Don't know what to do

TwiFan5

I am so confused lately about whats going with my body and my health, I don't whether or not to go back to the doctors or just wait and see what happens.

As of my last appointment, I was told that my body was releasing pregnancy hormones without me actually being pregnant and my doctor told me that I more than likely would not get a period or any bleeding until everything is worked out well I bled/spotted from the 13th of September to the 15th with no cramps or anything then I bled/spotted again on the 26th September and then I bled/spotted again on the 3rd to the 5th or 6th October so don't know what to do.

I have had a few days where I have felt sick and almost thrown up and my stomach feels hard even though I gained and lost weight on and off for the past few weeks.

Sorry that I am posting this here.

http://www.myfitnesspal.com/topics/show/332412-just-need-a-little-bit-of-support - Other post

sgha

Do you possibly need to see a specialist? Our bodies can be soooo weird.

TwiFan5

Do you possibly need to see a specialist? Our bodies can be soooo weird.

I am going to see a hormone specialist in December, yeah they can be.

cramernh

Perhaps asking the specialists' office to put you on a cancellation list would also be helpful.... I know if this were me, I would want the help as soon as possible....that would really be bugging me....

TwiFan5

Perhaps asking the specialists' office to put you on a cancellation list would also be helpful.... I know if this were me, I would want the help as soon as possible....that would really be bugging me....

Have already done that, yeah it';s frustrating and my doctor said to go back and see her if I have any questions or worries so am just trying to decide if it's worth it.to go and see her or just wait.

azsuzi

Bleeding and spotting is not uncommon in pregnancy - I bled off and on the whole time I was pregnant. So I wouldn't worry so much about that. What I would be concerned about is that your stomach feels hard - that's not normal. Is that new or was it feeling hard the last time you saw your doc? If its new, I'd go ahead and make an appointment.

TwiFan5

Bleeding and spotting is not uncommon in pregnancy - I bled off and on the whole time I was pregnant. So I wouldn't worry so much about that. What I would be concerned about is that your stomach feels hard - that's not normal. Is that new or was it feeling hard the last time you saw your doc? If its new, I'd go ahead and make an appointment.

It's so frustrating though lol, i didn't think that it was normal, I think it's new and I actually don't remember if it was hard last time I saw my doctor and if it was then, I didn't ask about it so should make an appointment? Thanks for all your advice.

azsuzi

Bleeding and spotting is not uncommon in pregnancy - I bled off and on the whole time I was pregnant. So I wouldn't worry so much about that. What I would be concerned about is that your stomach feels hard - that's not normal. Is that new or was it feeling hard the last time you saw your doc? If its new, I'd go ahead and make an appointment.

It's so frustrating though lol, i didn't think that it was normal, I think it's new and I actually don't remember if it was hard last time I saw my doctor and if it was then, I didn't ask about it so should make an appointment? Thanks for all your advice.

I would make the appointment. That's what she's there for. If you're concerned about something, it's worth a visit.

TwiFan5

Bleeding and spotting is not uncommon in pregnancy - I bled off and on the whole time I was pregnant. So I wouldn't worry so much about that. What I would be concerned about is that your stomach feels hard - that's not normal. Is that new or was it feeling hard the last time you saw your doc? If its new, I'd go ahead and make an appointment.

It's so frustrating though lol, i didn't think that it was normal, I think it's new and I actually don't remember if it was hard last time I saw my doctor and if it was then, I didn't ask about it so should make an appointment? Thanks for all your advice.

I would make the appointment. That's what she's there for. If you're concerned about something, it's worth a visit.

Yeah I think that I will, yeah I know, yeah I know, thanks.

TwiFan5

Am unable to get into my doctor until November so am just going to leave it and wait and see what happens. Am hoping that I am making the right choice.

TwiFan5

Finally decided to make an appointment and I am happy with my choice, the appointments in November.

TwiFan5

I went to the doctors last week and had another blood test done, I rang up and got the results this week and was told that the results were fine by the receptionist but I don't understand that as I still feel crappy and tired so am going to the specialist in December.

cramernh

I went to the doctors last week and had another blood test done, I rang up and got the results this week and was told that the results were fine by the receptionist but I don't understand that as I still feel crappy and tired so am going to the specialist in December.

sorry, but I would be calling back to speak with a NURSE about the test results and never accept them from a receptionist......

TwiFan5

Oh ok then so I should ring back and ask to speak to my doctor.

Beckym1205

I hope everythings ok and you feel better soon.

TwiFan5

Yeah me too, thanks

servilia

If your body was producing HCG without you actually being pregnant I would definitely be pushy and follow up. Sometimes ovarian cysts can do this - it's very rare but you need to look into it. I would ask for a transvaginal ultrasound to look at your uterus and ovaries and see what's going on, in addition to bloodwork.

