New PCOS Buddies

MissLyn01

Hi Amanda! You can add me! I was diagnosed with PCOS 13 years ago. I have been struggling to lose the weight ever since then. It would be great to have contact with someone who understands how hard it can be to lose weight with PCOS. Lynda :-)

onewithwings

Hi everyone, I'm Amanda. I got diagnosed with PCOS a few weeks back and I've been a member since mid December. I would like to add a few more friends that have PCOS as well because I feel they can relate to me. Anyone out there?

Count me in too! I had to take fertility drugs to get pregnant.(My kids are grown) I recently had to have a hysterectomy and ovaries removed due to PCOS. I'm glad I did. I can't imagine my life the way it used to be.

catpurcell29

Hi Amanda! I'm not usually a forum poster, but i saw this thread and just had to say hello! I STRUGGLED with PCOS w/o knowing it for 4 years through out college and finally was diagnosed my senior year. I've been off and on all kinds of different medicines and finally got it in sync with my body last year! I've been able to keep the weight off successfully for the past year as well with regular exercise and a new diet.

Feel free to add me! I'd love to swap stories and am so glad to see a lot of other cysters out there! It's so encouraging to know you're not alone!

MehiraDeOro

Hi there!

I was diagnosed with PCOS when I was 19, and I've been managing my symptoms with the pill since then.

Feel free to add me

catpurcell29

Edited to requote the caption i wanted to, which it took me a couple times to actually do.

catpurcell29

thinnk weight can be a side effect and its usually round your middle and it is harder to loose also i've been told when you loose some symptoms should get a little better i.e the dreaded facial hair x but i am no expert there is lots of help online and your dietician usually is helpful, my beautician actually suggested i had pcos before my docs fiqured it out..

I feel like people have varying degrees / levels of PCOS. My doctor told me some were more acute; that is, the symptoms might suddenly appear, but after some weight loss, etc., those symptoms would go away. On the other hand, I can date symptoms/signs of my PCOS going back to when I was 5 years old, and my doctor told me I was NOT one of those who had the "type" of PCOS where it would go away or even abate with weight loss, etc. She likened it to the difference between Type 1 diabetes and Type 2 diabetes.

So it would depend for each person.

I agree with this completely. I had blood tests and 2 kinds of ultrsounds to be sure it was pcos and Although I've kept my weight in check for the past year, i still have symptoms of excess hair, irregular periods and need insulin pills. Finally I just got a bc implant which helped with the periods (yay! now I have none and it's supposed to be that way!) and spironolactone for the hair, but i still get it, although it's much thinner.

From my experience I would say your doctor is right. There must be varying degrees of it.

QueenJenna

Hi All - My SIL, a NIC-U Nurse, told me I had PCOS. I tried talking to my OBGYN and he said he didn't know anything about it. I don't have a regular physician. Is a PCOS specialist an OBGYN? I haven't found anyone (doc) that is really interested in helping or learning about it... I am sort of floating around the internet trying to find help.

snkoyle15

Just wanted to say hi to all of you Cysters! i too have PCOS. i started noticing problems with my weight and cycles about my junior year of HS. i got married the beginning of 2007 and after a year we went into an OBGYN to see what was going on because i was gaining weight really fast, and we had been trying for a baby since we got married but nothing was working. he did a ton of blood work, which all came back normal. after several cycles of clomid we gave up for a while and stopped seeing him. in 2009 we were able to get into a OBGYN that specializes in infertility. he did an ultrasound and found tons of cysts, on both overies. he explained to me that even though my blood work that was done before had all come back normal, the "normal" range is HUGE so even if it says your hormones are normal, it doesnt mean that they really are. and to answer the lady that asked about being able to get pregnant; after we went to the second dr, he had me continue to take clomid but added Femara and i was able to get pregnant the first cycle. since we started trying for a second baby, it did take us about 15 months to get this one, but im currently 5 weeks pregnant. This time, even the clomid and Femara werent doing it. we took a break for a while and i started taking a cinnamon supplement and it actually caused me to ovulate on my own. Which i have to say, i have NEVER done, at least since we got married 5 years ago. I am also on Metformin in case any one is curious.

Hi All - My SIL, a NIC-U Nurse, told me I had PCOS. I tried talking to my OBGYN and he said he didn't know anything about it. I don't have a regular physician. Is a PCOS specialist an OBGYN? I haven't found anyone (doc) that is really interested in helping or learning about it... I am sort of floating around the internet trying to find help.

to answer your question, from what i have read and been told, most normal OBGYNs dont have a clue about PCOS. and they just try to prescribe birth control because they dont know how/or dont want to deal with it. if possible, find one that specializes in infertility. you could probably just call around and ask right up front if they are really familiar with it. or if you are trying to conceive, see if your normal OBGYN will refer you to a reproductive endocrinologist. they will be familiar with PCOS and should be able to help you manage what ever you are struggling with (if anything) and can help you get pregnant, if that is what you want.

fell free to add me if any of you would like to.

snkoyle15

Oh i just wanted to add, if any of you ladies have Facebook accounts there is a GREAT support group for ladies with PCOS. http://www.facebook.com/groups/cystersunite/ it is a closed/private group so you just need to ask to be added. we talk about anything and everything you could think of, and where its private, no one but the group sees what you post. it has been an AMAZING help to me. there are ladies in every situation. we are here to listen no matter what, even if you just need to vent. just wanted to share this with you ladies.

jenrod1118

Hi everyone! I have been struggling with PCOS since high school and am now 29. My husband and I have been together for 12 years and no kiddos yet. I've been trying to slowly but surely lose some weight and manage symptoms without pharmaceutical meds. It's been working so far.

All friend requests accepted

bookin01

I also have been dealing with PCOS for over ten years.
Some other great support groups are:
http://www.facebook.com/groups/MarriedWomenTTCwithPCOS/
http://www.facebook.com/groups/ChartingBuddieswithPCOS/
http://www.facebook.com/groups/127805797329229/
http://www.facebook.com/groups/156394037757695/

melg126

I have PCOS since I hit puberty... add me! That goes for any of you (please include a note). :flowerforyou:

Keladry

I have PCOS, only diagnosed last year (age 20) although had symptoms since I was 17 (acne, crazy cycles). The acne's finally under control with the pill, but I still find I sweat way more than my friends, the Dr said that could be a symptom. I also wonder if my recurring depression is linked. I only want to lose a couple of kilos, my focus is more on getting fit and toning up, but I've found it very difficult in the past to lose any at all, even when eating what I thought was healthily. I've discovered I feel best when I keep my sugar intake very low, I aim for 20g a day including fructose but not including lactose but often I go over.

fluffygoodness

I was diagnosed almost 2 years ago and I don't have the traditional symptoms (I have regular cycles, not diabetic) I do have the lovely misstache and she-beard though lol. I take metformin and spiralactone daily. I lost almost 80lbs before being diagnosed and I think subconsciously my weight loss efforts have stalled because of the diagnosis. Feel free to add me!!!!

determinedhealthy

I was diagnosed at age 17 I'm 32 now. Weight gain promotes all the typical symptoms for me. I have noticed great changes since my recent weight loss.

Moviedust

Yeah I get that sometimes too

Does anyone have pain with sex? My Dr is still trying to figure out why I am but I am wondering (and so is she) if it's the PCOS. Whatever the case, pan with sex is absolutely not okay with me.

Moviedust

I have PCOS too, I was diagnosed in September and since then I've lost about 25 lbs or so. Feel free to add me