Any hypothyroid folks here?

sbehren1
sbehren1 Posts: 3
in Introduce Yourself
Hi Everyone,

My name is Scott I'm a type 1 diabetic with hashimoto's thyroid disease. I used to be a very very skinny guy but when I developed thyroid disease my weight started to increase about 10 pounds per year. I just hit 190 and decided it's time to loose about 20 pounds and reclaim some of the energy I have lost. Ice started doing P90 and cut my calories by quite a bit. In the past, even with diet and exercise I have been unable to loose weight and was curious if other people with thyroid disease had similar issues.

-Scott
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Replies

  • txflea
    txflea Posts: 11 Member
    Hi Scott. I I have hypothyroidism also. Before the medication I could walk past a cake and gain 10 pounds, it's still not easy and I usually have no energy but it can be done
  • sbehren1
    sbehren1 Posts: 3
    I'm starting to feel like with working out and diet I'm getting some of the energy back. I've been able to get some sleep finally but no weight change...yet.
  • mazzer16
    mazzer16 Posts: 30
    Hi Scott... I have an underactive thyroid.. and gained weight just like you... and just like you am having trouble getting rid of it... I haven't been on here very long myself... but i am finding it very useful.. counting all the food i eat..
    it is very heartbreaking seeing others lose weight and i don't.. but i have seen others with same prob as us that have lost weight... so i live in hope..
    add me as a friend and maybe we can help each other get rid of this thyriod fat we gained...
  • xannonz
    xannonz Posts: 40
    I have had under active thyroid for almost 12 years now. I use to think thyroid = fat, I was devastated when I learned I had this problem, but I refused to let the disease define my body type, it is a constant battle though. I also have several friends that have the same problem that with attention to diet and exercise look amazing. Your welcome to add me as a friend, and I will cheer you on along the way!
  • lpeacock56
    lpeacock56 Posts: 11
    I can not relate to this, but can just say best of luck! I am new to this and joined because my weight seems to go up and down like a yo yo. I needed something where I could track and visually see what I was doing. So hope to get a friend or two for support!!!
  • leska1216
    leska1216 Posts: 260
    For 20 yrs I whined and complained but no one listened. Finally last year I was fed up and insisted more tests be done. Lo and behold, my thyroid was both hyper and hypo. But more than that, one side was cancerous and the other side not. I had a thyroidectomy and am now on medication. My meds have not been stabilized yet, a year after the surgery. I gained weight after my daughter was born and was also about the time I started my complaining: which was chalked up to postpartum, female, etc etc. I am on 8 different meds. In 2000 I was diagnosed with diabetes and refused to take any meds.

    Now 12 years or 20 years, depends on who's counting, I still have a wonky thyroid with unstabilized meds. And, I AM NO LONGER A DIABETIC. I ate and exercised the big D out of my life.

    Weight loss is possible with thyroid issues, and diabetes can be beat.

    Keep eating healthy and exercising!!
  • SBlost
    SBlost Posts: 90
    Hi, I have been radiated and put on medication and my dosing has been changed so many times and now I am finally on the right dose and taking my meds daily and watching what I eat and exercising more. I am losing weight but very slowly. I feel healthier and I have more energy and for now thats all that matters. You need to have the energy to workout and keep motivated so I know I am on the right track.
    Feel free to add me as a friend

    Best of luck on your weight loss journey and with your health!!!
  • AmyFett
    AmyFett Posts: 1,607 Member
    I'm hypo, feel free to add =)
  • AmyFett
    AmyFett Posts: 1,607 Member
    Hi Scott. I I have hypothyroidism also. Before the medication I could walk past a cake and gain 10 pounds, it's still not easy and I usually have no energy but it can be done

    This made me laugh. I hear you though. It really stinks sometimes. I was undiagnosed with mine for over 4 years. Before I got pregnant with my first daughter, who is now nearly 4 years old, I got blood work done. My levels were off back then. The doctor that ordered the blood work that time never told my primary doctor and apparently she never thought to check my file or anything. SOOOO about 7-8 months ago now, I made an appointment because of the weight gain and actually literally being unable to lose it, no matter what I was doing, counting calories and exercising, busting my butt! I'd just gain, gain, gain. 228 lbs at 5'2. I demanded they find out what's going on, sure enough. They found my levels were off that long ago and were even worse now. Gotta love it.
  • kmm7309
    kmm7309 Posts: 802 Member
    Hi Scott. I I have hypothyroidism also. Before the medication I could walk past a cake and gain 10 pounds, it's still not easy and I usually have no energy but it can be done

    Me too, and if I smelled cake, I gained another 5.

