake while he was talking to me. But his final result for me was "not endocrine related" and sent me back to my primary doc.
Someone suggested I look up adrenal fatigue and I almost fell over - EVERY SINGLE SYMPTOM on their list is why I went to my primary doc in the first place.
In my limited research so far, I see two very different camps - it is real but unrecognized, or - like here - it is made up and you should go see a "real" doc.
So I am a little lost on what to do now. I am excited that my symptoms correspond with other peoples, but i am not a "snake oil" type person and I firmly believe there must be a cause (diet, perimenopause, etc). I have tried the doctor route and am now desperate for help or something to try - but I am on my own as doctors say I am fine.
Do you all have any other insight on this? I.e. if people who seek these naturopaths are suffering from a condition that is not real, but all have very common collection of symptoms, what is the "other" diagnosis that is being missed? Other options to look into that would mimic this?
My thought right now is simply to try what I can that doesnt require paying someone and I already know is healthy - Ie. following an elimination type diet, using the AFS guidelines on what to eat. Getting more and better sleep, etc. But I dont want to spend months on this and still have same issue because there was an actual medical cause everyone missed.
Any insight is appreciated.
But the endocrinologist did NOT diagnose you with adrenal fatigue, right?
The only way you actually have such as thing is if you have a primary diagnosis of Addison's, panhypopituitarism, etc. A real endocrinologist would be treating you for these things. You would be taking daily injections, tons of pills, and perhaps steroids.
The rest is woo.
As someone with a real, serious, life-threatening set of endocrine disorders, I really don't appreciate people who make up their own diagnoses.
Wow, I think you misunderstood something I said. No - I was NOT diagnosed with this, and the endo told me my issues were NOT endocrine related and sent me back to my primary doc. I am not trying to make up my own diagnosis and I did not say I had adrenal fatigue - I said my symptoms line up perfectly with what the websites say about it, and that I was going to try the parts of their "solutions" that did not require a doctor and would not harm me (i.e. diet and lifestyle changes, etc).
I could not give a flying rats a** what I have is called or related to - I am desperate for something, ANYTHING, that will help and I have tried my best to go through whatever tests and referrals my doctor wanted . Since they all come back and say I am "fine", and I know for a fact I am not "fine", I am left to do whatever I can on my own. I cannot live like this, and I will try anything I deem safe if it sounds like it will help.
So sorry you are having issues, but please dont discount others suffering just because you deem yours "real" and everyone else's not. In my case, I just have not found out what to call it yet - and I dont care what that ends up being or if I never find it, as long as my life gets better than it is now.0 -
Thanks both of you for the discussion.
After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much.
I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help.
All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
Have you checked in with your bariatric surgeon to see if it may be related to that? Or maybe they would prescribe the B12 for you.
Other than that, do you have your ferritin number? I had some symptoms last spring. At first I was told that I was anemic "but not that bad...shouldn't cause symptoms". Well, guess my body didn't know that I wasn't supposed to have symptoms. Iron transfusions helped.
I no longer see the surgeon, but the endo was fully versed in the surgery I had and does a lot of follow up on it. When he first saw me he was convinced I must be malnourished and missing vitamins and minerals. When the tests all came back fine except low D and cortisol (and testosterone) and very high B12, he gave up that theory and basically had nothing more to say to me. He did a second follow up test that showed again I had low(er) cortisol (before 8am) but not low enough to do anything. He officially wrote down "not endocrine related" and to go back to my primary. My primary says she cannot see a cause based on the tests, and the items that are low are not low enough to be causing this.
I had iron tested awhile back but I dont think they did it again this time. You are right, I wonder if my body is just unaware of the "normal range" numbers lol. Thanks
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Lovee_Dove7 wrote: »It would be okay to have a cup of coffee in the morning, as that is when your cortisol levels should be at their highest. As the day progresses, cortisol levels should decline until they are at their lowest at night while you sleep.
There is a supportive diet to help your adrenals, where you partition your slow-carbs through the day, the least at breakfast, more at lunch, the most at dinner. The idea is that if your intake of carbs are lower in the morning, this encourages cortisol release to increase your body's blood sugar. Hence encouraging higher cortisol in the morning. At dinner, your intake of carbs is the highest, encouraging your body to release less cortisol (in order to raise blood sugar), hence encouraging your body to have lower cortisol levels at night.
It sounds like you need to take a look at your schedule and life style and make changes so you can rest and heal.
