Chronic Fatigue

Holy cow! You can walk 4 miles? I've had CFS for 2-ish years and on very good day I can maybe walk a mile. But that's like a once-in-6-months kind of deal. On most days I can only walk about a block or so, if I rest most of the day. I think one of the most important things is keeping each day very consistent. Don't push yourself. Listen to your body. How familiar are you with the top CFS doctors and their current methods? I've been doing Dr. Teitelbaum's regimen (D-Ribose, Acetyl L-carnitine and Co-Enzyme Q-10) for the past year and it's helped a little. Last October I finally got off the wait list for Dr. Montoya at Stanford and have started taking Valcyte & Sulfasalazine (they look at your antibody titers - CFS seems to be a series of viruses that have responded to a change in your immune system. I have CMV and HHV6, but I know that EBV and other viruses can also be culprits). Make sure you're going to a doctor that really specializes in CFS. There are only a few in the US (one in Salt Lake City, one in Michigan, Dr. Montoya at Stanford, etc.) but everybody that I've talked to that has recovered without relapse saw one of these doctors... or had CFS for 20+ years before it suddenly went away.

jenniball91 wrote: »

Holy cow! You can walk 4 miles? I've had CFS for 2-ish years and on very good day I can maybe walk a mile. But that's like a once-in-6-months kind of deal. On most days I can only walk about a block or so, if I rest most of the day. I think one of the most important things is keeping each day very consistent. Don't push yourself. Listen to your body. How familiar are you with the top CFS doctors and their current methods? I've been doing Dr. Teitelbaum's regimen (D-Ribose, Acetyl L-carnitine and Co-Enzyme Q-10) for the past year and it's helped a little. Last October I finally got off the wait list for Dr. Montoya at Stanford and have started taking Valcyte & Sulfasalazine (they look at your antibody titers - CFS seems to be a series of viruses that have responded to a change in your immune system. I have CMV and HHV6, but I know that EBV and other viruses can also be culprits). Make sure you're going to a doctor that really specializes in CFS. There are only a few in the US (one in Salt Lake City, one in Michigan, Dr. Montoya at Stanford, etc.) but everybody that I've talked to that has recovered without relapse saw one of these doctors... or had CFS for 20+ years before it suddenly went away.

It'd be so great, after 20 years; for mine to go away. When I went through my 8 month remission period, I believed that I was cured; so I started looking for work/6 months into my remission. I thank God, that I wasn't able to find a job because just 2 months later, I became housebound; for a 2nd time/for another 2 years. I absolutely hate the false hope, that that remission; had caused me. Therefore I've decided, that I won't seek to work again; unless a remission lasts/at least a year.

Lofteren wrote: »

Physiologically, the only way a person can actually become fatigued faster than usual is if they have a neuromuscular junction disorder or they are deconditioned. This means that cfs is usually the result of psychological factors (I am not saying it doesn't happen, just explaining the mechanism) the most common psychological factor is obviously depression. So if you focus on treating your cfs in a manner that will also treat depression then you may see some success. Good luck to you.

There're 2 causes that I am aware of, it's either depression and/or infection. Timing and/or the desire to do/don't, what one had once had an interest in; determines the cause of it.