The PCOS VENT YOUR FRUSTRATIONS ongoing thread:)

TammyG39

I am so glad I found this thread!! I'm just venturing out into the forums, and saw another PCOS one today, and now I'm finding others.. I'm sure I'll be using this quite.a.lot!!

Melroxsox

im feeling so inspired to beat PCOS today! normally I let it get to me.....depress me....and break me down with hopelessness, but not today ladies! NOT TODAY! I have a fresh outlook on life right now and im going to use it to my advantage. eating whole fresh foods, cooking from scratch, and exercising the Pcos right out of my mind body and soul. you all are so amazing and inspiring! I know this is a venting thread, but for me it is also inspirational and uplifting as well. MUAH! Good luck my loves!

Melroxsox

i've never known this many women with PCOS! it's nice to know i'm not alone!!!!!!!!! it can really suck sometimes, but i'm glad it's not anything worse!

I know right, I've only met 2 people with it, in real life. My cousin (hubby's side) she said she's been pregnant 15 times, but she has 4 kids. The other is an old co-worker of mine, who just keeps having miscarries like me. I had no idea this many people have this same issue as I do, its kinda nice to know I'm not alone.

Its so much more common than people think. Im sure there are undiagnosed women out there that haven't even been documented yet....so we don't really know exactly how common it is yet......thats why Im constantly trying to get the word out there to women. The earlier you're diagnosed the earlier we can take control over it before it gets too destructive!

Dollymix22

Doesn't the hair growth reduce with weight loss? That's what happened with my friend. I'm sure a lot of the symptoms reduce with loss although don't qoute me on that as i'm not entirely sure.

Melroxsox

Doesn't the hair growth reduce with weight loss? That's what happened with my friend. I'm sure a lot of the symptoms reduce with loss although don't qoute me on that as i'm not entirely sure.

I think it depends on how severe the case is. I know women who have lost all their pcos weight and still have chin hairs...so who knows...lol

Melroxsox

dear pcos, haha! I ovulated this month! so eff you!

nickyfm

Dear PCOS
you are an *kitten*
I;m sick to death of these sugar cravings, and the pms fake outs you give me.
I am sick of the fact that I have done acupuncture, herbs, vitamins, progesterone tablets and yet, you STILL prevent me from getting a period. My last one was in freaking May 2011!! I mean wtf?!
Oh and the cherry on the cake: adult acne!! Yeah thanks for that too. Some days I look like a 14 year old.

I just hope I can have children when I'm older...no thanks to you...
/end rant.

lerrab

I also have PCOS! It blows =( I want nothing more then to have my own baby. It is a everyday struggle to not give up. Thanks for a forum like this. Always needing encouragement.

melb2003

I have PCOS. I loathe the irregular periods, and the fact that I've been trying to get pregnant for almost 4 years. I did succeed last year, but to only have a miscarriage after a couple of months. I feel so useless, and when I think about the miscarriage and the emotional rollercoaster I went through, it's all a bit too much for me.

castadiva

Doesn't the hair growth reduce with weight loss? That's what happened with my friend. I'm sure a lot of the symptoms reduce with loss although don't qoute me on that as i'm not entirely sure.

Not for me. Seems to be getting worse and spreading to new areas as I lose weight. Horribly embarrassing, and doing a real number on my never-very-robust physical confidence. That and the lower-abdominal fat-loss resistance are the two things I hate most - I've lost two sizes on my top half, and barely one on my lower body, which is naturally the bit I'm most self-conscious about. Gah!

princessdracos

Doesn't the hair growth reduce with weight loss? That's what happened with my friend. I'm sure a lot of the symptoms reduce with loss although don't qoute me on that as i'm not entirely sure.

Not for me. Seems to be getting worse and spreading to new areas as I lose weight. Horribly embarrassing, and doing a real number on my never-very-robust physical confidence. That and the lower-abdominal fat-loss resistance are the two things I hate most - I've lost two sizes on my top half, and barely one on my lower body, which is naturally the bit I'm most self-conscious about. Gah!

This is so NOT what I wanted to hear! I can easily spend an hour plucking every couple of days, with a few maintenance plucks in between. I'm sorry yours is getting worse, but I'm gonna cross my fingers that mine goes the other way! Now if the skin tags would fall off like an earlier poster said hers did...lol

Also, the skin discoloration...my grandmother would make me scrub my neck all the time because it always looks dirty. Some necklaces really react with my skin, but I'm normally colored funny. :ohwell:

Tink_889

I have PCOS and endomitriosis. Very frustrating!

Melroxsox

I have PCOS and endomitriosis. Very frustrating!

did you get diagnosed with both at the same time?

SweetSammie

Laser hair removal was awesome on my face. I found a great deal on it on Groupon. Best thing I EVER did for myself. I am not a high maintenance person, but it was so worth it. I love not having to wear makeup to cover the breakouts caused by plucking!

Usbornegal

Laser hair removal was awesome on my face. I found a great deal on it on Groupon. Best thing I EVER did for myself. I am not a high maintenance person, but it was so worth it. I love not having to wear makeup to cover the breakouts caused by plucking!

