New PCOS Buddies

Mandypt

Hi everyone, I'm Amanda. I got diagnosed with PCOS a few weeks back and I've been a member since mid December. I would like to add a few more friends that have PCOS as well because I feel they can relate to me. Anyone out there?

newlaura30

hi amanda i have pcos have been diagnosed for a few years have really struggled with my weight. not all to do with the pcos though. i struggled to get pregnant with my daughter and now seven yrs later am thinking of anothern. i know we will need some medical help but the first thing they'll say is loose weight so my plan is to loose the weight then go see them. i'm 16st12lbs and i know they'll want me at least twelve before they can look at treatment. so i have that as a huge goal but i'm taking it slowly and seven lbs at a time feel free to add me as a friend x

mstankowski

HI, You can add me! I also have PCOS. I was diagnosed almost 10 years ago. Weight has always been a struggle for me. I know I need to reduce my carbs and workout on a regular basi, I am getting there. Sometimes I get upset when I see friends just workout and loose so much weight yet I have to make more of an effort then they do. It's frustrating some times but we can do it.

FruityLoops

Hi Amanda, I'd love to a MFP buddy with you or anyone else, feel free to friend request me :-)

I was diagnosed with PCOS going on 15 years ago now, struggled with my weight though for as long as I can remember :-/ Was on meds for my PCOS originally which helped me to lose a bit, but they gave me stomach troubles so had to stop them. Did manage to lose about 7 stone after reading the PCOS diet book and getting really motivated, but unfortunately gained it back again as I neglected to keep an eye on things once I'd reached my goal :-( Back on the wagon again now, and on different meds, not quite so motivated though so need all the help I can get!! :-)

sandown12

Im 42 found out I have pcos at aged 19 please ask anything you want to know I had infertility treatment weight problems lots of stuff x

Mandypt

hi amanda i have pcos have been diagnosed for a few years have really struggled with my weight. not all to do with the pcos though. i struggled to get pregnant with my daughter and now seven yrs later am thinking of anothern. i know we will need some medical help but the first thing they'll say is loose weight so my plan is to loose the weight then go see them. i'm 16st12lbs and i know they'll want me at least twelve before they can look at treatment. so i have that as a huge goal but i'm taking it slowly and seven lbs at a time feel free to add me as a friend x

my doctor told me it wasnt because of my weight.. i read books about it and just went to a nutritionist, should i get another obgyn since he didn't want to tell me the truth?

Mandypt

I got my cycle on my own yesterday since December 5th, I'm wondering if it started because I lost alittle weight. The doctor said he couldn't tell me if I had PCOS because of my weight or not but I am heavy, I weigh 278 and im only 5'5 so its a given after I read my two books and went to a nutritionist. He recommended that I take a hormone treatment to get pregnant. Did any of you all take a treatment and got pregnant on it?

sandown12

I got my cycle on my own yesterday since December 5th, I'm wondering if it started because I lost alittle weight. The doctor said he couldn't tell me if I had PCOS because of my weight or not but I am heavy, I weigh 278 and im only 5'5 so its a given after I read my two books and went to a nutritionist. He recommended that I take a hormone treatment to get pregnant. Did any of you all take a treatment and got pregnant on it?

a simple blood test will tell you pcos have insulin problems thats why some of us have weight problems but Ive lost lots of weight in the past sadly regained but I lose slow and know pcos doesnt help x

Jaynerajcoomar

Hi Amanda

I'm Jayne and I also was diagnosed with PCOS late last year.

FruityLoops

I got my cycle on my own yesterday since December 5th, I'm wondering if it started because I lost alittle weight. The doctor said he couldn't tell me if I had PCOS because of my weight or not but I am heavy, I weigh 278 and im only 5'5 so its a given after I read my two books and went to a nutritionist. He recommended that I take a hormone treatment to get pregnant. Did any of you all take a treatment and got pregnant on it?

My doctor did a blood test to check for PCOS, though admittedly it's not conclusive (or wasn't 15 years ago anyways!) as there's no one thing that they can look for to say you do/don't have it, they just have to look at your hormone and blood sugar levels and such like that. They also of course go on any symptoms you have, like central weight gain, hair gain, hair loss, etc etc, and I was also sent for an ultrasound though that came back inconclusive for me.

