Calling all PCOS sisters!!

krisrpaz
krisrpaz Posts: 263 Member
edited October 4 in Introduce Yourself
Hi!

I have been logging for 3 weeks and would like to build a support group of women who have PCOS and know the struggles involved in losing weight with it. If you fall into this category, please add me or message me. I hope we can compare stories, struggles and achievements. :happy:
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Replies

  • rbryntes
    rbryntes Posts: 710 Member
    there are a lot of us with PCOS on here, you may also want to do a search on the forums on PCOS and see how many of us pop up out of the woodwork.
  • godblessourhome
    godblessourhome Posts: 3,892 Member
    another pcos-er here. feel free to add me.
  • jmorgan66661
    jmorgan66661 Posts: 4 Member
    Hi everyone i am fairly new to this site..and i love it..I have had pcos for about 5 years and i have tried everything to lose weight. the only thing that seems to work is cutting calories..i have been doing this for about 4 months and only lost 8 pounds. i recently found out that i need to stay between 1300 - 1400 for the weight to come off..it has been very diffuit but i will get there. does anyone have any sugesstions for low cal snacks..i am a big snacker...
  • sandy2006
    sandy2006 Posts: 483 Member
    I have pcos, you can add me!
  • krisrpaz
    krisrpaz Posts: 263 Member
    Ok, let's narrow it down some.

    I'm almost 26. I was diagnosed 2 years ago.
    I need to lose 70-90 pounds.
    I'm not interested in having children.
    I suck at dieting but I love to Zumba.

    Sound like anyone else out there?
  • abbysmommy1
    abbysmommy1 Posts: 48 Member
    Hi all - Another PCOS sister here. I have had symptoms for YEARS, but was just diagnosed in June. We are currently ttc#2. I'm 26 and need to lose about 90 pounds...

    Feel free to add me as a friend if you would like. :) Hopefully we can all support eachother, both with our weight loss goals and our struggles with PCOS!
  • Another one with PCOS!!

    Feel free to add me :)
  • Another PCOS-er here!
  • another one here
  • hey im new to here what does PCOS stand for??? feel free to add me
  • krisrpaz
    krisrpaz Posts: 263 Member
    Polycystic ovary syndrome (PCOS)

    Basically, we have a hormone imbalance that causes all sorts of lovely disorders like no period, really bad periods, cysts, infertility, acne, chin hair, thinning hair, insulin resistance...We could talk about this all day :)
  • syiyi
    syiyi Posts: 341 Member
    PCOS here
  • oh wow... i feel for you all,
  • krisrpaz
    krisrpaz Posts: 263 Member
    It is actually quite common. I have read 1 in 4 women have some form of it. Somewhere else I read 10% of women. You know what they say about statistics...
  • syiyi
    syiyi Posts: 341 Member
    Polycystic ovary syndrome (PCOS)

    Basically, we have a hormone imbalance that causes all sorts of lovely disorders like no period, really bad periods, cysts, infertility, acne, chin hair, thinning hair, insulin resistance...We could talk about this all day :)

    tear tear :*( I love children so much.. and just the thought of not having any makes me so sad!!!!
  • krisrpaz
    krisrpaz Posts: 263 Member
    Whenever my crazy hormones kick in and I think I want a baby, I babysit. I got to watch my friend's 4 year old grandson yesterday for 2 hours. He mentally exhausted me from keeping him entertained...I'm cured. At least for this month :)
  • syiyi
    syiyi Posts: 341 Member
    Whenever my crazy hormones kick in and I think I want a baby, I babysit. I got to watch my friend's 4 year old grandson yesterday for 2 hours. He mentally exhausted me from keeping him entertained...I'm cured. At least for this month :)


    lol!!! i do the same.. I baby sit for a while.. jejej.
  • Another with PCOS. I am 32 and was diagnosed 5 or 6 years ago. I think I am more on the extreme end of things. I have all the symptoms. Just 2 years ago I had my tubes tied and ablation done because of not having periods while the lining would still build up and it was a huge risk for cancer. I also take metformin for the insulin resistance. I have tried dieting off and on for years! I even joined curves for a little while. While it did help a lot and I lost 30 lbs...I lost my workout partner and quit going. I am now back up those 30lbs plus some.

    Feel free to add me. :)
  • ohh really i didnt know it ws so common, can you get tested for it? can you get it after you have had children or is it always there? sorry if my questions are a little intrusive im just curious to know
  • hyenagirl
    hyenagirl Posts: 206 Member
    I'm a PCOS gal, I was diagnosed when I was 11 (had super duper heavy clotty periods that would last for months). I started my periods when I was 9. I've found that low carb works best for me to lose weight. I'll also loose weight in spurts. I'm maintain for 3-4 weeks, then lose 5 lbs in 3 days all of the sudden, then maintain. Sometimes I'll gain a lb or 2 back even, but as long as I net a lb or 2 lost every month I'm happy. I don't do low carb ALL the time, I have cheat days 1-2 times a week to keep my metabolism guessing. I don't look at it as a bad thing, just an extra challenge to conquer in order to reach my weight-loss goal.

