got my complete blood count done yesterday
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all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged2 -
You aren't losing hair and having these other symptoms for no reason, though, so go back and ask your doctor what the next step is. Don't give up and don't let your doctors brush you off until they have a plan or an answer.
It took 8 months of frustration and tests for them to nail down my pernicious anemia and more than one doctor suggested that I was a hypochondriac with an eating disorder.
Be your own advocate and follow up, and make sure those doctors follow up. Just because their first tests didn't find anything doesn't mean that there is NOTHING going on. It just means they haven't looked in the right place yet. Keep tracking your symptoms and keep demanding next steps, goals, and answers.8 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!4 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!
this may be silly but what is a ful thyroid panel LOL1 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!
this may be silly but what is a ful thyroid panel LOL
It varies somewhat by lab, but more than TSH, pretty much always T3 and T4, sometimes other things.
https://labtestsonline.org/tests/thyroid-panel
Are they giving you a detailed (paper on online) copy of your test results with all the values, normal ranges, etc.?
If not, ask for it and see if you can get it.0 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!
this may be silly but what is a ful thyroid panel LOL
It varies somewhat by lab, but more than TSH, pretty much always T3 and T4, sometimes other things.
https://labtestsonline.org/tests/thyroid-panel
Are they giving you a detailed (paper on online) copy of your test results with all the values, normal ranges, etc.?
If not, ask for it and see if you can get it.
no they didn't give me my paperwork back, they actually suggested my adhd was acting up, causing anxiety and stress, causing all these other issues, I CALL *kitten*. and wanted to put me on a stimulant5 -
I feel for you. I know what it is to feel blocked by so called medical systems. It feels impossible to get someone to take notice and help most times. You know you feel off but your just not fitting their boxes, the ones you and everyone else are supposed to and its devastating, really hurtful. Our lives are as worthwhile as anyone else's make sure you Know this.
Wondering, I have reactions to perfumes and off gassing chemicals, paint/varnish/glue vapers, and probably formaldehyde etc from new curtains and furniture, even fuels, those sorts of thing. Using functional methods I have improved to be able to live, do more than just look into the garden, giggle. I've not been able to achieve conventional help for this either. It is also possible to react to moulds and mildews in the atmosphere, they are even in soggy autumn leaves. I know it all sounds weird but there are many of us so afflicted. Went to a granddaughter wedding, felt able, took my emergency kit, just in case. I'd been busy supporting Bride and family as usual, even shortening a flimsy two layered dress which took 12 or more hours I did not have. I became distressed needing to have air, no one gave a dam, worst no venue support, I ended up missing the vows, having come home, showered, changed clothing and cars returned for the Reception, for my special order, only to have to leave because "Rules are Rules". I'd taken my supplements religiously for months, had my mask, nose bips can other stuff. I don't even want to see the recording of the event, I was there but not helped to take part, it would just rub salt into the wounds. Its great the way people can make you "less", or at least try. At this point I say, Never give up, as long as you have breath, keep on breathing because you are valued and make the world a better place. I know all to well the Stress from one thing adds to the stressors from other reactors then add the judgement of others and it explodes which makes one or at least me, the pariah in the whole thing.
Something underpins, adhd, can be chemicals, its like Autism and other similar diagnoses, something, many different things underpins them all. I hope you find your personal way. I'm 70 in days! frightening particularly because in general I have had to learn how to get my health back for myself. I've had some help from a BANT, UK only nutritionist, read and kept on reading. Please do the same, please don't let the ignorant get you down. For me that includes Doctors, one had he bed bound because he said, this gel is fine for arthritis, though I had told him of my reactions to prese I tried a smear seemed ok, next thing, well morning could not stand! I have full knee movement and no pain by dint of my own efforts with no help from the system. Also tell them, you are entitled to your paperwork. It helps to research the whys and wherefores of your personal health.
(Beg pardon, not being helped to stay at my Granddaughters wedding really hurts, compounded by others insensitivity)1 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!
this may be silly but what is a ful thyroid panel LOL
It varies somewhat by lab, but more than TSH, pretty much always T3 and T4, sometimes other things.
https://labtestsonline.org/tests/thyroid-panel
Are they giving you a detailed (paper on online) copy of your test results with all the values, normal ranges, etc.?
If not, ask for it and see if you can get it.
no they didn't give me my paperwork back, they actually suggested my adhd was acting up, causing anxiety and stress, causing all these other issues, I CALL *kitten*. and wanted to put me on a stimulant
If you can, I'd ask for a copy/printout.
Are you in Canada (just guessing from your profile pic)? If so, hoping some of the other Canadians here have info on how you might get your results, whether you have a right to them, etc.
