They cut my head open, your excuse is invalid!

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Replies

  • Farback
    Farback Posts: 1,088 Member
    Thanks MB. Your story is an inspiration. I got an early warning and am working hard to keep that time bomb in my chest reset every day.
  • mmnv79
    mmnv79 Posts: 538 Member
    This brought tears to my eyes. Thanks for sharing. xx
  • MB_Positif
    MB_Positif Posts: 8,897 Member
    Farback wrote: »
    Thanks MB. Your story is an inspiration. I got an early warning and am working hard to keep that time bomb in my chest reset every day.

    Good for you @Farback we have to do whatever it takes!
  • MB_Positif
    MB_Positif Posts: 8,897 Member
    mmnv79 wrote: »
    This brought tears to my eyes. Thanks for sharing. xx

    Awww, thank you @mmnv79 :)
  • fitnessdiva_tea
    fitnessdiva_tea Posts: 2 Member
    You are indeed a living testimony....your story is inspiring
  • jules6669mfp
    jules6669mfp Posts: 446 Member
    Thanks for sharing. Amazing story.
  • cjfs63
    cjfs63 Posts: 1 Member
    Very inspiring! I understand your struggle because my daughter also has Chiari Malformation but hasn't had to have surgery for it yet.
  • wildsavvy
    wildsavvy Posts: 5 Member
    Love this post! I'm also a zipperhead due to Chiari :)
  • MB_Positif
    MB_Positif Posts: 8,897 Member
    Thank you @fitnessdiva_tea and @jules6669mfp :)

    @cjfs63 thank you and I am sorry to hear your daughter also has Chiari. I hope she is doing well despite it.

    Thank you @wildsavvy hehe, I don't call myself a zipperhead because I didn't really get a zippery scar. Mine has pretty much healed up into a barely visible white line...I kinda wish it were more gnarly for the stories :)
  • kittykaida
    kittykaida Posts: 12 Member
    Hey! First of all, I have to commend you on the hard work that you have done, and the amazing results.

    Also, I have Arnold Chiari, too!! I have never met anyone else who even had heard of it. It is a huge struggle to live with, and I am so happy for you that the surgery worked! (I only looked at the front page and then skipped back to comment, hopefully that is still the case?)

    ( I have not spoken to a neurologist in a couple of years, but last I did, operating was not a viable option for me, and I still deal with the numbness and dizzy spells, headaches, as well as occasionally blacking out. I have to be so careful when I am trying to lose weight, low-impact, no heavy lifting above shoulder level, no running, either.)

    Thank you so much for sharing your story, very inspiring!
  • TnTWalter
    TnTWalter Posts: 345 Member
    wow!
  • mygnsac
    mygnsac Posts: 13,413 Member
    I have an online friend with Chiari. She had her surgery 2 years ago and is still struggling. Thanks for sharing your story and for being such a wonderful inspiration!
  • MB_Positif
    MB_Positif Posts: 8,897 Member
    I really hadn't either @kittykaida I'm sorry to hear surgery was not an option for you. I'm curious as to why. If you'd like, send me a PM to discuss. Thank you for your compliments. I'm still doing great for the most part!

    Haha @TnTWalter I feel the same way when I reread the story I wrote.

    Thank you @mygnsac it is sadly quite common for the surgery to not alleviate all of the symptoms
  • nerdgirlinlv
    nerdgirlinlv Posts: 32 Member
    Thank you for sharing your story.
  • mistikal13
    mistikal13 Posts: 1,457 Member
    Thanks for sharing your story with us!
  • nickymarie79
    nickymarie79 Posts: 2 Member
    Hello all, I'm trying to figure out my new normal, and figure out what exercises I can and cannot do with my chiair diagnosis. I was just diagnosed August 19th, 2015, so I'm trying to adjust and was hopeful there'd be someone on here with it...I can't believe there's so many. Pleae feel free to add me if you'd like.
  • kristyne41
    kristyne41 Posts: 1 Member
    The most empowering story ive ever read about being healthful! Thank you
  • orchidee1987
    orchidee1987 Posts: 97 Member
    Pfffffffff ....... A mean to get attention and to be applauded (?). We all have issues, sicknesses, worries etc. If one wants to work out, he will, of course there is no need to do so to lose / maintain one's weight. Some put one 50 pounds after the loss of a loved one, would you tell them that's an excuse not to work out ? They might work out later on, needing a break at the moment .... Yeah, just like you had to before the operation.
  • TaniTru
    TaniTru Posts: 6 Member
    Really inspired by this. Your operation would have been the perfect reason to fall off but you stayed on! Amazing - inspired!
  • AgentFlex
    AgentFlex Posts: 211 Member
    orchidee1987 wrote: »
    Pfffffffff ....... A mean to get attention and to be applauded (?). We all have issues, sicknesses, worries etc. If one wants to work out, he will, of course there is no need to do so to lose / maintain one's weight. Some put one 50 pounds after the loss of a loved one, would you tell them that's an excuse not to work out ? They might work out later on, needing a break at the moment .... Yeah, just like you had to before the operation.


    Hi @orchidee1987

    I am the person who originally posted this story. I deactivated that account recently and created this new one. Anyhow, it seems that you missed the part in the post where I said the title wasn't meant to be offensive. It was to be humorous. I wasn't trying to get applause, I was trying to inspire people who are going through health issues to see that it IS possible to maintain weight in the midst of a difficult situation. That is it. In all honesty, in all the pages of responses to this post, yours is the only one that was negative. I am sorry that it was off putting to you.
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