It's quite probable your cycle did start because of the kickstart from the weight loss, I only usually get a few periods a year (if that), but when I lost weight before (lost 7 stone about 5-6 years ago) I had one almost immediately after losing my first few pounds, albeit then I didn't have any more until I'd lost a stone or so but then it was pretty regular for the first time ever!!

newlaura30

hi amanda i have pcos have been diagnosed for a few years have really struggled with my weight. not all to do with the pcos though. i struggled to get pregnant with my daughter and now seven yrs later am thinking of anothern. i know we will need some medical help but the first thing they'll say is loose weight so my plan is to loose the weight then go see them. i'm 16st12lbs and i know they'll want me at least twelve before they can look at treatment. so i have that as a huge goal but i'm taking it slowly and seven lbs at a time feel free to add me as a friend x

my doctor told me it wasnt because of my weight.. i read books about it and just went to a nutritionist, should i get another obgyn since he didn't want to tell me the truth?

thinnk weight can be a side effect and its usually round your middle and it is harder to loose also i've been told when you loose some symptoms should get a little better i.e the dreaded facial hair x but i am no expert there is lots of help online and your dietician usually is helpful, my beautician actually suggested i had pcos before my docs fiqured it out..

newlaura30

it took my consultants along time to diagnos me i had other gynae problems as well. but i had my daughter before hand kinda complicated not sure if you'll want the whole story? x

DeeBee2012

Hi you can add me i I have only just recently joined this website but I got diagnosed with PCOS when i was 13, I am now 21 and really struggled to find ways to tackle my weight.

janehen12

Has everyone been diagnosed through blood tests?
I've had a badly messed up cycle for years, hair where it shouldnt be, and struglged with my weight for as long as i can remmember.
I've seen a doctor countless times, and they've just fobbed me off, and all blood tests have been normal.

Ended up being so fed up I went on the implant to stop them totally, didnt help the other symptoms though!
My plan now is lose weight, get the implant out then not drop it at all!

sandy2006

I have pcos too. There is a group on here as well that you could join, its for women with pcos!

thekacks

I had bloodwork done and an ultrasound to confirm my pcos. I also deal with the hair problems, weight probs, crazy cycle... They say the best treatment is weight loss... but weight gain is a side effect... so you really have to kick it in gear to get the weight off because it is harder to get it off.

rbryntes

thinnk weight can be a side effect and its usually round your middle and it is harder to loose also i've been told when you loose some symptoms should get a little better i.e the dreaded facial hair x but i am no expert there is lots of help online and your dietician usually is helpful, my beautician actually suggested i had pcos before my docs fiqured it out..

I feel like people have varying degrees / levels of PCOS. My doctor told me some were more acute; that is, the symptoms might suddenly appear, but after some weight loss, etc., those symptoms would go away. On the other hand, I can date symptoms/signs of my PCOS going back to when I was 5 years old, and my doctor told me I was NOT one of those who had the "type" of PCOS where it would go away or even abate with weight loss, etc. She likened it to the difference between Type 1 diabetes and Type 2 diabetes.

So it would depend for each person.

mdulanto9177

what does pcos stand for? cause I was diagnosed with poly ovarian syndrome...I'm also isulin resistance and have hypothyriodism....I'm taking Chlomid for POS, metformin for insulin and synthriod for thyriod...

sreichen

Hi all...I just joined and was searching through the forums when I noticed this subject. My daughter has PCOS and I was not happy with the idea of her going on diabetes medicines for something that the doctors are not completely sure how to treat with any type of success. I did a little research and found a sight called www.pcoschallenge.com. This was a very informative site. Many members were talking about something called D-Chiro-Inositol. I researched that a bit on clinicaltrials.gov, the national library of medicines, mayoclinic, etc. What I found through the clinical trial site is that D-Chiro-Inositol is a natural substance inside our bodies that people with PCOS seem to be lacking. After several months of researching this, I decided to let my daughter try it. The only site that sells it is chiralbalance.com and it is somewhat pricey (60.00 for a months supply), unless you want to try something called "buckwheat farinetta", which is a flour like substance that you can make muffins out of to obtain the same amount of D-Chirol-Inositol as the pills. Anyway, my daughter lost 36 pounds within the first 6 weeks and got her "cycle" from that point on -on a monthly basis, something she hadn't done in years (only 4 x per year normally). She was on Synthroid, but has since stopped without any diminishing effects from her thyroid. Yes, she is also insulin resistant which just means that her bodies insulin receptors do not open to accept the glucose for her cells, but instead her body calls for more insulin to carry the glucose. All the extra insulin can only be absorbed through the abdominal wall which is what creates the "belly fat". So before you make a treatment choice, research all that I have written about, and check out the site.

thekacks

what does pcos stand for? cause I was diagnosed with poly ovarian syndrome...I'm also isulin resistance and have hypothyriodism....I'm taking Chlomid for POS, metformin for insulin and synthriod for thyriod...