I've seen the groupon deals, but wasn't sure what to think.

Lozze

This is so NOT what I wanted to hear! I can easily spend an hour plucking every couple of days, with a few maintenance plucks in between. I'm sorry yours is getting worse, but I'm gonna cross my fingers that mine goes the other way! Now if the skin tags would fall off like an earlier poster said hers did...lol

My hair is too light for IPL (been told be three different beauticians) so I wax. I do it fortnightly and it's worked wonders. Otherwise I have a very light beard. Because in addition to the PCOS both my mother and maternal grandmother have had to shave since they were young. So it's inherited plus a disease causing it. Joy. The wax my beautician uses has helped reduce it so, so much. I went three weeks last time!

rhichi

I've decided to copy the OP.

Dear PCOS,

Thank you for saving me money on birth control pills...by making me infertile. Thanks for then making me never menstruate, thus requiring me to buy the same birth control I was supposed to not need just so I could avoid uterine cancer.

No love,
Rhichi

alg26

This is my experience. My husband and I had been trying for 4 years to have a baby when I was finally told I have PCOS. For the next 6 years we started and stopped seeing 7 different fertility specialists. We would start then move or my husband would deploy and we would have to start over with a different doctor that said he had new and different tests for us to do. They were always the same tests! After 10 years had past since we began trying I had one more test that needed to be done, but it had to be 7-10 days after the first day of my cycle. Great, that came but only ever 4 months if I was lucky! They gave me a progesterone shot and wouldn't you know, it worked! Too bad I was so busy with work I never got the chance to take the test! Ahhhh! So 4 months go by and NOW I wasnt going to let anything get in the way of me taking this test! Another shot and 14 days later, nothing! They tell me to go it because, "there is probably something wrong with your uterus"! Of course, what's one more thing?! :-/ they give me an ultrasound and I will never forget her words..."um sweetie, your 4 months pregnant"!!!!!
Now it didn't happen quickly (10 years) nor easy (I had lose 60lbs prior) but I was very lucky to have it happen and without needing fertility medication! I truly believe the weight coming off made a huge difference! After my daughter was born (Dec'08) I was determined to get the weight off again and hopefully have another baby. I lost 30lbs and ended up pregnant with my son!!! I am very lucky I know. But I do understand the struggles and heartache!
This is what my doctor (leading PCOS specialist for my region)tells me. PCOS is not a developed disease, we were born with it. More woman than you would believe have it but you and even themselves will never know because they don't have many symptoms (hate them ;-D). PCOS is not inherited by your mother but rather your father. Those whose mothers have it just shows how common it really is (this is just what I'm told). As for the eating lifestyle change, they tested my blood for almost every test they could. I recently found out that while I thought I was doing good some of my levels were dangerously high! I felt fine! They made it clear that if I want to continue to be able to raise my children I had to change! That's all I needed to hear! I'm so grateful to have been shown the truth! As far as the hair, I'm with you there, beard ahhhhh! I have done laser treatments from head to toe and EVERYWHERE in between (yeah, kinda became an obsession to get rid of the hair)! While it does grow back, and I'm told always will, it has improved so much in some areas and worth repeated treatments on others. While it is expensive, I found a company (ideal image) who understand about PCOS and offer lifetime reduced fee touchups!!
Sorry this was so long, I just hope it can encourage those who are trying to conceive, lose the weight or just trying to understand what in the world is going on with them! You are not alone! We are all cysters together! ;-)

kazzsjourney

I thought i would share. I have PCOS too. 5.5 years ago i weighed 173.1 kilos(380 pounds)...i now weigh 84.2 kilos (185 pounds). At my heaviest I had a lot of the symptoms...irregular periods (one every 7 months or so)...extreme period pain....bad skin...migraines...excess hair. Now adays...i have a period every 26-29 days...I have had one migraine since July 2009 (and it was mild), my skin is healthy, I still have the hair issue. But the majority of issues have gone away. I also find if I have a month where I dont eat as well....my cycle will extend out to every 32 days or so...and mood swings come out with avengance.

princessdracos

My hair is too light for IPL (been told be three different beauticians) so I wax. I do it fortnightly and it's worked wonders. Otherwise I have a very light beard. Because in addition to the PCOS both my mother and maternal grandmother have had to shave since they were young. So it's inherited plus a disease causing it. Joy. The wax my beautician uses has helped reduce it so, so much. I went three weeks last time!

Awesome! I usually use a depilatory cream on my 'stache and just pluck the chin hairs. Maybe if I waxed regularly I could get more mileage out of it. It's worth trying if I can find someone I like and can afford!

Shyhmim

Urgh!! I've been newly diagnosed. Now I'm on metformin and the whole world thinks i'm diabetic which I"M NOT and i have to explain what the hell PCOS is. And I need to lose weight coz of all the risk factor and insulin resistant crap. now i know why everytime i try to lose weight i either CAN"t or i can;'t maintain the weight loss. I HATE PCOS. just like everyone else.

LETS FIGHT THIS TOGETHER. :explode:

Usbornegal

Because in addition to the PCOS both my mother and maternal grandmother have had to shave since they were young. So it's inherited plus a disease causing it. Joy.

