Topamax-losing weight rapidly...
Cakelady92
Posts: 37
Hey everyone.
I started Topamax 6 days ago for bipolar and I've already lost 7 pounds. I have 100+ pounds to lose so I can afford it. Has anyone else had a similar experience?
-Becca
I started Topamax 6 days ago for bipolar and I've already lost 7 pounds. I have 100+ pounds to lose so I can afford it. Has anyone else had a similar experience?
-Becca
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Replies
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anyone?0
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No, I heard this was a side effect of it for most people, but of course when I was on it I gained instead!0
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Are you having any other side effects?
Topamax does commonly cause weight loss, but it is also not prescribed for bipolar disorder. It can be, but is off label. Are you sure that is what you are taking? If you don't mind my asking, are you type 1 or 2 bipolar? A mood stabilizer like lithium or valproate in combo with an antidepressant if necessary is usually standard of care. It worries me you taking topiramate (which is a seizure drug) and already having a reaction to it. Are you seeing a psychiatrist or is your primary care provider giving you that?
Sorry for all the questions, but I would keep an eye out for any other reactions as well as your bipolar symptoms and make sure to tell your doc. Since topiramate is off label, it has not been extensively studied in bipolar disorder.0 -
My doctor gave me Topamax in high school to lose weight. It is an off-label use for it...0
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Are you having any other side effects?
Topamax does commonly cause weight loss, but it is also not prescribed for bipolar disorder. It can be, but is off label. Are you sure that is what you are taking? If you don't mind my asking, are you type 1 or 2 bipolar? A mood stabilizer like lithium or valproate in combo with an antidepressant if necessary is usually standard of care. It worries me you taking topiramate (which is a seizure drug) and already having a reaction to it. Are you seeing a psychiatrist or is your primary care provider giving you that?
Sorry for all the questions, but I would keep an eye out for any other reactions as well as your bipolar symptoms and make sure to tell your doc. Since topiramate is off label, it has not been extensively studied in bipolar disorder.
My friends doctor has her on an anti seizure med (not sure which one) for depression. Also research into depression and bipolar treatment for my novel has shown that it's common practice to perscribe meds for their side effects.0 -
My youngest daughter's neurologist gave her this for migraines0
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I took Topamax for over 10 years because of seizures and did loose weight myself. However, I had to stop taking it because I ended up with kidney stones. Not pleasant. Good luck!0
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I wouldn't say common practice. It's always a risk prescribing something for offlabel use. I don't do it. I also do not work in psychiatry, so perhaps it is more common there. If the OP is under the care of a psychiatrist, then fine. I would be worried about a primary care provider attempting to treat something like bipolar disorder especially with using off label meds.
I know palliative medicine has more leeway with using off label meds, so perhaps psych does too, if that is what your research suggests. Personally, I'm not willing to take the risk.0 -
I lost about 10 pounds when I was on it but it gave me weird neuro symptoms and I got off it after just a couple of weeks. My doc was hoping its side effect of mood stabilization would help me. Can't say for sure if it did, as my anxiety shot through the roof due to the neurological symptoms. I'm now on Lithium, Abilify, Bupropion XL and Alprazolam to control my disorder (BP NOS)0
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I took it for migraines. I recently quit it after a couple years because I couldn't stand the side effects (they don't call it Dopamax for fun) which included forgetting what I was saying mid-sentence, and general stupidness. It stinks because it worked great at controlling my migraines, and they are coming back with a vengeance. It's worth it to me to feel more myself again though.
From what I read, the total amount of weight loss usually ends up being about 5% of your body weight. I have noticed my appetite is a lot stronger since I quit it.
It has a ton of side effects including kidney stones (got my first one after 12 years without), birth defects if you get pregnant, bone loss, etc. Johnson & Johnson had to pay over $6 million dollars for illegally marketing it as a treatment for psychiatric conditions.
It can also cause suicidal thoughts, so just be really careful on it.