In the US, or at least my part of it, it's normal to be able to get a copy of the results. Often they're online as part of a medical record there, or retrievable online if you know the right site address, or they'll mail a paper copy, on request without charge (or maybe with a self-addressed stamped envelope). But I don't know what the rules are elsewhere.
Best wishes!2 -
In the UK we have a company called Thriva who send you a sample kit, you prick your finger and fill the tube with blood, send it off and they will test it and send you your results. You can order different packages of tests inc b12 and thyroid function etc. I don’t know where your located but it may be worth investigating if there’s the equivalent available for you? There are money off coupons frequently. The tests aren’t THAT cheap, but what price do you put on your health and well-being? Besides, hopefully it’s something you only really need to do rarely unless something comes back problematic and if so, you can see your doctor.2
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ElizabethKalmbach wrote: »You aren't losing hair and having these other symptoms for no reason, though, so go back and ask your doctor what the next step is. Don't give up and don't let your doctors brush you off until they have a plan or an answer.
It took 8 months of frustration and tests for them to nail down my pernicious anemia and more than one doctor suggested that I was a hypochondriac with an eating disorder.
Be your own advocate and follow up, and make sure those doctors follow up. Just because their first tests didn't find anything doesn't mean that there is NOTHING going on. It just means they haven't looked in the right place yet. Keep tracking your symptoms and keep demanding next steps, goals, and answers.
6 -
all my levels came back normal. i am now even more confused and lost than ever.
Did they test TSH (not usually part of CBC), nutrition (various iron measures, Vit D, maybe B12, others) . . .and if you're losing weight, how fast (and what is current weight)? Done any digestive system tests related to reflux?
Like others said, CBC is a first pass. Keep pushing. Hang in there; it's a process.
i am actually gaining weight/stayed the same for about 6 months nowl
i did a gastric test at the hospital for reflux, nothing. i am so discouraged
I understand how discouraging this is: I've been through similar sequences (different symptoms/conditions, but the long drawn-out diagnostic process). But please keep working at it. Unfortunately, this is what the process is like . . . especially if what you have is not a common condition (they test for common things first).
I went through multiple tests and scans for reflux/heartburn before the cause was found (a relatively rare gallbladder condition), but it was a multi-step process to find that out, and get it addressed. And don't assume that just because you may have something uncommon, that it must be something especially dangerous or hard to treat: That's not true. Both common and uncommon things can be dangerous or not very; hard to treat or pretty easy.
If your GP is supportive, keep working with him/her.
If not, seek a new primary care doctor. I know that this is all even harder when you're exhausted, but it's clearly important. Please keep chipping away at getting a solution!they tested my thyroid too. I am so lost and confused, i feel like giving up.
Just TSH, or full thyroid panel?
Hugs and best wishes that a good course opens up in front of you soon!
this may be silly but what is a ful thyroid panel LOL
It varies somewhat by lab, but more than TSH, pretty much always T3 and T4, sometimes other things.
https://labtestsonline.org/tests/thyroid-panel
Are they giving you a detailed (paper on online) copy of your test results with all the values, normal ranges, etc.?
If not, ask for it and see if you can get it.
no they didn't give me my paperwork back, they actually suggested my adhd was acting up, causing anxiety and stress, causing all these other issues, I CALL *kitten*. and wanted to put me on a stimulant
If you can, I'd ask for a copy/printout.
Are you in Canada (just guessing from your profile pic)? If so, hoping some of the other Canadians here have info on how you might get your results, whether you have a right to them, etc.
In the US, or at least my part of it, it's normal to be able to get a copy of the results. Often they're online as part of a medical record there, or retrievable online if you know the right site address, or they'll mail a paper copy, on request without charge (or maybe with a self-addressed stamped envelope). But I don't know what the rules are elsewhere.
Best wishes!
OP, you might even be able to get a copy of them from the receptionist, but certainly the doctor can print them for you. It's your information, you have a right to it.6 -
You need to find out if they tested ferritin, or just haemoglobin.
Especially relevant if you have heavy periods and/or are vegetarian/vegan.1 -
Thank you to the person who disagrees with me about my plight as written in my above post. I wonder what you actually disagree with. the fact that there are health problems such as mine. I have been issue free for 4 years or more now so I had every expectation of being unaffected. It was a deep shock to find myself so abused for having a disabling reaction made worse by management total indifference. Are you saying, my life is lesser than anyone else. That may be something should be permanently terminated?
1 -
I feel for you. I know what it is to feel blocked by so called medical systems. It feels impossible to get someone to take notice and help most times. You know you feel off but your just not fitting their boxes, the ones you and everyone else are supposed to and its devastating, really hurtful. Our lives are as worthwhile as anyone else's make sure you Know this.