Polycystic Ovarian Disorder & Syndrome are the same thing. Some call it one, some the other.

mander1621

Hi,

I have PCOS as well. I was diagnosed when I was 16 (I'm 30 now). I have one daughter (8yrs) and my husband & I have been trying to conceive for the past 6 years. My doctor keeps stressing to lose weight but, it's an uphill battle for me. Currently, I'm 5'3" & 220lbs. I haven't even had a period in about 3 years (and even then the doctor brought those on with meds). We were trying Metformin & Clomid but, after several failed attempts, we've put the whole thing on the back burner til I can lose some of this weight.

Anyone have any tips?

bethieannie

Feel free to add me. I was diagnosed with PCOS about 7 years ago. I have struggled with my weight for a long time. This site is the first thing that I have found to help. The motivation I get from others makes it a little easier to make the right choices. I am no comparing my food to people around me, but to the people on here who have made it through so much already.

sreichen

d-chiro-inositol (a supplement that your body already makes but people with PCOS have been show to be deficient in). I researched for about 2-3 months before I would let my daughter take this because I did not want her to be on diabetes medicine which I felt had too many side effects.

You can check out the tests done with this at www.clinicaltrials.gov, and back up info on www.mayoclinic.org

To order the supplement, there is only one place right now that sells it www.chiralbalance.com and for people over 130 lbs., you need 2 capsules daily to equal 1200 mg. A one month dose is $60.00. You can also try to locate some buckwheat farinetta and make muffins out if it, I think 1-2 muffins will be the same as the pills.

Also, visit pcoschallenge.com. This is where my search started and when I found out about the D-Chiro-Inositol.

If you read an earlier post of mine, I talk a little bit about my daughters struggles. While she isn't trying to conceive, she is 26, 5'2" and was 220 lbs. She is now down to 202.

The first time she started taking this supplement she lost 36 pounds in 6 weeks. She didn't want to let me know she couldn't afford the medicine so she stopped taking it. I noticed that she was gaining weight back and asked her about it. She told me the truth and since them I have been buying it for her.

It has also helped with her thyroid (she no longer needs synthroid) and her mood swings.

I hope this helps!!

psiren28

Hi, I too have PCOS. I was diagnosed about 10 years ago after constantly going to the doctor with period problems and being told I just needed to lose weight!
After going 6 months without a period and no help from the doc I changed docs and was sent for blood tests and a scan straight away. I went on Dianette for a while which sorted out my periods. They've stayed regular since coming off Dianette a few years ago. I was also prescribed Metformin but didn't take it for long because it made me feel sick and didn't seem to help any symptoms.
Anyway, now I've finally managed to lose most of the weight. I don't take any medications, so I just deal with the symptoms as best I can.

My symptoms are:

-Gaining weight easily (under control now if I'm careful with my diet)
-Thinning hair (nothing seems to help)
-Acanthosis nigricans (dark skin patches around neck, inner thighs and inner elbows - this has gotten a lot better since losing weight)
-Hidradenitis Suppurativa (painful boil like lumps around my thighs and butt - no change since losing weight, it comes and goes. Not sure if it's a PCOS symptom but a lot of PCOS peeps I know have it, I think there's a link)
-Facial hair (also a lot better since losing weight)

Sending friend request

Bigshadyg

I have pcos too. There is a group on here as well that you could join, its for women with pcos!

I'm new to this site (about a week) and find it so comforting that I'm not alone w/ PCOS and weight and infertility. Where/How do I join this group??

Thanks!

MILFdoesabodyGd

add me, I've had it for a few years. It's only caused me problems in the past year or so.

Dayna154

I thik I too have PCOS...
I have all the symptoms and was put on a lot of the meds by my doc...

MonDeee

I think you need a new doctor! Your weight should not interfere with a PCOS diagnosis. Try to get in to see a PCOS specialist if at all possible.
The thing that has made the biggest difference for me is reducing my carbs/simple sugar. Its difficult to lose weight with PCOS but it can be done.

pandalady8

Hi Amanda! I'm also an Amanda, also recently diagnosed with PCOS. It's so great to know I'm not alone!

MILFdoesabodyGd

Does anyone have pain with sex? My Dr is still trying to figure out why I am but I am wondering (and so is she) if it's the PCOS. Whatever the case, pan with sex is absolutely not okay with me.

dreanance

I have PCOS without insulin resistance. I've had several m/c in the past two years but other than that and a long cycle don't have a lot of the traditional symptoms. I'm sorry you're also dealing with this