    I also plan to not have children. I still pretty much have acne, but the low-carb REALLY helps to keep it more manageable, and the hair on my head is very thin. Every time I wash my hair, it looks like I shaved a poodle (this started when I was 17). I'm very surprised I didn't go bald years ago.
  • lilsweetslol
    lilsweetslol Posts: 68 Member
    Hey ladies! Love to know that there are so many of us that are here to support eachother. I was diagnosed well over a yearago with pcos after trying to conceive for 6 months. No luck...then my period went missing for 8 months, hair falls out a lot and hair inmale places. So frustrating. Not to mention the extra weight I cannot lose.. I've gained 50 pounds from it..it is a constant struggle daily. I started metformin about 4 months ago and period started right on track. Weight is sllllooowwwlllly coming off.. its working with calroies around 1200 to 1300 a day. Also making sure to keep carbs below 70grams per day.. feel free to add and good luck and love to you all!
  • Hi! I'm 37 and was just diagnosed with PCOS earlier this month and although I am annoyed that I have it, I am also relieved to find out why I have been having some of the difficulties I've had in the last 4-5 years. I noticed a steady weight gain over the past few years and it has been very difficult to take off... I will be good for weeks and slowly start to lose weight but if I slip up, even just a day I gain it back almost instantly. I also am working on cutting out the sugar, white flour & all processed food from my diet. We have been TTC for almost a year and now I feel such an urgency getting this under control because I want A) get pregnant and B) have a healthy baby & a safe pregnancy. I would love to be in your group!
  • krisrpaz
    krisrpaz Posts: 263 Member
    It really helps psychologically to know that there are others out there going through the exact same things! Doctors always said, "Just eat healthy and exercise." I did. Guess what? Nothing happened! Then I would get depressed and gain more.

    To make matters worse, the rest of my family is "normal". My parents are not overweight. My younger brother and sister are very thin and muscular...Like surfer bodies. So I really felt like the black sheep of the family, especially in family photos. It's like normal, normal, normal, normal, random fat girl. It is awkward when I meet one of my brother's friends because he says, "This is my sister, Kristen." And his friend looks at me, then him and says, "You have another sister?" Yeah.......the OTHER sister.

    So one of my motivations is to go to the beach with my brother and sister and take a picture and "fit in".

    Another is to buy a bra from Victoria's Secret. I hate walking in stores like that because you know those skinny girls are thinking, "What in the heck are you doing here? I think you need to go to Lane Bryant..."

    Any other insecurities that you have replaced with motivations? :)
  • jmhigg1020
    jmhigg1020 Posts: 51 Member
    I'm with you here! I'm 32, have had symptoms for about 10 years but was just diagnosed in 12/10. I have two great kids and two tied tubes now! Dieting and exercise haven't worked for me (I worked with a personal trainer for a long time and was really watching what I was eating, didn't lose weight...stopped training, didn't really gain weight either). I have about 90 pounds to lose. I am on the Insulite system (don't take all of it all of the time because it's so many pills to fit in), daily vitamins, Vitamin D, folic acid, fish oil, and I take Metformin (2000 mg) and Spironolactone (50 mg). I also drink soy milk and drink tea whenever I can (I work full time and have two little monkeys to wrangle, so I don't always do a great job with this). I've started seeing changes in the crappy symptoms, and I'm trying to revamp my diet again and get back into my exercise routine to give it another go since my body seems to be doing more of what it is supposed to be doing.
  • krisrpaz
    krisrpaz Posts: 263 Member
    There isn't a blood test or anything. It really is diagnosed after ruling out other diseases that mimic it. One test is an ultrasound of the ovaries. They will look like they have pearls on them from all the cysts. However, not everyone with PCOS has cysts. Another test is hormone levels. Most women with PCOS have too much testosterone, too much estrogen and/or too little progesterone.
  • jmhigg1020
    jmhigg1020 Posts: 51 Member
    Yep - every last thing you said is right on! I have 2 sisters that are a size 2 and a size 6. I'm the middle daughter, the shortest and the fattest!! I will say that I have curves, and neither of my sisters do. I don't want to look like them, I just want to look like a healthier version of me. That's the only positive thing I can say about that!
  • jmhigg1020
    jmhigg1020 Posts: 51 Member
    I'm currently reading an amazing book - The PCOS Diet Plan by Hillary Wright. It spends a lot of time talking about body chemistry, how our bodies process things differently from typical systems, and how different kinds of PCOS differ. I haven't even gotten into the actual diet part yet (on Chapter 4 so far), and it's been very helpful. I've done so much research to be my own best advocate, and this book really puts it all into perspective nicely.
  • BPayton27
    BPayton27 Posts: 626 Member
    Morning ladies!

    PCOS girl here, too. I was recently diagnosed with PCOS (we've suspected for quite a while), an under active thyroid and diabetes. I found this site/app yesterday and have just started logging. Feel free to add me. There's strength in numbers, right?
  • alexroet
    alexroet Posts: 65 Member
    My sister, who has always been skinny and fit, found out she had PCOS when she was having trouble getting pregnant. when I heard about it, I thought "omg I totally have that", so I got worked up, and I don't. Which is great, but how weird. I have all the symptoms, and DON'T have it, but she has none of the sx and does.
  • kimletton11
    kimletton11 Posts: 72 Member
    Hey Ya'll! Feel free to add me! I am in the process of trying to figure out what's going on with me, going tomorrow for more bloodwork and tests. My dr thinks I have PCOS, I have most of the symptoms. Right now, I'm on a hormone pill called Provera to try to induce my period since I haven't had one in almost 6 months. It is making me sick, moody, mega depressed and miserable! Have any of ya'll ever taken it?
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