Wondering, I have reactions to perfumes and off gassing chemicals, paint/varnish/glue vapers, and probably formaldehyde etc from new curtains and furniture, even fuels, those sorts of thing. Using functional methods I have improved to be able to live, do more than just look into the garden, giggle. I've not been able to achieve conventional help for this either. It is also possible to react to moulds and mildews in the atmosphere, they are even in soggy autumn leaves. I know it all sounds weird but there are many of us so afflicted. Went to a granddaughter wedding, felt able, took my emergency kit, just in case. I'd been busy supporting Bride and family as usual, even shortening a flimsy two layered dress which took 12 or more hours I did not have. I became distressed needing to have air, no one gave a dam, worst no venue support, I ended up missing the vows, having come home, showered, changed clothing and cars returned for the Reception, for my special order, only to have to leave because "Rules are Rules". I'd taken my supplements religiously for months, had my mask, nose bips can other stuff. I don't even want to see the recording of the event, I was there but not helped to take part, it would just rub salt into the wounds. Its great the way people can make you "less", or at least try. At this point I say, Never give up, as long as you have breath, keep on breathing because you are valued and make the world a better place. I know all to well the Stress from one thing adds to the stressors from other reactors then add the judgement of others and it explodes which makes one or at least me, the pariah in the whole thing.
Something underpins, adhd, can be chemicals, its like Autism and other similar diagnoses, something, many different things underpins them all. I hope you find your personal way. I'm 70 in days! frightening particularly because in general I have had to learn how to get my health back for myself. I've had some help from a BANT, UK only nutritionist, read and kept on reading. Please do the same, please don't let the ignorant get you down. For me that includes Doctors, one had he bed bound because he said, this gel is fine for arthritis, though I had told him of my reactions to prese I tried a smear seemed ok, next thing, well morning could not stand! I have full knee movement and no pain by dint of my own efforts with no help from the system. Also tell them, you are entitled to your paperwork. It helps to research the whys and wherefores of your personal health.
(Beg pardon, not being helped to stay at my Granddaughters wedding really hurts, compounded by others insensitivity)
I didn't disagree with you - I have chemical sensitivities too and the first few years were just awful. I remember being miserable at functions because someone wearing perfume would hug me and it would transfer to me. I had to smell people before I let them near me, lol.
I sought out fragrance-free places, and then had to educate the people there what fragrance-free means >.<
I was really lucky that the first doctor I found was able to correctly diagnose and treat me - many suffer for years without knowing what is going on.0 -
Thank you to the person who disagrees with me about my plight as written in my above post. I wonder what you actually disagree with. the fact that there are health problems such as mine. I have been issue free for 4 years or more now so I had every expectation of being unaffected. It was a deep shock to find myself so abused for having a disabling reaction made worse by management total indifference. Are you saying, my life is lesser than anyone else. That may be something should be permanently terminated?
Please don’t feel upset or insulted by someone clicking a dumb button. It means nothing. It might even have been a mistake.0 -
Thank you lorrpb.
I would like to think so. Everyone's life experiences including health related ones are so very different, my deepest wish is no one else has to endure any part of what I have. I love my family and have fought to get my health back, thyroid, arthritis and reactions, its the pits. Not fitting the NHS boxes makes it expensive, I'm fortunate to be in a secure marriage so I can cover my costs. I believed I was well enough to attend the wedding.
kshama Thank you for the idea of educating people. THINK BEFORE YOU STINK is one site found. I met his mother back in the summer, she is convinced its nothing. Less than gluten issues.
I'm the sort of person who would go through hell and high water for any of the kids, (crossing fingers for two individual live births in January,15 in 3 generations) please just don't put in the position to choose only one. Each child brings their own pound of love, one's ability for love grows, even if they have diagnosable difficulties.
I kept on trying when someone less strong would probably have given up.2 -
all of this has nothing to do with my health issues, so i disagreed with it.4
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I too was treated like a "hypochondriac" by my several GPs for over 3 years, even after it was discovered (finally) that I have hypothyroid. I was prescribed the lowest dose of med, which is usual to begin with, but considered cured after that regardless of my symptoms.
I finally found a doctor that didn't make me feel bad or ashamed about my complaints. She's an internist and takes me very seriously. In the 1 1/2 years that I have been seeing her my health has dramatically improved in all ways. I also feel better about my condition and am not afraid to discuss symptoms for fear of being minimized.
It doesn't hurt to get second opinions from an internist or an endocrinologist or what ever specialist fits the bill. Someone said to be your own advocate in your health care, that is the truth!3 -
all of this has nothing to do with my health issues, so i disagreed with it.
Have you asked for a referral to a specialist? A lot of places you can now self refer. Maybe look up drs in your area. Use our great free medical system to get answers.
If all else fails do as my mom's dr told her once, head to emerg, plan on waiting but if you're there they have to figure stuff out and make referrals1
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