Thoughts & Prayers please for my daughter

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Replies

  • californiajuls
    californiajuls Posts: 198 Member
    Praying for you family.
  • dogdaze
    dogdaze Posts: 110 Member
    Sending positive thoughts and energy to you and your family. Please keep us posted
  • tiffanygil
    tiffanygil Posts: 478 Member
    Done dear, and please keep us posted!
  • nopeekiepeekie
    nopeekiepeekie Posts: 338 Member
    Been at the hospital since 8am this morning, just got home so I could get us all packed and ready to go down to the U of MN. Unfortunately Hailey has relapsed. She will be undergoing a minimum of 4 months of hard chemo and losing her hair yet again (was hard enough when she was 9, can't imagine at 12 and dealing with puberty).

    Their goal is to get her back into remission as soon as possible. The sooner they get her into remission, the sooner they will be able to start the next phases of treatment. Normally we would only have to go to the U of MN for the transplant part of this process, but Hailey has agreed to be in a trial, which will add a drug to her treatment regimen and it isn't available where we are at. Luckily, it's only for the first month (8 doses) and we're not too far away (2 1/2 hours give or take traffic).

    I don't have any further info on success rates or anything at the moment, as soon as I have any more information, I will be sure to let you all know.

    Thanks again for all of your love & support!
  • lyn54
    lyn54 Posts: 415
    Go with God:flowerforyou:
  • Tonya1979
    Tonya1979 Posts: 72
    I am so sorry to hear this about your daughter. I wish you, your family and your brave daughter all the best wishes. Good luck, you all will be in our prayers.
  • Douniap
    Douniap Posts: 841
    Know that we will be praying for you all and sending you much love and wishes of good health soon.
    God bless
    Dounia
  • Happytobealive
    Happytobealive Posts: 36
    You and your family are in my prayers, please keep us posted on the outcome.
  • kdsmith
    kdsmith Posts: 250
    I'm so sorry to hear that you daughter is having to undergo chemo yet again...your family will be in my thoughts and prayers.
    xx Kim
  • nopeekiepeekie
    nopeekiepeekie Posts: 338 Member
    Quick update. Hailey will be inpatient for the next 36 days. She will have no immune system at all so they need to make sure she's in as safe an invironment as possible. We do have a room at the Ronald McDonald house, so that is a godsend, but my husband and I are working out a schedule so we can both continue to work at least part time and spend time with our son. Right now he is staying with my sister, nephew & father. He will be down to visit this weekend. He's still our best hope for a donor match. If he does not match, this hospital uses cord blood for the stem cells which will rebuild Hailey's bone marrow.

    Right now I'm taking things block by block (each block is 36 days). Needless to say, I have moments where I'm fine and moments where I'm scared ****less. She's being a trooper. Chemo will begin later today. I'm very VERY impressed with the amount of information the relapse specialists have provided to us. We will be talking to the transplant doctors very soon and getting even more information. Sometimes I wonder if my brain will hold it all.

    I'm trying my best to watch what I'm putting into my face, but when you have to duck and dodge and grab something quick here or there it is quite hard.
  • PJilly
    PJilly Posts: 22,252 Member
    Thank you for taking the time to update us. Know that you will be in the thoughts and prayers of many, many people.
  • piquilter
    piquilter Posts: 119
    Thanks for taking time for an update, I will keep the prayers coming your way.
  • raindancer
    raindancer Posts: 993 Member
    We will keep the prayer going. (((HUGS)))
  • lyn54
    lyn54 Posts: 415
    :flowerforyou: Hugs and Prayers....
  • YourFriendBecky
    YourFriendBecky Posts: 229
    Don't add weight loss to your stress list right now. You have enough to worry about with your daughter's illness and having to work and spend time with both of your kids. We are all still here to support you regardless of whether you are dieting or not. Big, big hugs and many prayers for you. Your daughter sounds like a special girl, and you seem like a very special mom. So glad to hear that you have a place to stay at Ronald McDonald.
  • fittocycle
    fittocycle Posts: 827 Member
    I am sending lots of prayers your way for your daughter. Please take care and try take comfort in the fact that God is taking care of your daughter and you too. Post again and let us know what is happening when you can.
  • KimSchnizleinWECHANGED
    KimSchnizleinWECHANGED Posts: 189
    Prayers being said, and I've alerted all my friends via Home wall ... And some prayer chains.
  • frenchie3579
    frenchie3579 Posts: 5 Member
    My prayers are with you and your family! I can't imagine what you have and are going through! (((HUGS!!)))
  • doris_day
    doris_day Posts: 159
    You're in my prayers.
  • LindaSueBakk
    LindaSueBakk Posts: 145 Member
    Praying for patience, peace and healing. May God bless you and your family.
  • lyn54
    lyn54 Posts: 415
    Prayers are on going. I believe God doesn't forget even one prayer. May you have peace and comfort.:flowerforyou:
  • joliern30
    joliern30 Posts: 6
    sorry to hear about your daughter. You will be in my prayers!! God is the answer !
  • beylover
    beylover Posts: 39
    My heart aches for you and your family. I have you in my prayer an God is the answer. Stay strong and positive. *Hugs*
  • PoshTaush
    PoshTaush Posts: 1,247
    Just prayed.... God bless you all...
  • NYIceQueen
    NYIceQueen Posts: 1,423
    Done! Please keep us posted...
  • dlmarkley66
    dlmarkley66 Posts: 51
    My prayers are with you and your daughter. Stay strong.
  • MunchkinHawk12
    MunchkinHawk12 Posts: 434 Member
    Sorry to hear about your daughter. My thoughts are with you and hope she hasn't relapsed. I'm a bone marrow donor and I'm hoping one day that someone will call me to help someone like your daughter who is in need! :flowerforyou:
  • toberlili
    toberlili Posts: 78
    oh, honey, i wish i could give you all a hug right now, i will keep you in my thoughts and pray for you round the clock.:flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :flowerforyou: :heart:
  • mia66
    mia66 Posts: 425
    My thoughts and prayers are with you and your family. Love her every day.
  • nopeekiepeekie
    nopeekiepeekie Posts: 338 Member
    Hi all, wanted to drop a note saying Hailey is doing well. Halloween is a busy week at the hospital with loads of visitors for all the kids. I've been keeping family and friends updated on our journey via caringbridge. You can find her here http://www.caringbridge.org/visit/squigy
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