I hate to eat!

pmteet

Hi...

First, I'm so glad we connected and have been chatting. I would like to share (and since it's public in your profile, I'm not betraying a confidence), that I have the same genetic disorder as the OP.

I was going to say that I wonder if it could be some type of sensory issue that's tangential to the disorder (as it seems so many things can be). Have you ever inquired about it with other people with NF or a geneticist?

Hugs to you and I'm glad we connected.

Laurie

I have spoken to someone. I have not had a head MRI in years and that could be a cause. But since my headaches have not increased no one wants to do much. I am changing doctors to see if they woudl be willing to do an MRI. A tumor in my nose or brain could cause issues.

So this is a side effect of some Rx you are taking?

Maybe there's an Rx to get you hungry and make food taste good? Um, Marijuana? Just take it easy with the pastas and fast food.

Or is there an alternative medication? One that doesn't mess with your tastebuds?

I was told the Vicodin use long term can mess with eating and such. But I stopped that a couple months ago because I did not like how it made me feel. Neurotin also for pain. It is not a pain med in and of itself but it dulls neurological pain if taken daily does contribute to weight gain. I have gone off of it 3 times and all 3 times I lost a min of 5 lbs in a week. I simply can not go without it as the pain has become unbearable.

You are off to a good start by trying and seeking advice!

FIRST: The fact that you are in pain has everything to do with it.

I am free of pain from fibermialgia and neurothopy thanks to a whole food called Laminine. It is sold through the internet and has been on PBS for curing many issues. Pain can make you not want to eat.. Check out the site healalllevels.com for information to explore more.

Second: You mentioned being poor at one point. This can be a psychological issue and if dealt with emotionally may help. As a professional therapist I have seen this especially since I have a book dedicated to research on all eating disorders. It is titled
8 Weeks to "Bliss" available through Authorhouse.com is researched, proven and invited on NBC TV and numerous radio shows.
, Mary Caterina Casto

I am not sure I have emotional issues due to being poor but anything is possible. I just assume that is why being hungry is not a big deal to me. I have friends who just have to eat because they are hungry and I really don't understand. Now going without my caffeine that is another story. I will check out that website and food. As long as it does not interfere with birth control I will try.