Hashimoto's, Gluten free and Frustrated...
worddigger
Posts: 79 Member
Anyone?? Just started gluten free because of my hypothyroid condition and would be happy to commiserate with like minded victims about food choices and symptoms...
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I'm hashimotos and tried the whole gluten free thing for a couple months. Didn't feel any different. went back on gluten and never looked back.
What did make a difference is regulating my medication, and getting in shape.0 -
To galgenstrick
Interesting... Recent blood work shows that my levels are finally getting close to optimal for me and when I eat gluten, I do feel weird, like my body is inflamed or something...but negative for Celiac.
And yes, getting back into shape is a top priority now and we shall see if anything changes with the gluten... Thanks a lot for your feedback...0 -
While the doctors still haven't settled on my diagnosis yet ( they're in between some type of arthritis and lupus along with hormonal imbalances) I have been eating 99% gluten free other than a horrible two weeks back in October, suggested by a nutritionist when I wanted to stop taking migraine meds. I find it really helps with IBS symptoms along with joint swelling so really I figure whether or not they finally figure whats going on, its working for me. Feel free to add me, I cook wheat free (I'd say gluten free but there is contamination in my kitchen) and my diary is open so you can give me a should any time you feel like for a recipe
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worddigger wrote: »Anyone?? Just started gluten free because of my hypothyroid condition and would be happy to commiserate with like minded victims about food choices and symptoms...
My GF has hashi's and it took over a year before she started being able to drop her thyroid meds, once going gluten free. Something to do with the metabolites or antibodies of gluten still hover around in your system for a long time. (I'm sure I'm off on this explanation, but the book she read said something to the effect it can take 1-2 years to reverse the damage from gluten, when you have Hashi's)
Fast forward 4 years now and she's almost off all her meds. She hasn't changed anything else about her diet, other than recently starting to weight lift with me. But she has long been dropping her meds before she ever started working out.
:edit:
Forgot to mention she also cut out all dairy as well, around the same time she went gluten free. Mainly due to stomach issues it was causing.0 -
To maroonmango211:
Hey, thanks so much for your reply and for sharing with me. I can relate to how you feel... I am going to stick with it because I do feel weird when I eat gluten so... I will definitely add you (when I figure out how, ha). I love to cook and would be happy to throw things back and forth, thanks!
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To vinegar_husbands:
Yes, that is possible that only one test was run for the gluten...thank you for pointing that out, I will check into it, definitely...0 -
To Negative_X:
Thanks so much for the reference, I have read similar things regarding gluten. I have decided to give it up, Celiac or no Celiac. What I read that was interesting was that the structure of gluten is identical to the thyroid, so the theory is the body views the gluten as an invader, attacks, hence the autoimmune response...crazy.
Happy to hear your girlfriend is doing so well, that is awesome! Thanks again for sharing that with me...0 -
worddigger wrote: »Anyone?? Just started gluten free because of my hypothyroid condition and would be happy to commiserate with like minded victims about food choices and symptoms...
Hashimoto's gets treated with religiously taking your meds and keeping up with your endocrinologist appointments. Everything else you are going to read on the internet, and every diet and supplement that is supposed to help, they are also just snake oil. These days, gluten free is the magic diet that will cure everything. If you are negative for celiac, eating or not eating gluten will change nothing. You might feel better, the mind is a really powerful thing, and the placebo effect is very real.
And absolutely do not get off your meds and do not self-experiment. You will not feel the damage that is happening, until it is time to remove your thryroid, which can take several years to happen.0 -
Everyone needs to do what is best for THEIR body. For me, I've had issues with several things and gluten/wheat is one of them. I now eat GF, DF, Corn free & Soy free & feel SO much better, I also have Oral Allergy Syndrome, so most fruits & veggies have to be cooked because of pollen. I eat a lot of rice, stir fry using Bragg's Amino Acids, just meat, starch & veggies, eggs, I have gotten into some GF baking, my daughter is GF as well and dh doesn't mind it, he's got intolerances of his own and has family history of allergies.0
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To aggilikik:
Yes, thanks so much... I am definitely sticking with the meds and doctors appointments...0 -
Kristinemomof3:
Thanks so much for sharing with me... I agree with you, I do really notice a difference when I eat the gluten... Like the girl who turned into a blueberry in Willy Wonka, haha...0 -
There are a lot of things being done with gluten free foods. More and more chefs are experimenting with good gluten free breads and pizza crusts and things like that. I am a chef and my brother is gluten intolerant so I have to make special things for him when the families get together for a meal.0
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I was diagnosed with Celiacs about a year and a half ago as well as Crohn's disease- so food is double edged sword at times! You'll find that you will develop a "predictable" eating pattern in terms of food choices!0
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I am not celiac, but tested positive for a wheat allergy. I avoid all gluten because it is easier. Wheat is a huge migraine trigger for me so it really helps to avoid it.
As for getting into shape.....
I would love some words of encouragement from anyone who is hypo-thyroid/ low cortisol on how to do this. I am always thinking I feel great. I go back to what would be a normal workout for me and then end up like a ragdoll for several days after.
I am finding to my dismay that these dis-eases are not just a question of "will power." We need a strategy to out-smart them. My latest experiment will be restorative/ yin yoga and a low carb vegetarian diet.
We shall see.....0 -
I also want to add that if you do like to bake, Bob's Red Mill has some wonderful products that take the place of flour. My favorite is the 1 to 1 gf blend. It's pricey baking gf, but still cheaper than buying premade gf items.0
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Bob's 1:1 is AMAAAAZING!!!!0
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Pillsbury makes a pretty good gluten free flour too. It is a green bag I believe.0
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@Jeneba About exercise and low thyroid: I find that cardio that's easy on the joints (water based exercises) along with weight resistance exercises (less weight, more reps) helps me feel best...0
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Thanks guys for all your feedback! Good stuff to think about, for sure. Can't seem to figure out how to "tag" each name yet, sorry...0
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@diesel073 Thanks so much for sharing with me... Yes, it is challenging but with the effort in listening to our bodies, it does make things easier, for sure...0
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@mweckler Thank you for the suggestions, I appreciate it! I love to cook myself, so I will definitely begin to try things out...0
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@Negative_X @aggelikik @Kristinemomof3
@galgenstrick @vinegar_husbands @maroonmango211
I replied to your comments above...thank you all!
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Gluten free us not necessarily lower calorie or healthier and not needed if you dont have celiac or gluten insensitivity
I stay away from low carb diets they make brain fog worse in my case and i stay away from goitrogens like cabbage kale brussels sprouts but otherwise eat normally0 -
@motterotter
I agree with you... Definitely have to factor in the calorie and nutritional aspects for sure... Do you find cooking the goitrogens helps any?0 -
I would eat every day if i could cooking is said to destroy the goitrogen but i will have cauliflower or cabbage once every week or so will not completely cut them out of my diet they have good stuff
Theres so much rubbish out there on the internet about diets and hashimoto i really dont know0 -
@motterotter
You can say that again... It's just really doing what works...Balance...and taking thyroid meds (Synthroid works best for me) is a must for me. Thanks, again!0 -
Life without coleslaw is hard0
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@motterotter Oh, yeah, coleslaw is good.. Do those vegetables give you symptoms or affect your Bloodwork when you eat them? I was just reading an article by a Thyroid Doctor which said that, unless you have an issue with iodine and your thyroid, in moderation, they are ok...better cooked... Food for thought...;):)0
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