    I still feel like my energy levels have not corrected themselves after over a year on medication. But I am proof that weight can be lost with hypothyroidism (and I'm insulin resistant too!)
  • anwilson_83
    anwilson_83 Posts: 66
    i also have hashimotos and yes it is very hard to lose weight for me. i usually have no energy even when on the right does of meds according to my blood work. it also seems to mess with my appetite, i am hungry alot more than i think i should be.
  • JenniBaby85
    JenniBaby85 Posts: 855 Member
    I have hypothyroid. It sucks :angry:
  • tlovesthesun
    tlovesthesun Posts: 4
    Hi Scott,
    There is a group forum for hypothyroidism and hyperthyroidism that you can join on here if you haven't found it already. There is a lot of good information. It can be very frustrating when no one around you understands what you're going through.
  • MtnKat
    MtnKat Posts: 714
    Me me me

    I have Hypothyroidism and take medication for it daily. I have to get tested every 3 months for the rest of my life and my medication fluctuates all the time. It's very hard to lose weight and it takes a toll on you, but it can be done. So far I've lost 18 lbs in 3 months.

    Good luck and don't give up no matter how frustrating it may seem.
  • CentralCaliCycling
    CentralCaliCycling Posts: 453 Member
    I have been taking thyroid or the synthetics since I was in my early twenties. Never really had a weight problem but it certainly effects my mental acuity when I do not have the meds... also there a clear lack of energy at those times.
  • firstsip
    firstsip Posts: 8,399 Member
    I'm hypothyroid because I had a complete throidectomy at 13 (i'm now 23). I always struggled with my metabolism, though I was always thin--it was more related to my eating disorder PLUS a slow metabolism, so imagine strapping a 15 year old girl with that.

    I actually am here because I gained weight over the course of a year because of thyroidtoxicosis--TOO much thyroid, all from my thyroid medication (I had a TSH of 0 and ended up in the hospital with some pretty crazy symptoms). I'm the testament (and many on here are) to thyroid = metabolism issues, regardless of too much or too little. It's hard to find a balance!
  • Bethann680
    Bethann680 Posts: 9 Member
    I was diagnosed with hypothyroidism 15 years ago. I have been on medicine since then. I had gained 122 lbs since my diagnosis, yes a whole person! I also have PCOS which also causes weight gain so I thought I would always be fat. But in Jan. I decided enough was enough and I have lost 91 lbs so far. So it definitely can be done.
  • dwn2erth
    dwn2erth Posts: 144 Member
    I've had a low thyroid for 18 years now.. I 'really' didn't have a problem until menapause I've gained over 60 lbs in the last 10 years. It is rough There's more involved than just the numbers on the lab results.
  • dwn2erth
    dwn2erth Posts: 144 Member
    I was diagnosed with hypothyroidism 15 years ago. I have been on medicine since then. I had gained 122 lbs since my diagnosis, yes a whole person! I also have PCOS which also causes weight gain so I thought I would always be fat. But in Jan. I decided enough was enough and I have lost 91 lbs so far. So it definitely can be done.

    Bethann you are an inspiration!!! Way to go; because we all know how extremely hard you must be trying!!!
  • survivor1952
    survivor1952 Posts: 250 Member
    Hi Scott! Last Oct. I was diagnosed with Hashimoto's and had 1/3 of my thyroid removed. Even though my TSH levels were normal I gained over 10lbs. in one month after surgery.I also was ice cold all the time & was sleeping 12 hours a day. After seeing my endochronologist, she determined I was also pre-diabetic & informed me that TSH "normal" levels can be different for everyone. She started me on a low dose of Synthroid for my thyroid and also Metformin for the pre-diabetes. I have improved greatly and have lost the 10 lbs. since being on My Fitness Pal. (it was dr. who suggested this site) Watching my calorie intake and taking my meds is helping me. Feel free to add me as a friend. Talking to others who have this condition helps. Losing weight & getting more active is very important to handling both conditions, just don't get discouraged.
  • riotshows
    riotshows Posts: 32
    If you have Hypo you gain weight and Hyper you lose. Is this correct? I have the kind where you gain, but have managed to
    keep the weight at bay for 10 years and lost some as well, but It has required a great deal of self control. And I have reinvented
    the eating plan and exercise plan many times over. Don't give up. I also am on medication. I have heard many people have gained
    weight with the meds...this might mean that they need a higher dose.

    I also have Diabetes. I was diagnosed in my 20s and have been on diet, exercise and metformin. They recently added Glyberide,
    but I have been having lows everyday due to the disapline of MFP. This is a good thing, but I have to adjust my meds at the moment.
  • Kelleybelley69
    Kelleybelley69 Posts: 43 Member
    Hi I developed Graves Disease 5 years ago and well as you know everything has drastically changed in my life as I knew it to be. I have adapted to my new life after an RAI treatment, three evasive eye surgeries and going from a fairly easy eating lifestyle to a 30 pound weight gain that I am still fighting it daily. Would love to chat with other fighters of this disease I will check back here soon.
  • firstsip
    firstsip Posts: 8,399 Member
    If you have Hypo you gain weight and Hyper you lose. Is this correct? I have the kind where you gain, but have managed to
    keep the weight at bay for 10 years and lost some as well, but It has required a great deal of self control. And I have reinvented
    the eating plan and exercise plan many times over. Don't give up. I also am on medication. I have heard many people have gained
    weight with the meds...this might mean that they need a higher dose.

    I also have Diabetes. I was diagnosed in my 20s and have been on diet, exercise and metformin. They recently added Glyberide,
    but I have been having lows everyday due to the disapline of MFP. This is a good thing, but I have to adjust my meds at the moment.

    That's not technically correct. Symptoms are different than signs. For instance, a "sign" is something that is mandatory for a disease, versus a symptom which may come across as different per person. You can be too low for levels (making you hyper) and gain weight or you can have too high levels (making you hypo) and gain weight. It's not that either magically makes you gain--depending on the person, your metabolism just gets messed up from the thyroid.

    If you legitimately have so many endocrine problems, I would get much more educated, since you don't even know the name of your thyroid condition!
  • talena824
    talena824 Posts: 13
    Hey Scott!
    I'm 25 and have hypothyrodism also! It came about 3 months after I had surgery, and gained 25 lbs in the year I wasn't allowed to work out while my surgery wounds healed completely.
    I've been working out and dieting for 2 months and lost about 11 lbs
    It's a very slow process, due to the hypothyroidism, but you can do it! Stay strong and positive! It can be achieved!
    Feel free to add me if you need friends :)
  • Andrea419
    Andrea419 Posts: 83 Member
    Hi! I was diagnosed with Hashimotos about eight years ago after having my last child. I gained about twenty pounds, I did manage to lose most of the weight after starting the medication. I gained back weight in the past two years, so I joined here hoping to lose it for good. I'm also trying to motivate myself to exercise more.
  • HoundDown
    HoundDown Posts: 25
    Hypo right over here!
  • got2bstrong
    got2bstrong Posts: 29
    Here!

    Make sure your doctor checks your levels of TSH, T3, and T4.

    If you are on Synthroid, try swapping to another brand. Honestly, sometimes the "fillers" in the meds make it less effective.

    Investigate Cytomel, (a synthetic T3). sometimes, added to synthroid, it helps with the symptoms.

    and last, but NOT least, try NATURAL thyroid - (from piggies!) Armour thyroid..

    I have always been anti-pills, but the endocrine system is no joke. Those hormones, just a tiny imbalance, wreaks havoc.



    Sorry you (and so many here) have to deal with the thyroid problems. It is certainly frustrating.

    Hang in there!
  • sbehren1
    sbehren1 Posts: 3
    This is great to see such a positive response. I've been on Synthroid 88mcg for the last 4 years or so. I just had some lab results and now I'm moving up to 100mcg. Awesome to see so many of you with hypothyroid loose weight. I'm definitely willing to put in the extra work!
  • kebass8
    kebass8 Posts: 13
    I am 24 and was diagnosed as hypothyroid when I was 14. I started at 88mg, but I am up to 112mg now. I still feel tired all the time and then my coworker was recently diagnosed and she was told to take a Vitamin B-12 as well since hypothyroid symptoms can be increased due to lack of this which is common in 50% of hypothyroid patients. Before I was getting tested like every 3 months because I was insistent that I was still always tired and cold. Ever since I started taking B-12 though I have been sleeping less, 8 hours with no naps rather then 11 hours with a 2 hour nap later in the day. Also my mood improved too and my metabolism I feel. Although I do find that if I eat the amount of calories I am suppose to eat to maintain my weight, I actually gain. I have found a lower calorie count then what they suggest just in order to maintain and then less then that to lose. It is slow going though to lose, but really easy to gain.
  • Louiyen
    Louiyen Posts: 69
    GL! I don't have it but I know it's possible to lose weight with hypothyroidism. It's tough but continue to preserver! I have a friend that is the opp, hyperthyroidism, and he can't gain weight for nothing.

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