PCOS has a hereditary factor so they most likely have the same issue. I want to add that I had years of electrolosys treatments for excess hair growth and lots of that hair stayed off permanently. Had a bad practitioner for part of it and have some subcutaneous scarring.

StarvingDiva

I hated the way doctors treated me when they first diagnosed me. When I was trying to discuss my options with them they said "Well you don't have to worry about it until you want to get pregnant" Really? I politely raised my voice at her and said I have a beard, I'm packing a spare tire, I'm balding on top of my head pray tell who will actually want to get pregnant with that?? Give me a break. It's annoying that there is no help, I finally got to go to an endo who of course pushed scripts, of Metformin, dieting, spiralactone etc. I tried at the beginning and then gave up.

I instead chose to do alternative things. I did acupuncture for a year to regulate my period. After I lost my job I couldn't afford acupuncture but had plenty of time to exercise so I started doing just that, now I'm down 31 lbs and my last 3 periods have come right on time, 28 days, 31 days, 30 days. I was averaging before acupuncture 38-46 days.

A friend of mine who has PCOS as well actually much worse than me as she can go months without a period. Tried for 2 years to get pregnant. Finally gave up the clomid and all the drugs. Went to a massage therapist and had mayofasial massage done twice (specifically for fertility) and conceived that same month.

I am not against prescriptions or any of that, but for myself I have chosen a different path. Acupuncture has been around forever, billions of chinese people can't be wrong. HA!

Ravenesque_

Dear PCOS

I dont care about not having periods for over 10 years. In fact I quite enjoy it. I dont miss the events certainly. My uterus is probably stuffed full of blood that it hasnt shed in 3 years.

I don't care about being infertile. I never wanted children. It's not like you gave me any choice in the matter.

I don't care about the facial hair or the unruly beard. Let people make fun of me as they please, I do not value their opinions.

I don't care about the abuse you caused me. I simply compensated by having no friends. I talk to myself these days, its good conversation.

I don't care about the weight, or the abuse it engenders: I simply grew my personality to match it.

I don't care about the moodswings. I have fought depression so much it has no effect on me anymore. Trust me, I have the scars to prove it.

I don't care about the fact that I'll never have a husband, boyfriend or family of my own. I'm trying my damnedest not to care. I succeed most of time now too.

Thank you for turning me into the jealous, hardhearted fat old b*itching harpy that I am today.

Yours utterly uncaringly
@rk (aged 25)

StarvingDiva

I'm going to get an ultrasound this Wednesday to see if I have PCOS. I read through this forum and noticed that I do have a few hairs that grow on my chin and I gain all my weight in my mid-section. I regularly go about 60 days in between periods. My doctor did a blood test and though I might have "mild PCOS"....so we'll see. I haven't been able to get pregnant, but hopefully I can get pregnant naturally- that's a goal of mine in losing weight.

It just makes me wonder, why do so many women seem to have PCOS? My entire family is SO fertile, so I don't understand why I would be the only one to have fertility issues. :frown:

I'm starting to wonder if it's all the crap in our foods, It's such a disruption in hormones, all the plastic we have been using for the last 50 years or whatever, plus I also heard years ago they used to do drilling on the ovaries, or wedging the ovaries, a surgery where they took a chunk out, and it seemed to help re-regulate the hormones, however, they stopped doing it (you may be able to find SOMEONE who will still do it) and switched to meds instead. My doctor who diagnosed me, had the wedging done and she said she considers herself cured.

Why they stopped doing it, I don't know but it seems everything they do nowadays has to be done with a prescription, but those prescriptions don't always do the trick. It's so damn frustrating.

kbrob14

Im skipping my Clomid this month. I think Im going to do One month ON clomid and one month off....I don't want to kill my ovaries...plus doing everything in my power to lose this friggen weight....it comes off so slow with PCOS....Im talking snails pace....but I suppose thats not all a bad thing. As long as I keep it off!

Ask your RE or OB about Femara it got me preggo and less side effects. I miscarried but it wasn't because of the Femara.

Femara is wonderful! My husband and I did one month of it combined with me losing some weight, and we are now happy parents to B/G twins. My OB/GYN said it didn't increase my chances of twins by much (I have a big family history of twins), but it worked so smoothly! Friend me if you have any questions! :happy:

docsharp

I am so frustrated with PCOS I cannot stand it. I cannot figure out how to get rid of the anger. SO SO SO FRUSTRATED.

knphillips89

I'm 22 yrs old and was diagnose with PCOS when I was 15. I hate that I have this and I hate that I can't keep my weight off. I have what I call "my pouch' that's below my stomach. I just want to cut it off!!!!

docsharp

I agree, I cannot keep the weight off either, I gain so fast it's easy to gain 5lbs in one day, so frustrating.

Usbornegal

Dear PCOS - you will NOT win! In fact I am gloating because I am beating you. Through hard work and exercise, my A1C is down from 6.1 to 5.9, I have lost almost 20% of my starting weight, and can't tell if this is menopause or just what you have always done to me, so I don't even have all the adjustments the 'normals' have. :flowerforyou: