Others with MIGRAINES--help!

So lately my migraines have been horrific, every day, nauseating, keeping me from doing what I need to do, etc.

This has all been worse within the past 2 or 3 weeks. Before that, my migraines were under control and I hardly ever got them anymore. Sometimes the change in weather has an effect (MI weather is very unpredictable day to day) so I am not sure if that has been adding to it.

I notice they are the worst when I first wake up. This morning for example, I had to take some medicine and lay back down in the pitch dark for a good hour before I could even consider getting up and moving around without being sick.

Has anyone noticed patterns with their migraines or have any ideas/tips that would be helpful?! I feel like my neck is sensitive and that is what is causing it i.e. having a bad pillow. But I have memory foam pillows and I don't know what kind of pillow could be any better.

Any help/advice is appreciated :) Obviously if I cannot find a remedy I will have to visit my neurologist again but I am away at school for now and could use a quicker solution. Thanks!
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Replies

  • kotersmom
    kotersmom Posts: 96 Member
    I could have written that! Mine are worse in the mornings...I wake up many mornings and have to call in work and tell them I will be late. I take my meds and sleep a while longer and it usually works. The changes in weather do affect them it seems like. I have tried so many things and nothing seems to work. Been to numerous doctors with no help. Mine start in my neck. I have the nausea, sensitivity to light and sound...the only thing I can do is lie down and hope it goes away if my meds don't work. Shots don't help, pain meds don't help. I have just recently been to a chiropractor that seems to be helping. It's been 10 days since I have had a migraine. May be just a coincidence, but time will tell if it's the adjustments that are actually helping. 10 days is a big deal for me when I generally have them at least 3 times a week!
  • kat2475
    kat2475 Posts: 159 Member
    Hey, I'm also in MI so I totally get the weather issue. I take a supplement called Migrelief. It was actually recommended by my neurologist. It takes a couple months to build up in your system but it has cut the amount and severity of my migraines in half. Before I was having to ration my Maxalt each month but now I can go almost 2 months before filling my next Rx.
  • Val_from_OH
    Val_from_OH Posts: 447 Member
    I definitely get them with weather changes, and also TOM. Last year, I had a migraine that literally lasted for a month before I decided to go to the doctor. She gave me a steroid pack which broke the cycle, and gave me a script for Imitrex. Now I take the Imitrex at the first sign of the migraine (usually extreme fatigue/irritability for me), and it usually keeps the duration to less than a day. It is safe to take with other pain meds, so I take it along with Excedrin.
  • DoctahJenn
    DoctahJenn Posts: 616 Member
    Mine hit once every month or so and last for THREE DAYS. Ugh. Three solid days of sitting in a dark room drinking coffee, eating mint candies, and slugging water like crazy, with some asprin every 4-6 hours. I keep meaning to see a doctor about them, but they run in my family and I've only just started getting them in the last six months.
  • MorgueBabe
    MorgueBabe Posts: 1,188 Member
    My doctor had me on a daily medication to prevent them I forget the name of it. Then I took imitrix via a statinject pen (needle) when I got them.
    They told me to avoid high potassium foods, foods with nitrates (processed meats) and a bunch of other stuff I didn't really eat anyway.
    My lactose intolerance eventually got so bad I cut out ALL dairy. No milk at all from animals, not real butter, no cheese, no cream nothing. And poof they're gone.
    I used to migraines like 2 times a week so bad I black outs and threw up for HOURS from them. Now I get one mild one like every few months.
  • uconnwinsnc
    uconnwinsnc Posts: 1,054 Member
    For the past 4 years, I've gotten REAL migranes twice a year on one day between August/September. Never any other time. Strange? I think so. I get the kind where your vision pretty much goes away for 20 minutes followed by the rest of the day of brutal head pounding. I attribute it to allergies I guess.
  • SashleyA
    SashleyA Posts: 122 Member
    I was getting them while on my period for a while, until my doctor switched up my birth control prescription to something with a different hormone balance. It cleared them up so I only get one occasionally now, not every single day of my period. I'm also more prone to them when I eat too much sugar and not enough other stuff.
  • Hellbent_Heidi
    Hellbent_Heidi Posts: 3,669 Member
    Mine are also hormonal, but it might help to run a humidfyer in your bedroom at night. The extra dryness brought on by this cold weather and running the heat higher at home can cause headachces for a lot of people.

