Do you have a physical disability that

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  • AussieGem
    AussieGem Posts: 96 Member
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    Yes, but mine is a bit strange as in most people have no idea how it prevents me from exercising until I explain it! I have proliferative diabetic retinopathy.

    This means the blood vessels in my retinas hemorrhage. I've had dozens of laser treatments for it (can't get any more - too much scar tissue) and a surgery on my left eye. I have not yet had surgery on my right eye, and am hoping to avoid that. However, any form of weight-bearing exercise is too much strain and I pop blood vessels. Same with hard running, etc. When this happens I can't see out of that eye for a week or more, until the blood clears. It is possible to lose my sight permanently. In fact, it's a leading cause of blindness in America.

    As of right now I can do some things, like walking, or light biking, but that's about it.

    As I often tell others - I'd rather be a little chunky or flabby and be able to see, than be fit as hell but be permanently blind!

    OMG ... I have a genetic eye condition that puts me into a similar situation as you. My blood vessels in my eyes are very weak and they hemorrhage quite a bit. It also excretes scar tissue which detaches my retina. I fully understand what you are going through and the limitations caused by this.

    Good Work .. Keep on doing what you are doing!!
  • emfilomena
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    I deal with gastroparesis, a very debilitating digestive disorder. It means paralysis of the stomach, and to break it down even further- my body does not digest at a normal rate. It's relatively severe and my main symptoms are nausea, vomiting, bloating, and inability to pass bowel movements on a normal basis (only once or twice a week!). It causes severe pain, I'm usually very dehydrated, malnourished, etc., It's gotten to the point where I even have heart problems.

    I haven't been able to exercise besides yoga for the past week due to the severity of it. I'm looking into the possibility of being admitted to a hospital and will likely be going for fluids on Monday or Tuesday in the ER. I see a new specialist on the 1st, thank goodness.

    It causes many complications regarding receiving proper nutrients and my body absorbing and processing those nutrients, along with getting in enough exercise. I'm only 17, and have been dealing with symptoms for years, but it only got serious and diagnosed when I was 16. It's been hard trying to adjust to a "normal" life when I've only been to school for 4 days out of the month of February. I'm trying to get my life back, one piece at a time..
  • brighteyesxluv
    brighteyesxluv Posts: 334 Member
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    I have anemia, scoliosis, weak arteries (i have to drink a lot more water than most people), i get cysts in my fallopian tubes.
  • eyewonder2
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    Hi! I'm very frustrated, and know exactly how you feel. I have good days and some fair days, but never a excellent day. I have a slip disc in my back and bad knees with arthritis. I wished I could walk the 1/2 block you do. My every step is pain along with every moment I stand. Like they say there is always someone worst off than you . I have to remind myself of that when I start complaining. The one thing we have to remember is to keep it moving.
  • jenaissance
    jenaissance Posts: 302 Member
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    tendonitis in my wrists/ankles/knees, rotator cuff injury that never healed properly, herniated L5/S1 disks causing chronic back pain and sciatica, which in turn has caused nerve damage that rendered my left foot and the back of my left leg completely numb. I feel ancient, moaning and groaning just to get out of bed every morning (If I lie down more than 6 hours there is so much pain I'm almost paralyzed), but I try and remain as active as possible for my 3 kids (ages 7, 5 and 4!). I'm so glad to see I'm not alone in this :) I certainly couldn't do the 30 day shred etc., without causing myself even more damage.
  • Kalynx
    Kalynx Posts: 707 Member
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    I'm 38 with congenative heart failure because of my obesity, which has caused kidney failure. Up until a month ago I thought I just had "heart problems" and yeah yeah yeah I should lay off the salt, I'd nod my head at the heart dr I've been seeing, as I had been for a few years, and promise to do better and never do it. I'm so ashamed I let my weight get so out of control, and gosh I chose to live so unhappily for so many years. I was happy, but I havent been living.

    When he sent me to the kidney dr. it was a wake up call for sure!! My kidneys were functioning at 12 % He put me on a low sodium, low potassium diet, but if it doesnt improve in a week we are going to discuss dialysis. Well if thats not motivation I dont know what is. I was terified. I've never heard good long term things re: dialysis and did not want to go down that road. I drove home in a daze from his office wondering who would take care of my cat once I was dead. lol

    I immediately changed my diet, I keep the sodium down to under 2000 per day, same with potassium. The potassium thing isnt so hard, the sodium thing is difficult but its becoming a habit and much easier. Its not much fun, but as my brother told me, if I enjoy living, I will make it fun. LOL

    I'm still afraid to do much as far as exercising, my heart still races when I walk more than 75 feet. Sometimes I get light headed and my ears fill with pressure as if decending on an airplane and I have to sit and wait for it to stop. Every week I can tell its getting easier and easier to walk around, I have more endurance doing things around the house, etc. Hopefully in a month or so I can actually start walking for exercise taking a few more steps every day. Until I get clearance from the heart Dr though, that dizzy, light headed, head pounding pressure thing scares me too much.

