Women with PCOS!

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  • michellebd1980
    michellebd1980 Posts: 169
    PCOS here. Dx'd 6 years ago, and was able to overcome it by God's grace and with the help of 100mg's of Clomid...I am now the Mommy to 2 beautiful 1 year old twin boys!


    Congratulations on your twins!
  • Wherethebleepisourstork
    Wherethebleepisourstork Posts: 62
    PCOSer here as well! I have lowered my caloric intake, and have started doing some exercising at least 30 minutes everyday!

    Feel free to add me... I'd love some support from fellow PCOS ladies! I was just diagnosed last Friday.
  • Devon_Bates
    Devon_Bates Posts: 17 Member
    Hey there all. I am Devon. I was diagnosed with PCOS at 19 but I had it from the time I was 13. I have not many of the symptoms now since I had my stillborn son. I used to have all the symptoms but now I don't have many. I have regular periods every month and my hormones seem to be better except after my period then it seems I am a little emotional. I have started talking a one a day multivitamin, 2 cinnamon pills (just increased it today) and a fish oil pill (started today since I couldn't find them before). I have started my journey again Jan 9th of this yr and have lost plenty of inches and not much weight. I kept of 23 lbs from my pregnancy and I am starting to feel good. I don't allow myself to get as stressed but since my son died I have been mourning so I allow myself some bad/lazy days. I try to work out 5 or so days a week. I try to eat healthy but with being around my family and having a low income it is a little harder to be healthy but I work with what I have. Cysters unite!
  • Frappuzzino
    Frappuzzino Posts: 342 Member
    PCOS here... and it sucks! Wish I could tell you some great tips, but all I can really say that has ever worked for me is workout out for several hours a day to see any results : ( It's horrible that we have to work so much harder at it for such little gain, but what can you do?
    The only things I have heard that may help are the following:

    taking 1/2 tsp of cinnamon per day, to regulate blood sugar ( some people say it has helped them lose weight, and in studies has proven to be more effective than metformin)

    taking chromium supplements, also helps to regulate blood sugar.

    Vitex.. helps to balance hormones, which aids weight loss. However if you are on birth control, as I am, my doctor advised not to take until off the pill.

    Another thing my Doctor once had me on was Spironolactone, which I think is a blood pressure medication, but has been proven effective in helping to treat some symptoms of PCOS. He told me I would lose weight on it, however I can't remember if I really did or not. Anyway here is an article on it :
    http://women.webmd.com/spironolactone-for-polycystic-ovary-syndrome-pcos

    I have also read some people have had a lot of success with the Insulin Resistance Diet, if you can follow it. But for me, it's next to impossible when I am cooking meals for my husband and step-kids as well. I just try to limit my carbs as much as I can without counting.

    Anyway, feel free to add me as a friend if you would like :)

    You can take cinnamon + chromium together in a capsule form to save you the trouble! :) I've been taking 1,000mg daily for a year and a half now and I noticed a difference within a week of taking it. I was diagnosed in 2009 and was prescribed Metformin and BC, but I refuse to take any conventional medication. Everything can be fixed naturally!

    II also took Vitex before I started eating better an exercising. (I don't take BC.) It did help my cycle regulate, but I did experience pre-period symptoms (bloating, discomfort, heightened anxiety) whenever I took it. Also, you should not take Vitex every day. It won't harm you, but there is no need to take it often.

    I think Spirolactone is prescribed to help with the heightened testosterone levels. Some girls experience thinning hair and thick body hair, which I think Spirolactone is supposed to help treat but I'm not too sure.

    A low GI diet is pretty essential to lose weight with PCOS too, though I much prefer paleo overall! :)
  • ccb1030
    ccb1030 Posts: 84 Member
    Fun times. 2000mg of metformin, and 50mg of clomid got me baby #1. Baby #2 we got on a lower dose of metformin and no clomid, but I had dropped about 10lbs. I don't know if that was just luck, but it took us 1.5yrs to conceive #1 and a mere 2 months to conceive #2. Now that I've dropped even more weight, my cycles are more regular than when I was on BCP (not on them anymore). Good luck. PCOS sucks! Anyone, please feel free to add me :)

    Oh and as for spironolactone, not sure about it's use in PCOS, but at the hospital we use it for patients with high blood pressure (it's a diuretic) that lose too much potassium on lasix.
  • pinkwizz
    pinkwizz Posts: 29 Member
    Hi Guys,

    PCOS sufferer here, all the usual symptoms and working out almost daily, eating 1200 cals per day but weight loss is very slow.

    I am glad im not the only one. would love some tips on weight loss as Im getting discouraged!