These are the kind of things I was planning to try. Someone told me the other day to look up adrenal fatigue as I had not heard of it and the first sites I read were all the "positive" ones that believe in it. I was excited thinking maybe I had finally figured this out. Then I started reading some like this one where it is not "real". That is what I was doing today when I found this thread - I searched for it on these boards to see more opinions.
I think I understand that it is probably not "real" syndrome as everyone here has said, but I dont see the harm in following some of the dietary and lifestyle advice to see if it can help. If it doesnt, I will keep searching. It doesnt matter if it is truly adrenal related - better sleep, less stress and eating better certainly cant hurt.
Thank you for the suggestions.
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Thanks both of you for the discussion.
After my results for B12 came by high, despite having all the symptoms of b12 deficiency (totally numb fingers/toes, cold interolance, fatigue, painful muscles, dizziness on standing, etc), I did some research and saw the articles on how serum b12 can be high but "active' b12 still be deficient. My b12 was > 2000 without any supplements or high b12 foods. I have had a sleeve done, and so I assumed my stomach was not making the intrinsic factor necessary to metabolize it, and so I was really deficient - I asked my doctor to let me try the shots of b12 because it really cant hurt since you cannot overdose on it. My doctor would not even read the article about it and thinks it must simply be from too much food with it and says she cannot give me the shots with my levels so high. So I have been supplementing on my own with suligual and spray B12, as well as D - very high doses, for the last month. It "helps" some, but not much.
I also have low(er) blood pressure (90/60 sitting or standing or running), dizziness a lot, occasionally kidney area pain in lower back, pretty sever hypoglycemic episodes where I have to eat or I think I will die, odd panic/anxiety attacks in ways I have never expierienced, painful muscles (a year ago I could deadlift 225 and was in great shape, in the past 6 months i rapidly fell to where I struggle with 135 now, and all lifts hurt). I also cannot be in a car or sitting still without falling asleep. Driving is a serious hazard. I have the worst brain fog ever - i feel like I am walking through jello. Things around me dont seem "real" like I am watching it on tv or something. My periods are irregular for the first time in my life and I have cramps for the first time since high school. Everything seems to point to hormonal issues, which is why I went to endo. But none of my levels are extreme enough for him to think anything is wrong. All are just near the low end (except testosterone, which was almost nonexistent but he says "doesnt normally cause issues in women"). I have an appt with gyno in a few weeks I am hopeful for some answers or help.
All of this happened in the past 4-6 months, I could actually watch it happening and kept trying hard to fight it thinking I was just getting lazy. A year ago I was in the best shape of my life, totally active, working out every day, hiking for miles, running a few miles, energy to spare, sweating like crazy every workout. I now drag myself through each day and despite how much I try during a workout (I still do workouts to keep moving but they are sad and pathetic) - I think my body is incapable of sweating (its been months since I broke a sweat). I keep thinking I just have to power through it or try harder. I have good days and bad days, but the good days are a shadow of what they were and not happening often. There has to be something wrong, it all happened so sudden. But doctors are not coming up with anything, and at this point I am focusing on individual symptom relief through trial and error on my own.
Have you checked in with your bariatric surgeon to see if it may be related to that? Or maybe they would prescribe the B12 for you.
Other than that, do you have your ferritin number? I had some symptoms last spring. At first I was told that I was anemic "but not that bad...shouldn't cause symptoms". Well, guess my body didn't know that I wasn't supposed to have symptoms. Iron transfusions helped.
I no longer see the surgeon, but the endo was fully versed in the surgery I had and does a lot of follow up on it. When he first saw me he was convinced I must be malnourished and missing vitamins and minerals. When the tests all came back fine except low D and cortisol (and testosterone) and very high B12, he gave up that theory and basically had nothing more to say to me. He did a second follow up test that showed again I had low(er) cortisol (before 8am) but not low enough to do anything. He officially wrote down "not endocrine related" and to go back to my primary. My primary says she cannot see a cause based on the tests, and the items that are low are not low enough to be causing this.
I had iron tested awhile back but I dont think they did it again this time. You are right, I wonder if my body is just unaware of the "normal range" numbers lol. Thanks
Any mention of Addison's disease? Low cortisol blood tests are a sign of that. What was your endos opinion about the abnormal blood tests? Has he done adrenal antibody testing? My son has Addisons and a crisis can be fatal if not treated.
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