    Oh, and after 1 week on a low sodium diet my kidney function improved from 12% to 29.6%!! Next blood test is in 5 weeks and I'm hoping for more good news. Since my heart dr visit that started this all on Jan 24th, I'm down 27 lbs...maybe more - I'll weigh in tomorrow or the next day.

    MFP has been wonderful to log my food - not really counting calories but the low sodium/no processed food thing sure makes you eat healthy, so calories arent a problem. There are so many nice people and wonderful recipe ideas on here!! Good luck to everyone.
  • gazz777au
    gazz777au Posts: 157 Member
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    Joint Hypermobility, Depression, Anxiety, Poor sleep, Very Stressful Job.

    Chronic fatigue and pain was just starting to set in.

    I did not realise a lot of this was present because ignorance and long-term obesity hid symptoms from me.

    Last year I lost about 80lb on my own bat when I first started to sort out the depression.

    Asthma dealt with to a certain point (I may have become dependant on the meds, but I have had my inhaler only a few times in the last few months).

    Depression reared it's ugly head almost beyond my control recently - in a moment of clouded judgement I deleted my old MFP account - gazz777.

    Well, the Gazz has come back as gazz777au and I have returned to my faith and fighting this battle with help now.

    I walk in the pool when I cant walk on land.

    I was trying Body Balance and ignored the over-balancing (practice makes better, if not perfect), pick myself up, laugh and move forward.

    I move and stretch and strengthen what I can.

    Going to take some pain killers and re-start my podiatry and physio exercises now and I would really welcome friends who are relating to all this.

    Happy to cheer you on too !

    Gazz
  • gazz777au
    gazz777au Posts: 157 Member
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    The inspiration for me to not give up on life or moving, etc....

    http://www.youtube.com/watch?v=H8ZuKF3dxCY
  • Caileadair
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    You are all inspirations to me!
    I went to the doctor and spoke with her regarding the amount of calories I should be having every day and during our discussion she brought up that she felt that we needed to have a more aggressive pain management program. None of my physical issues are "fixable".....it's a matter of finding ways to cope on a daily basis,
    I agreed to her plan and started the new meds 4 days ago. The side effects have been a tad difficult however today it was a bit better and I walked for about 10 minutes outside on the pavement. I feel very thankful I can do that today.
  • emfilomena
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    Great to hear you were able to get a little fresh air today, Caileadair! I hope that your new medication helps with the coping of your pain. My mom has dealt with chronic pain (symptoms of MS, besides lesions, therefore she is undiagnosed) for 6 years now following her hysterectomy and struggles on a day to day basis coping with her pain. I have seen first-hand how difficult it can be to merely do normal household chores and such.
  • Maryee71
    Maryee71 Posts: 434 Member
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    bump
  • BrienJD
    BrienJD Posts: 541 Member
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    I second that wholeheartedly.


    Yes, but mine is a bit strange as in most people have no idea how it prevents me from exercising until I explain it! I have proliferative diabetic retinopathy.

    This means the blood vessels in my retinas hemorrhage. I've had dozens of laser treatments for it (can't get any more - too much scar tissue) and a surgery on my left eye. I have not yet had surgery on my right eye, and am hoping to avoid that. However, any form of weight-bearing exercise is too much strain and I pop blood vessels. Same with hard running, etc. When this happens I can't see out of that eye for a week or more, until the blood clears. It is possible to lose my sight permanently. In fact, it's a leading cause of blindness in America.

    As of right now I can do some things, like walking, or light biking, but that's about it.