TwiFan5

If your body was producing HCG without you actually being pregnant I would definitely be pushy and follow up. Sometimes ovarian cysts can do this - it's very rare but you need to look into it. I would ask for a transvaginal ultrasound to look at your uterus and ovaries and see what's going on, in addition to bloodwork.

Yeah I probably should do that, would I talk to my doctor about that or the hormone specialist because I am seeing the specialist next month.

staceyhossell88

And are you definitely not pregnant? Try a home test. I'm just very confused why you'd be producing hcg hormone... And I'm confused why your doctor doesn't appear to care! Xxx

TwiFan5

And are you definitely not pregnant? Try a home test. I'm just very confused why you'd be producing hcg hormone... And I'm confused why your doctor doesn't appear to care! Xxx

As far as I know no I'm not pregnant well as of August (Blood Test Negative) but I guess I could probably do a pregnancy test tomorrow just to be absolutely sure, yeah I am confused too but I am just going off what is posted in my other threads, I think that she cares but doesn't know what to do, Am adding you as a friend on here, hope that you don't mind. xxx

servilia

If your body was producing HCG without you actually being pregnant I would definitely be pushy and follow up. Sometimes ovarian cysts can do this - it's very rare but you need to look into it. I would ask for a transvaginal ultrasound to look at your uterus and ovaries and see what's going on, in addition to bloodwork.

Yeah I probably should do that, would I talk to my doctor about that or the hormone specialist because I am seeing the specialist next month.

Unfortunately most regular doctors don't have the knowledge to properly help you out with this type of issue, they would probably just refer you to the specialist. But it doesn't hurt to talk to him/her about it anyways. I tried to find the medical name for the type of cyst that releases hcg in the absence of pregnancy but I couldn't find it with the searches I did, it's really rare. This is a rare type of cyst, and different from the normal ones that appear every month after ovulation (FYI the normal and harmless kind of cyst is called corpus luteum).

How did they determine you weren't pregnant at the time? Of course if you weren't sexually active that's one indication that it would be out of the question but if you were sexually active it's entirely possible you had an early miscarriage in which case your hcg probably didn't rise very high and it would have been too early to see anything on the ultrasound at the time. If that was the case then your hcg would have gone back down to normal levels (0-5) by now and you wouldn't really ever find out..

By the way, exactly which hormone was your body producing?? When you said pregnancy hormone I assumed you meant HCG but just want to clarify that with you to make sure there's no confusion.

TwiFan5

If your body was producing HCG without you actually being pregnant I would definitely be pushy and follow up. Sometimes ovarian cysts can do this - it's very rare but you need to look into it. I would ask for a transvaginal ultrasound to look at your uterus and ovaries and see what's going on, in addition to bloodwork.

Yeah I probably should do that, would I talk to my doctor about that or the hormone specialist because I am seeing the specialist next month.

Unfortunately most regular doctors don't have the knowledge to properly help you out with this type of issue, they would probably just refer you to the specialist. But it doesn't hurt to talk to him/her about it anyways. I tried to find the medical name for the type of cyst that releases hcg in the absence of pregnancy but I couldn't find it with the searches I did, it's really rare. This is a rare type of cyst, and different from the normal ones that appear every month after ovulation (FYI the normal and harmless kind of cyst is called corpus luteum).

How did they determine you weren't pregnant at the time? Of course if you weren't sexually active that's one indication that it would be out of the question but if you were sexually active it's entirely possible you had an early miscarriage in which case your hcg probably didn't rise very high and it would have been too early to see anything on the ultrasound at the time. If that was the case then your hcg would have gone back down to normal levels (0-5) by now and you wouldn't really ever find out..

By the way, exactly which hormone was your body producing?? When you said pregnancy hormone I assumed you meant HCG but just want to clarify that with you to make sure there's no confusion.

They determined that I wasn't pregnant at the time by a blood test, I am sexually active and my doctor did ask me if I thought that I may have had a miscarriage and I said that I wasn't sure but now I think that I may have so am not sure what to do about that,.

The hormone that was being produced at the time was the prolactin hormone.

Elizabeth_C34

Quite frankly, it sounds like your doctor is not doing what he/she needs to. If you are not pregnant, you could have a mass or a cyst causing you to produce excess hormones. If your doc hasn't done an ultrasound yet, then find another one. Don't be afraid to be a biotch about your health. Make sure you are getting the care you need.

Helloitsdan

My wife suffers from endometriosis and has similar issues.
Crazy stuff!
If the Doc doesnt help def see a specialist!

TwiFan5

Quite frankly, it sounds like your doctor is not doing what he/she needs to. If you are not pregnant, you could have a mass or a cyst causing you to produce excess hormones. If your doc hasn't done an ultrasound yet, then find another one. Don't be afraid to be a biotch about your health. Make sure you are getting the care you need.