    If they continue to get worse...see your doctor for sure though!
  • CallMeCupcakeDammit
    CallMeCupcakeDammit Posts: 9,377 Member
    My neurologist told me that melatonin helps with migraines. I don't sleep well, even when I've taken melatonin, so it actually works against me, since my migraines are almost always sleep-related, but if you generally don't have trouble sleeping, it might work for you. I don't know if you have to register to see this or not. http://www.medscape.com/viewarticle/804116 If I catch them early enough, I can get rid of them with Excedrin, otherwise I have to take Relpax. I'll go back to bed for about 20 minutes and it's usually gone. If I'm at work, I turn off the lights over my desk and use the light under my desk ledge, and that helps.
  • I know a couple of people who have gone gluten free and have not had a migraine since and they used to have to be hospitalized! A good resource is "Wheat Belly" which guides you through changing to gluten free eating and explains why.
  • misfit34
    misfit34 Posts: 104 Member
    I too suffer from Migraines. I find that when I feel one coming on (the blurred vision, flash of light over eye) I take a dose of benadryl and then take some pain relief. This was something that my doctor told me I could when I was pregnant since I couldn't take the prescription meds that I was taking for prevention (topamax). She said that it would lessen the symptoms and also aid in the nausea. It has helped me, I find that I am not throwing up when I have my migraines like I did in they past.
  • drangonfly2323
    drangonfly2323 Posts: 197 Member
    I have just finished up a 3 day migraine. Mine have actually gotten better since losing some weight but still come once in a while and this was was pretty bad. However mine are normally worse as the day goes on. I find that sometimes a bag of ice on the back of my neck will sometimes help with the pain. I really wish I could give better advice because I know how absolutely terrible they can be. I hope you find something that helps you.
  • CallMeCupcakeDammit
    CallMeCupcakeDammit Posts: 9,377 Member
    Mine hit once every month or so and last for THREE DAYS. Ugh. Three solid days of sitting in a dark room drinking coffee, eating mint candies, and slugging water like crazy, with some asprin every 4-6 hours. I keep meaning to see a doctor about them, but they run in my family and I've only just started getting them in the last six months.

    Until I tried Excedrin (and then finally saw a neurologist), that was me! Three freakin' days, and I'd get an average of 6 episodes a month. My insurance would only pay for 6 doses of Relpax a month. :huh: Once I got into better eating habits and started exercising regularly, I hardly got them at all. Now they're mostly from forcing myself to stay awake when I'm sleepy, and the occasional weather-related one.
  • DeeVanderbles
    DeeVanderbles Posts: 589 Member
    The best thing you can do is go to the doctor.

    I got headaches in HS and they progressively got worse. It wasn't until my second year of college that I ended up going to the doctor because of them. I started missing both class and work and that wasn't acceptable to me. I started to log all of my migraines. Start time, end time, pain level, what I had eaten recently to look for a food trigger, whether or not it was TOM, anything I did to try to relieve it (meds, caffeine, etc.). I went armed with all of this information to my PCP and they prescribed Midrin (which is no longer available) for normal headaches and imitrex for migraines. The Midrin worked for me for migraines and it's cheaper so I didn't continue with the imitrex. My Midrin prescription finally ran out recently and they put me on Fioricet and it works just as well as the Midrin did.

    It was eventually determined that they were "stress migraines" which I think is crap because I don't have a stressful life. My longest migraine was 7 days.
  • HoneyBadger302
    HoneyBadger302 Posts: 2,085 Member
    I get weather related migraines, and they are always the worst in the fall - spring can be bad too, but fall is always the worst. Mine can get bad, but they are also very controllable. For me, if I pop some Tylenol as soon as I have even the slightest headache, I can at least keep the pain at bay. I can tell when it's a real migraine, however, because I'll still have the other symptoms - light sensitivity, nausea, etc...but at least I can function with those things.

    I loosely follow a paleo-type diet....any meals/snacks that I make/pack are based on that general diet, but I'm not so strict about it that I will never eat out, either. My bad migraines became far more infrequent after moving to California - in Wisconsin I can remember crying myself to sleep and having to skip class because it was torture to be anywhere other than curled under the covers in a ball. I only get a semi-bad one a few times a year now, and if I follow my regime, I can usually keep functioning with it.

    I also try to eat as much organic/grass fed food as possible, my mother noticed that she had more issues when she was eating more store bought meats and veggies.
  • eat_run_play
    eat_run_play Posts: 30 Member
    one thing that triggered mine was artificial sweeteners. splenda (sucaralose), aspartame, saccharine, sugar alcohols (maltitol, xylitol, sorbitol)... if you changed your diet and are eating "diet" or "sugar free" this could be the case. it was for me. maybe for you. maybe not.
  • rml_16
    rml_16 Posts: 16,414 Member
    Have you seen a neurologist? That would be my first step. If you don't have any of the "special" drugs, you might want to get some. Maxalt works wonders when I get one I can't shake, though most of mine go away with an Exedrin/Aleve combo.

    Yoga helps, too. I've gone into a yoga class with a splitting head and within two minutes felt 100% better.

    As far as having them under control, regular exercise and a healthier diet have worked wonders.

    Do you have food triggers? Have you noticed you're eating something specific before they come on? And if it's in the morning, what about sinuses?
  • rml_16
    rml_16 Posts: 16,414 Member
    I'm not being funny - google 'Botox' as a cure for migraine - apparently it really works!
    They will only do that for people who can't be treated any other way. And she would need to see a neurologist for it, not a plastic surgeon.

    So, as I said, first step -- neurologist.
  • LFDBabs
    LFDBabs Posts: 297 Member
    I noticed a HUGE decrease in my migraine headaches when I gave up ALL artificial sweeteners. I still get the occasional one here and there, but no where near what I was experiencing. I'm sure there are different triggers for everyone though.
  • RaeLB
    RaeLB Posts: 1,216 Member
    Do you sleep on your back? Too much pressure on the back of neck/base of the head can cause migraines.
  • debubbie
    debubbie Posts: 767 Member
    I used to get horrible migraines to the point that they would last for weeks and I was pretty much worthless. I started going to a chiropractor because my neck would stay stiff and the worse the pain was in my neck the worse my migraine would be. The use of a chiropractor generated a lot of relief for me and getting deep tissue massages help to keep migraines at bay. I only get a migraine once every few months now and I rarely use more than ibuprofen and sleep to get rid of them now. You may want to look into going to a chiropractor and getting massages to help release the tension in your muscles.
  • becky10rp
    becky10rp Posts: 573 Member
    You need to see your Dr.

    NOW.

    I was getting 15+ migraines a month - lots of things triggered them: weather, TOM, artificial sweeteners, alcohol......

    I am on a LOW dosage of Topamax which helps - (12 mg) - higher dosages have a LOT of side effects -

    Put 'Topamax' into your search window and you will see previous discussions on this drug; while it can cut down on migraines - it can give you other side effects such as: your sense of taste changes (everything tastes like cardboard); your memory turns to mush (friends' names, basic 'things' - you just CAN'T remember).

    I would be a mess without Topamax - I can now live my life and DO things - but again, I'm on a REALLY low dosage. At one point I was on 100 mg - and I didn't like it at all.

    If you are put on Topamax - TAKE ALL OF YOUR MEDS AT NIGHT BEFORE YOU GO TO BED!!!! Do NOT take Topamax throughout the day - driving on this drug is DANGEROUS!!!
  • justsarah07
    justsarah07 Posts: 18 Member
    Read the recent book "Grain Brain" by Dr. David Perlmutter a leading neurologist in the medical world. http://www.drperlmutter.com (You can also YouTube his presentations)
    Much of his book talks about the effect grains have on your brain. There are some amazing case studies of people with chronic migraines who removed all grains from their diet and haven't had any pain. The idea is grain-free, low carb, very high fat. Your brain is made up of 70% fat and often our dieting consists of low-fat, high carbs, medium protein. We are starving our brains and they are reacting too it.

    Also, join the Wheat Belly (Dr. William Davis) Facebook page. There you will find person after person who suffered from migraines for years and now no longer do with their new lifestyle. Many of them have given up their medications because they no longer need them! This is a very positive/supportive page with lots of pictures to encourage you in a new lifestyle.
    https://www.facebook.com/pages/Wheat-Belly/209766919069873

    Here is a story of one gal who gave up grains and no longer has migraines:
    http://www.marksdailyapple.com/no-grains-equals-no-migraines/
  • EmilyJackCO
    EmilyJackCO Posts: 621 Member
    I've had migraines since I was 7, and they have become cluster migraines since I've gotten older. They have also increased in severity. I usually break out in a cycle while either under extreme stress or after a period of such stress has subsided. I have found that 39 times, they have also coincided with massive earthquakes: Boxing Day, Japan, Chile, China, Iran, etc etc etc. It's not always, but it's most of the time. I'm not the only person I've ever run into like that either. They have also seemed to have gotten worse as I've gotten older.

    These days, I find myself waking up with them at 2 or 3am. Nothing helps the pain at that point, I can take all the painkillers in the world and it won't help if the pain has already started UNFORTUNATELY, I have tried every drug and every elimination diet out there and nothing helps. In fact, eliminating caffeine made it 10x worse. I have found sometimes, that if I can catch it right at the beginning of the tunnel vision, get a triple espresso, 4 advil and 2 benadryl - I can stop the pain from starting up. The last time I was hospitalized for one, the benadryl was recommended by the neurologist, and it really did help. Of course, this was AFTER he gave me dilaudid and triggered a massive anxiety attack which they had to give me xanax for and more reglan as I started projectile vomiting all over again. >.<

    Truth be told though - I just tough it out most of the time. I have had them so much of my life and so often, and spending years caring for my mother debilitated by them: I fight. It sucks, it hurts, I can't think straight, but when I was 15, I decided that I was NOT going to let them rule my life. I keep going - or else I would not have a life to speak of at all. I wouldn't have a career, let alone be able to hold a job. I have fought through crisis calls with migraines that had me curled up on my tile floor of my bathroom, but I still had a job to do. I've gone to see concerts with migraines, choosing my positioning carefully. I have done just about everything with these headaches, and 7 out of 10 times, a workout actually will make them go away. My rule is, though, I stay put during the aura phase (45-60 minutes), get as much done before the pain starts, and then scale things back if I have to... but keep plodding along. I will adjust plans if the nausea is so bad that I can't cope with it... but also, as a result of having colic most of my life, I can function with that as well.

    In fact, now that I think about it - the more consistently that I go to the gym, the less they happen. I've had one set of cluster migraines since I committed to 3-4 heavy workouts a week. That lasted a month and a half, coincided with the year anniversary of my mom's death and the holidays, and went away on their own. And... yeah, that was about the time I quit going to the gym on Sunday's because of football. :P My doctors think I'm a very unique little critter, but I know I'm just a damn force of will. :D
  • mteague277
    mteague277 Posts: 145 Member
    Have you tried getting a massage or getting tested for food allergies? Massages help me. Once a month. Mine are mostly from lack of sleep though. Good luck, migraines suck.
  • kotersmom
    kotersmom Posts: 96 Member
    I'm not being funny - google 'Botox' as a cure for migraine - apparently it really works!

    I keep waiting for my neurologist to say we can try Botox. However the insurance will not pay unless all other treatments have been exhausted. We are getting close! Most of the meds others have mentioned haven't worked for me.
  • Leah_Alexis
    Leah_Alexis Posts: 139 Member
    I have my chiropractor and massage therapist on speed dial.
  • ashenriver
    ashenriver Posts: 498 Member
    They run in my family, my triggers are certain building lights, pressure changes, dehydration, stress, irregular sleep patterns. I haven't checked out the food angle yet.

    Is Excedrin still available?? My pharmacist told me that it is no longer available, it was one of the best drugs for me. Now I take ibuprofen and caffeine when I feel one starting. Tylenol does absolutely nothing. I have to take medication right when they start. Sleep does not help.

    Make sure you get enough water, one of the worst migraines I had was when I was doing survival training and got dehydrated.
  • runningjen74
    runningjen74 Posts: 312 Member
    I've got migraines in the past but thankfully, I really only get headaches now - but even they've gone.

    I moved to a paleo/primal diet - I vary on how strict I am.

    Mine were stress and hormonal based - sticking essentially to gluten free / sugar free means I don't get headaches. Staying off the wheat/sugar seems to allow my hormones work 'normally' (I don't know this for sure - they had been very messed up for 10+ years, but all the signs are good and I've a blood test on tuesday that will confirm how things are)

    Would never wish a migraine on anyone - I can't hold down anything including water/food/painkillers and have ended up in hospital to get re-hydrated.

    You've nothing to lose from cutting out the wheat / sugar. If that doesn't work, look up the paleo and try doing it fully - re-introduce foods and see how you get on. I keep carbs lowish, around the 100 but listen carefully to my body. It complains when I go too far over or under.

    I was away late last year for a few weeks for a family emergency and just ate what everyone else ate. Carbs went up, my sugar demon came out, ate wheat (and my tummy complained immediately)....It took about 3- 4 weeks, but the headaches came back. I'm now sworn off wheat + sugar in all but exceptional circumstances. I just hate being in pain when I can fix it in my body so easily. Took me about 2 weeks + of eating paleo + exercising before I was back to normal.
  • RllyGudTweetr
    RllyGudTweetr Posts: 2,019 Member
    Without any intended irony, I get migraines roughly every 28 days that simply laugh at most over the counter medicines; acetaminophen might as well be a placebo for me, and I'd need dangerous levels of ibuprofen or aspirin. Light doesn't bother them at all, but the noise from a cat purring - or anything louder - will make my stomach turn. Parts of my face go numb, I see spots, and I get dizziness to go along with the pain and sensitivity to sound.

    I cannot switch to decaf, even if I wanted to, since caffeine holds them off to an extent. I have found, for myself, that ketoprofen - which used to be available over the counter - works if I take 200mg, followed by another 100mg roughly an hour afterwards. I have known other migraine sufferers who got no relief whatsoever from ketoprofen.