    As I often tell others - I'd rather be a little chunky or flabby and be able to see, than be fit as hell but be permanently blind!
  • imakimm
    imakimm Posts: 839
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    I have a rare Neurological condition. It was really hard for me in the beginning to exercise because I was always getting dizzy and nauseous and had severe headaches. The trainer I had wouldn't train me anymore without a doctors note and my doctors wouldn't clear me :( Things are slowly getting better. It's sad that so many others are dealing with disabilities. I hope everyone has a nice pain free day.
  • Caileadair
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    The new medication is a bit scary but I am grateful I have a physician that understands that quality of life is a major consideration for me and will prescribe what she feels will work for me.
    Thanks :)
  • YennaBean
    YennaBean Posts: 77 Member
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    I have heart palpitations and PVC's. Apparently I'm the craziest case my cardiologist has ever seen, because mine are very, very frequent. He told me that I can walk, and do mild stuff, but he doesn't think I should 'stress' my heart with running, jogging, busting my a** at the gym.... I'm actually supposed to be on beta blockers right now, but I'm afraid of the side effects. My cardiologist believes my case is strongly attached to years or stress and anxiety, and my depression. (Yes, it is true, depression really does 'hurt' like they say in the commercials. It effects your body in all kinds of ways) So right now he wants me to try and avoid stressful situtations since I'm anxiety prone. Not to mention these palpitations get scary sometimes to the point where I don't even want to move... it's like a panic attack that never goes away.
  • YennaBean
    YennaBean Posts: 77 Member
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    I forgot to add why he believe it's all in my mind, I've had 2 echos (basically an ultrasound) of my heart and it's physically normal. Apparently "a heart having electrical misfires is pretty normal.." Sigh.
  • nemsmom
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    I forgot to add why he believe it's all in my mind, I've had 2 echos (basically an ultrasound) of my heart and it's physically normal. Apparently "a heart having electrical misfires is pretty normal.." Sigh.


    Urggg! I can't stand the "it's all in your head" attitude so many doctors have. Have you tried a second opinion if possible? I hope you find some way to help. I'm on beta blockers for Postural Orthostatic Thacycardia Syndrome and have been for almost four years. I don't believe I have any side effects from it. (Not that I could really tell, too many other symptoms to know)

    I also have MS (doctor is thinking Secondary Progressive but doesn't want to put that in my charts) and HypoKalemic Periodic Paralysis. The PP is aggravated by rest after unusual activity so working out can be difficult from that. Then there's all the pain from MS that is definitely worse after I exercise, too many times when all I can do is curl up in the fetal position and cry.

    I find I can push myself for a few days to really try and exercise before it all comes crashing down again and I just can't seem to push anymore. I need to learn moderation (for food and exercise) but I want so bad to get in shape I end up trying to push too hard!

    I'm sorry you are all in this same position but glad we have all found each other for support!
  • bailamulata
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    I am a 39yr old female with several medical conditions: early onset of Parkinson's disease, gastroparesis, fibromyalgia, central sleep apnea, myoclonic seizures, chronic migraines, herniated L4/L5, S2, carpal tunnel syndrome, hiatal hernia, REM disorder, depression, anxiety... and a couple of others that I seem to just forget... just like others posted on this thread... I try not to complain much because I know there are others with so much more on their plates... Iike those with sick children... my heart goes out to all of you that have posted... I simply take it one day at a time and I thank the Lord for every day he gives me... God bless all of you..
  • maikastar
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    Mine are a combination...as a baby, I was born without any hip sockets. One grew in later, but my left didn't and that meant major orthopaedic surgery to create one for me using one of my ribs, which meant that it continued to grow with me. In and of itself it's not a problem, but now, 30+ years on, it's slightly arthritic. Nothing that can't be controlled, but enough that it's niggly. Of course, getting weight off will help that.

    In combination with that, I have a lax ligament issue, that due to it not being picked up, lead to a combination of sporting injuries that means that I have to be careful, otherwise I will knock myself out of commission very easily - ankle and knee injuries caused by hockey and netball have left me with joints that while healed, will never be as strong as they can be. Again, less weight on these joints can only be helpful.

    Finally, I have mild to moderate agorophobia and social phobia/anxiety, which can make getting out tricky. I get around that by long walks with my dog - she'll always protect me, though because she's gorgeous and incredibly friendly, that can lead to being approached by people, which on a bad day can be enough to send me home before I even start, which isn't great. For the bad days though, my daughter's Wii and a combination of any of the Just Dance games, and the Fit board come to my rescue - the Just Dance is brilliant for raising a sweat, and the Fit Board means I can work on general flexibility etc without having to leave the house.
  • MichelleV1990
    MichelleV1990 Posts: 806 Member
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    I have Charcot Marie Tooth disease, which affects the peripheral nerves in my legs and arms. The myelin sheath that covers the nerves is disintegrating, which interrupts the message to the brain and causes my muscles to atrophy. Thank the good Lord, it's a slowly progressive disease, but I have to wear foot braces because the muscles which hold up my feet are no longer functional. My hands are weak and no longer work to full capacity either. I can't change my own necklaces, need help changing my pierced earrings, and have great difficulty picking coins up from a flat surface. I can no longer run or stand on tiptoes. Exercising is a challenge because of my balance issues. When I first started Leslie Sansone's Walk Slim videos, I had to hang on to something stable for basically the entire video. Now, my strength and endurance has increased to the point that I only need to stabilize myself for about 3% of the exercises. My disease is classified in with the Muscular Dystrophy family, so there is no cure as of yet. I'm just thankful that I have such a mild form of it.