    Feel Free To Add Me!

    x x x x
  • lexgem
    lexgem Posts: 163
    I have PCOS and one thing I noticed is that by eating better quality food, in the right quantities, and exercising, getting enough rest etc. my cycles have actually regulated and they are nearly NORMAL. I know it won't necessarily work that way for everyone, but after a few months of this healthy lifestyle I am seeing some real progress. I didn't have much weight to lose, I'm working on the last 10 pounds at this point, so I wasn't expecting the lifestyle change to help with PCOS, but it did :)
  • Moviedust
    Moviedust Posts: 110
    I was diagnosed in September, 2011 because we are having trouble getting pregnant even though we would really like to have a baby. I have the acne unfortunately and have since my teens. I also gained about 65lbs or so after high school (I was always a super skinny child). Not that I want to go back to being that skinny because I was sick all the time, but I probably felt my best around 150 lbs. I was at 191.8 lbs at my highest and about 2-3 years ago I lost about 20 lbs but then gained it back because my doctor told me it would be almost impossible to lose more on the meds I was on (not for PCOS, we didn't know then). Well I started working out and eating right again and I couldn't lose. When they diagnosed me in September they put me on metformin and since then I have lost about 24lbs and I am hoping to lose the last 20lbs so I can get pregnant soon, and as naturally as possible. If anyone wants to add me feel free, I could use all the support I can get as well and it's nice to have people to check in with :smile:
  • Jani4Joy
    Jani4Joy Posts: 3

    Another thing my Doctor once had me on was Spironolactone, which I think is a blood pressure medication, but has been proven effective in helping to treat some symptoms of PCOS. He told me I would lose weight on it, however I can't remember if I really did or not. Anyway here is an article on it :
    http://women.webmd.com/spironolactone-for-polycystic-ovary-syndrome-pcos

    Not sure if it's different here in the UK, but Spiro is prescribed here to reduce hair growth and is very effective. You need to be careful on it though since if you fall pregnant on it you have to terminate the pregnancy. I think you have to be off it for about a year ideally if you want to concieve.

    If you want more info and support I help with a PCOS charity called Verity and we have forums for support and conferences and lots of info :) Fabulous lot of ladies with all matter of experience, advice and no embarrassment!! :)


    Not sure where you got your info but I have HAIR-AN syndrome which is similar to PCOS and was on spiro when I got pregnant. They did immediately take me off of it but it didn't affect my pregnancy at all and I took it for the first 6 weeks. Double check with your doctor as that was 5 years ago.
  • whitehandlady
    whitehandlady Posts: 459 Member
    me too!!!
  • superbeffie
    superbeffie Posts: 93 Member
    I have it, too! I am unable to conceive again, but I'm hoping that losing some weight will enable me to get pregnant this time without fertility treatments!

    I have found that being careful with carbs is very important. That and my doctor said that our bodies don't burn calories the same way that others do so be very careful in eating exercise calories. The numbers shown on machines or on here don't accurately represent our burns.
  • laceyvl12
    laceyvl12 Posts: 8
    I'm glad i found this group! I had an ultrasound in 2006 that was suspicious for PCOS. It took 14 months to get pregnant with my first child. I did not have a problem getting pregnant with my second. After that I didn't really think too much about having PCOS until a few months ago. I was looking up reasons why my acne was flaring up and my hair was thinning. I have most of the symptoms of PCOS. I'm currently on birth control and my Dr. prescribed spirinolactone last week. I'm going to start it tomorrow and crossing my fingers I don't have any side effects! I've had a hard time losing weight the last few months but in the past it's came of easily once I really try. I've been working out about 5 times per week and cut down on carbs and that seems to be helping.
  • Always0614
    Always0614 Posts: 1
    Hi guys. I am a fellow PCOSer here. I've been diagnosed since 2010. My journey has had many ups and downs. My husband and I still don't have a little one yet, but we do have each other. I'd love to be part of this community. The unity here makes me feel like someone understands my cries and won't judge me or think of me as being weak or incapable!!!!!! I'm the most confident person that you'll ever meet but PCOS is the one identity in my life that makes me want to hide my face and fall to defeat. It's my nerver ending struggle!!!!!!
  • maryann0518
    maryann0518 Posts: 3 Member
    I didn't always have PCOS. I was pear shaped and slim in high school, and had three babies with no trouble. After my third son, I got the Merina IUD. I developed all kinds of issues, and weird symptoms which lead me to get some answers. I was soon diagnosed with PCOS. I don't know if it developed because of the weight gain from each pregnancy or the Mirena IUD (which I have since had removed). I am hoping that losing weight will somehow normalize my body and rid me of this disorder. I'd love some PCOS friends since we all know what a struggle the weight loss is!
  • ShylaBrown22
    ShylaBrown22 Posts: 4
    I got diagnosed with pcos when i was 19 and im 26 now, it was a rough road but i finally got pregnant! i now have a almost 6 month old little boy, his name is COlton and he is amazing!!! Now im having problems losing weight! ugh!! Help!

    Please add me as a friend! I could use advice and Encouragement!
  • BabyGrl726
    BabyGrl726 Posts: 102 Member
    Im with you on the PCOS. I refuse to do any meds. I was at about 220 back in 2002-2008, droppd weight and got down to 170. I became pregnant and after pregnancy got down to 160. My daugther is three now. I had some stressful events happen in my life and gained my weight back. The acne is horrible. My face is all scarred with pock marks. But for me, the diet and excercise has pretty much kept PCOS under control. Looking to lose again and definitely looking for "support/encouragement/advice/friendship."


    feel free to add me

    ~RJ
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