Good luck.0 -
Weight loss on Topamax is a pretty commonly reported side effect. Just keep watch for the weight dropping too fast, too much and for other side effects.0
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My doctor just prescribed it for migraines but I have not picked it up from the pharmacy yet. To be honest I am hoping for the weight loss side effect; but not the others.0
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Hi...Not trying to be a "Debbie Downer" here, BUT I just came off the generic 2 days ago (had to ween myself off of it) because of all of the horrible side effects I was having. No, I was not lucky enough to lose any weight the 3 months I was on it of course. I did, however, feel as though I was losing my senses. Before I say anymore I was on 100mg twice a day for migraines. This medication DID help the migraines, but was not worth the risk of being on it. I had terrible dizziness, so bad I felt as though I shouldn't have been driving sometimes...can't work out or ride my bicycle. I had involuntary eye movement and when that happened I felt like my brain was being 'zapped". Pins & needles in my hands, ringing in my ears, unable to think of words to put a sentence together (still having a problem with that), my eyesight is now different and I am hoping it is not permanent, dry mouth, taste change...especially to carbonated drinks, no motivation for anything, confusion, and the topper that finally got me to a doctor that cared enough to look into what was going on, was diarrhea for a month. It was so bad that I could not go anywhere but work. I am sorry if this is TMI, but if I can help one person know they are not crazy while taking this medication that is all I care about. Right now you are losing weight and that is great, but if you see, or feel any negative things happening to you, you need to think about whether this drug could be the result of that. My GP was not listening to me when I told him all of what was gong on with me and I was silly enough not to look up the side effects. I had to have my Gastro doctor open my eyes to what was going on. After seeing him I looked up and printed the side effects and could not believe how many I was having, and MAJOR ONES!
I hope you continue to lose weight and that you have none of the negative side effects...GOOD LUCK!
PLEASE PAY ATTENTION TO WHAT YOUR BODY IS TELLING YOU!:flowerforyou:
Debbie0 -
Topomax (Topiramate) comes with a long list of side effects but commonly experienced ones are:weight loss, dry mouth and taste alterations, impaired coordination, and cognitive slowing and kidney stones.0
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Hi...Not trying to be a "Debbie Downer" here, BUT I just came off the generic 2 days ago (had to ween myself off of it) because of all of the horrible side effects I was having. No, I was not lucky enough to lose any weight the 3 months I was on it of course. I did, however, feel as though I was losing my senses. Before I say anymore I was on 100mg twice a day for migraines. This medication DID help the migraines, but was not worth the risk of being on it. I had terrible dizziness, so bad I felt as though I shouldn't have been driving sometimes...can't work out or ride my bicycle. I had involuntary eye movement and when that happened I felt like my brain was being 'zapped". Pins & needles in my hands, ringing in my ears, unable to think of words to put a sentence together (still having a problem with that), my eyesight is now different and I am hoping it is not permanent, dry mouth, taste change...especially to carbonated drinks, no motivation for anything, confusion, and the topper that finally got me to a doctor that cared enough to look into what was going on, was diarrhea for a month. It was so bad that I could not go anywhere but work. I am sorry if this is TMI, but if I can help one person know they are not crazy while taking this medication that is all I care about. Right now you are losing weight and that is great, but if you see, or feel any negative things happening to you, you need to think about whether this drug could be the result of that. My GP was not listening to me when I told him all of what was gong on with me and I was silly enough not to look up the side effects. I had to have my Gastro doctor open my eyes to what was going on. After seeing him I looked up and printed the side effects and could not believe how many I was having, and MAJOR ONES!
I hope you continue to lose weight and that you have none of the negative side effects...GOOD LUCK!
PLEASE PAY ATTENTION TO WHAT YOUR BODY IS TELLING YOU!:flowerforyou:
Debbie
Oh yes, I forgot to mention the pins & needles feeling! Awful, never went away. My feet and hands would "fall asleep" even with no blood supply cut off, and they would hurt like the normal "foot asleep" feeling times 100. Hated it!0 -
my Dr prescribed me this for migraines... when I got home & read the side effects I threw that crap in the toilet... my only regret is that I didnt read about the side effects BEFORE I paid the outrageous pharmacy co-pay....0
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It totallty screws with your tatsebuds and makes you not really want to eat, hence the weightloss. At least that what it did for both me and my daughter when our doctor gave it to us for migraines. Neither one of us stayed on it long, couldn't stand not being able to taste our favorite foods & drinks!0
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I was on Topiramate in high school for migranes. I could only stand to be on the medication for less than a year due to the side affects. I was gaining weight, my hands and feet were numb, I forgot simple words and sentence structure, and could hardly walk in a straight line due to dizziness.
It was nice to not have migranes for that short time, but it wasn't worth it for me to have my body rebel in that way.0 -
my Dr prescribed me this for migraines... when I got home & read the side effects I threw that crap in the toilet... my only regret is that I didnt read about the side effects BEFORE I paid the outrageous pharmacy co-pay....
Never throw medications down the toilet. These drugs cannot be removed from the water supply by filtration or treatment.0 -
I am seeing a psychiatrist. Topamax was prescribed as a last resort because all other antidepressants, etc I have been on caused me to gain 80 pounds in a year and a half. I started at 15mg for a week and tonight I go up to 30 mg. After one week I have already lost 10 pounds. I am occasionally dizzy and I get the "tingles" now and then but so far nothing unbearable. Maybe because I am on such a low dose. Thanks everyone for your input!0
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I have a friend on it losing weight, but you have to remember part of why you may have been overweight may be due to medications. It was for her so her doctor said it would be okay to take it as it would help her lose in addition to what it's perscribed for.0
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I took it for migraines. I recently quit it after a couple years because I couldn't stand the side effects (they don't call it Dopamax for fun) which included forgetting what I was saying mid-sentence, and general stupidness. It stinks because it worked great at controlling my migraines, and they are coming back with a vengeance. It's worth it to me to feel more myself again though.
From what I read, the total amount of weight loss usually ends up being about 5% of your body weight. I have noticed my appetite is a lot stronger since I quit it.
It has a ton of side effects including kidney stones (got my first one after 12 years without), birth defects if you get pregnant, bone loss, etc. Johnson & Johnson had to pay over $6 million dollars for illegally marketing it as a treatment for psychiatric conditions.
It can also cause suicidal thoughts, so just be really careful on it.
Good luck.
After all of what I have gone through with this drug, I had no idea it was called DOPAMAX...how appropriate, SADLY! Forgetting what I was saying mid-sentence, and general stupidness was, and still is a HUGE problem for me! So many people could not figure out what my problem was so suddenly! I am afraid this won't go away..............0 -
my Dr prescribed me this for migraines... when I got home & read the side effects I threw that crap in the toilet... my only regret is that I didnt read about the side effects BEFORE I paid the outrageous pharmacy co-pay....
GOOD FOR YOU! Even though I only paid $10 for mine each month, I wish I had done the same...............0 -
I had also taken topamax and had all the bad side effects
I also had really bad muscle weakness where I was having a really hard time making it up a few steps and my legs felt like they were going to give out, started getting hives from it as well. I checked what the ingredients were and it is sulpha based and sulpha is in some antibiotics and I am allergic to that so I had to stop taking it. I didn't like the feeling of walking around like I was in a fog all day either. I wasn't on it long enough to see if my migraines got any better so I don't know if they would of worked 0 -
I agree with the FOG feeling too. I am still there and hope it goes away. Although the dizziness has gotten better, it's still happening. I described my legs giving out feeling to the doctor (BEFORE I took myself off this drug) and he didn't even suspect this drug. So much for educating themselves before prescribing!0
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I was prescribed this for migraines. I took it for three weeks before deciding i needed to be off it. I wanted to kill people when i was taking it. It didn't matter who. You, me, my kids, random strangers, EVERYBODY. i was a freaking wreck. I'm generally a nice person and had never had any kind of depression before, but THAT? That was miserable. Luckily, i recognized it, and did NOT kill anyone. Yay me!
PS - I'm making light of this, but I'm 100% serious. Be careful.0 -
For those who immediately denigrate "alternative medicine" please just move on...
I used to suffer from migraines, not nearly as bad as some of you seem to, nor as badly as my mother who used to take a self-injection of her migraine meds to knock her out. I forget the med, but she did wake up without the migraine. However, my psychiatrist at the time also studied TCM (Traditional Chinese Medicine). Three, count them THREE, acupuncture treatments and my headaches were gone. 10-15 years later I still get the occasional baby-migraine but, as I am now IN China... treatment is readily available.
I started as a skeptic... now I'm a skeptic with no migraines.0 -
This would explain why my driving habits have become dangerous. I've always been a safe, cautious driver, but in 2012 I pulled out in front of a car without looking, didn't put my car into first gear when parked on a sloped driveway and despite the e-brake being on, my car still rolled into the back of a truck, then I backed into someone as I was pulling out of a space, but that was more circumstantial - I was creeping out behind a huge SUV and a guy just zipped by an obviously din't see me. I wasn't going very fast. But still. My fault. And a few weeks ago I backed into a truck that had some strange apparatus on the front hood that I couldn't see from behind me or my mirrors. Just yesterday I cut a guy off that I didn't even see. This is completely bizarre behavior for me.
I take 50mg of Topomax every morning along with Wellbutrin 150mg, Lamictal 500mg through the course of the day and Concerta for ADD and a thyroid med (Im BiPolar2). I never lost any weight or had any of the awful side effects so many of you did, aside from the cognitive ones, which are very dangerous now that I'm putting 2 and 2 together. I will definitely talk to my Psychiatrist about this an the necessity of this medication.0 -
I was put on Topamax last June for Migraines. I have lost the migraines and 62 pounds so far with no exercise. I still have more weight to lose. No other side effects. It just cut my appetite so I am eating healthier.0
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