Don't know what to do

servilia

If your body was producing HCG without you actually being pregnant I would definitely be pushy and follow up. Sometimes ovarian cysts can do this - it's very rare but you need to look into it. I would ask for a transvaginal ultrasound to look at your uterus and ovaries and see what's going on, in addition to bloodwork.

Yeah I probably should do that, would I talk to my doctor about that or the hormone specialist because I am seeing the specialist next month.

Unfortunately most regular doctors don't have the knowledge to properly help you out with this type of issue, they would probably just refer you to the specialist. But it doesn't hurt to talk to him/her about it anyways. I tried to find the medical name for the type of cyst that releases hcg in the absence of pregnancy but I couldn't find it with the searches I did, it's really rare. This is a rare type of cyst, and different from the normal ones that appear every month after ovulation (FYI the normal and harmless kind of cyst is called corpus luteum).

How did they determine you weren't pregnant at the time? Of course if you weren't sexually active that's one indication that it would be out of the question but if you were sexually active it's entirely possible you had an early miscarriage in which case your hcg probably didn't rise very high and it would have been too early to see anything on the ultrasound at the time. If that was the case then your hcg would have gone back down to normal levels (0-5) by now and you wouldn't really ever find out..

By the way, exactly which hormone was your body producing?? When you said pregnancy hormone I assumed you meant HCG but just want to clarify that with you to make sure there's no confusion.

They determined that I wasn't pregnant at the time by a blood test, I am sexually active and my doctor did ask me if I thought that I may have had a miscarriage and I said that I wasn't sure but now I think that I may have so am not sure what to do about that,.

The hormone that was being produced at the time was the prolactin hormone.

Ok see that's where the confusion comes in, because prolactin isn't "the pregnancy hormone". Although it is highest in pregnant and lactating women, everyone has some measure of prolactin at any point in time. If your doctor felt the need to point this out then I guess you were producing too much for a non-pregnant woman and yes, this should be further investigated because it can result from various endocrine disorders/abnormalities as UKKIOSAN pointed out. Good luck to you!!

mleoni092708

I don't really have advice, just wanted to send good vibes your way. I know what a nightmare it is when everything in your body seems to just go haywire. They'll figure it out, just keep pushing for answers. I also had pituitary issues and had to have an MRI to check for a tumor. All was ok thankfully. Feel free to add me as a friend for support.

TwiFan5

I'm bleeding again and I only bled two weeks ago, I don't know what to do, I'm kind of scared now.

azsuzi

Its probably just part of your irregular cycle due to your hormone issues. I've had that happen at various times in my life even without hormone issues. When in December is your appointment with the specialist?

Elizabeth_C34

I'm bleeding again and I only bled two weeks ago, I don't know what to do, I'm kind of scared now.

Please please go call your doctor and get in immediately or call another one who will see you.

Take care!

servilia

I'm bleeding again and I only bled two weeks ago, I don't know what to do, I'm kind of scared now.

Call the doctor if you're concerned about the amount of bleeding - they can test your iron and blood counts to see if you're in any danger from the frequent bleeding. And of course when you have your specialist appointment they will do the testing of the underlying hormonal issues.. I hope it lets up!!

TwiFan5

Its probably just part of your irregular cycle due to your hormone issues. I've had that happen at various times in my life even without hormone issues. When in December is your appointment with the specialist?

Yeah I guess so, my appointment is the eighth of December.

azsuzi

Its probably just part of your irregular cycle due to your hormone issues. I've had that happen at various times in my life even without hormone issues. When in December is your appointment with the specialist?

Yeah I guess so, my appointment is the eighth of December.

The eighth of December isn't that far away. If you're worried, make an appointment with your regular doc now - otherwise, know that you will be moving forward with your care soon. Good luck. :flowerforyou:

TwiFan5

I'm bleeding again and I only bled two weeks ago, I don't know what to do, I'm kind of scared now.

Please please go call your doctor and get in immediately or call another one who will see you.

Take care!

I am just going to wait until my appointment with the specialist.

TwiFan5

I'm bleeding again and I only bled two weeks ago, I don't know what to do, I'm kind of scared now.

Call the doctor if you're concerned about the amount of bleeding - they can test your iron and blood counts to see if you're in any danger from the frequent bleeding. And of course when you have your specialist appointment they will do the testing of the underlying hormonal issues.. I hope it lets up!!

I am just going to wait until I see the specialist.

TwiFan5

Its probably just part of your irregular cycle due to your hormone issues. I've had that happen at various times in my life even without hormone issues. When in December is your appointment with the specialist?

Yeah I guess so, my appointment is the eighth of December.

The eighth of December isn't that far away. If you're worried, make an appointment with your regular doc now - otherwise, know that you will be moving forward with your care soon. Good luck. :flowerforyou:

Yeah I know, I am just going to wait. Thank you.

TwiFan5

Just a quick update, I have stopped bleeding so am not sure what was going on. Thank you for all your support.

TwiFan5

Just an update on my hormone situation, I am all good, I have some signs of mosaic Turners Syndrome but nothing that should affect my chances of having kids. It was apparently caused by my birth control pill which I want to come off now but am being told no by a few people (not my boyfriend).