Yeah I know, yeah I guess so, is there a possibility that the specialist will do an ultrasound (What will the specialist do?), ok then, I will wait and see what the specialist says.

TwiFan5

My wife suffers from endometriosis and has similar issues.
Crazy stuff!
If the Doc doesnt help def see a specialist!

I have an appointment with the hormone specialist in December.

ukkiosan

Excess prolactin levels will interfere with ovulation and make your menses irregular or even keep you from getting your period - when the normal menstrual cycle of FSH/LH --> estrogen/progesterone is disrupted, the uterus kind of does its own thing, resulting in spotting with minimal cramping. Miscarriages typically are accompanied by intense cramping, heavy bleeding, and the passing of chunks of tissue; what you described seems more mild so IMHO you did not have a miscarriage (standard disclaimer* applies). Disrupted levels of estrogen/progesterone can also cause you to feel tired, nauseous, and to have a low sex drive.

Your body may need some time to get used to the medication, or you may need to have your medication adjusted for your prolactin levels. Either way, I think you'll need to get those levels measured again. I also think you should get your thyroid hormones checked, since 1) they didn't see much in the way of a mass on the MRI and 2) hypothyroidism is a cause of high prolactin levels (the thyroid stimulating hormone, or TSH, cross reacts with the pituitary receptors that increase prolactin levels). The endocrinologist will probably cover all of that and more, so you made the right decision making an appointment with him/her.

And, if you're concerned about pregnancy and other uterus-y things, you can make an appointment with a gynecologist. Your endocrinologist may even be able to refer you to one if you don't already go to an Ob-Gyn regularly. Always, always, always advocate for your health!

[*Standard disclaimer: I'm not a licensed physician (yet...heheh)]

4thehardman

You might have been very early in pregnancy and so a urine test wouldn't always show pregnancy. I'd definately get a 2nd opinion from somehwere else. How did your doctor conclude that you were not pregnant? I bled regularly when I was carrying the triplets so that isn't unusual.

If you hadn't been told by the docor that your periods may be irregular you would probably be more concerned about any unexplained bleeding wouldn't you. Trust me, I live with a doctor. They can be wrong, its human wiring!!

TwiFan5

Excess prolactin levels will interfere with ovulation and make your menses irregular or even keep you from getting your period - when the normal menstrual cycle of FSH/LH --> estrogen/progesterone is disrupted, the uterus kind of does its own thing, resulting in spotting with minimal cramping. Miscarriages typically are accompanied by intense cramping, heavy bleeding, and the passing of chunks of tissue; what you described seems more mild so IMHO you did not have a miscarriage (standard disclaimer* applies). Disrupted levels of estrogen/progesterone can also cause you to feel tired, nauseous, and to have a low sex drive.

Your body may need some time to get used to the medication, or you may need to have your medication adjusted for your prolactin levels. Either way, I think you'll need to get those levels measured again. I also think you should get your thyroid hormones checked, since 1) they didn't see much in the way of a mass on the MRI and 2) hypothyroidism is a cause of high prolactin levels (the thyroid stimulating hormone, or TSH, cross reacts with the pituitary receptors that increase prolactin levels). The endocrinologist will probably cover all of that and more, so you made the right decision making an appointment with him/her.

And, if you're concerned about pregnancy and other uterus-y things, you can make an appointment with a gynecologist. Your endocrinologist may even be able to refer you to one if you don't already go to an Ob-Gyn regularly. Always, always, always advocate for your health!

[*Standard disclaimer: I'm not a licensed physician (yet...heheh)]

Ok then thanks for that encouragement, by medication do you mean my birth control as I am not on any medication at the moment for my hormones, Ok then thanks for that information. I will just wait and see what the endocrinologist says. Thanks for your advice. I bet you can't wait until you are a licensed physician

TwiFan5

You might have been very early in pregnancy and so a urine test wouldn't always show pregnancy. I'd definately get a 2nd opinion from somehwere else. How did your doctor conclude that you were not pregnant? I bled regularly when I was carrying the triplets so that isn't unusual.

If you hadn't been told by the docor that your periods may be irregular you would probably be more concerned about any unexplained bleeding wouldn't you. Trust me, I live with a doctor. They can be wrong, its human wiring!!

Yeah I guess so, ok then, my doctor did a blood test.

Yes I would have been and I still do worry, yeah I know.

servilia

Miscarriages typically are accompanied by intense cramping, heavy bleeding, and the passing of chunks of tissue; what you described seems more mild so IMHO you did not have a miscarriage (standard disclaimer* applies).

This is not really true with an early miscarriage. Typically, up to 6 weeks a miscarriage will be like a period and unless the woman knew she was pregnant she'd think it was just a late period.