Gluten and Fat free? Help and Ideas??

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  • nvmomketo
    nvmomketo Posts: 12,019 Member
    Yes. I know celiacs who were negative in one blood test but positive in another, and other celiacs who were only positive in the biopsy, and others who just had positive blood tests. A positive is a positive for celiac disease. No matter what.

    Some doctors believe that a slightly positive antigliadin antibody test (AGA IgA or AGA IgG) could indicate gluten sensitivity and not CD but this is not widley accepted. As a general rule, the only accepted test for a gluten sensitivity is a gluten free trial of many months (after CD testing is done).

    My CD was misdiagnosed for 30+ years. I developed a lot of other health issues because of that. If there is a chance of CD, due to less than thourough testing, I would advise you to get more testing done.

    Good luck.
  • pennyparker28
    pennyparker28 Posts: 13 Member
    GottaBurnEmAll wrote: »
    shaumom wrote: »
    pennyparker28 wrote: »
    I have tested for celiac, I only have a sensitivity.


    Just in case (and please don't feel like you have to answer, because I know this is private. Just something to think of) - were you tested for celiac disease by the same doc you have not been so thrilled by? And did this doc say you just had a sensitivity based on any of the celiac tests?

    I only ask because there are a lot of doctors who are very ignorant about celiac disease - much of the information about the symptoms and testing have not been well disseminated in the medical community. Some docs quite literally, are ignorant enough that they don't know how to even read the test results correctly. Like, for example, they don't seem aware that they can't tell if you have a gluten sensitivity from any of the celiac tests. We don't actually have a verified test to detect that yet, turns out (we've got some speculative tests, based on what doctors thought MIGHT be happening, but considering that a recent study just determined was IS actually happening, I suspect we'll have verified tests coming within the next few years).

    But some doctors think if your results were abnormal, but not by very much, then you're just sensitive. Or if one of the few tests in the panel were positive, but the rest were negative, then it's just gluten sensitivity. And both of these are actually false. Because positive tests on celiac disease are kinda like pregnancy tests - doesn't how much you are pregnant, it just matters that you are. :-)

    Sorry if this is all stuff you already know, or doesn't apply - I know it's kind of gratuitous. It's just one of those things that has impacted my own family so much, and that of friends, that I get a bit talky when it comes up. I've had acquaintances who were diagnosed as children and had doctors who tested them later and said they had 'outgrown' the disease, because the docs were too ignorant to realize that the tests looks for biomarkers of a reaction TO gluten, so celiacs on the proper diet are always negative. And these same friends destroyed their bodies, eating gluten because they thought they could.

    I had relatives the doctors refused to test because they had outdated information on what celiac symptoms are. GI doctors for my celiac relatives who offer no follow up care, no advice, no help, and who only diagnosed family members because the family requested the tests, not because the doctors had a clue. My father was crippled before his mid-thirties due to what nutritional deficiencies did to his joints and spine from this disease not being diagnosed.

    So, yeah, bit of a hot button for me where I start to worry that others have had similar poor medical care re: this disease. >_<

    ^This. I was very fortunate to have a doctor well ahead of his time diagnose me, because I did not test typically. I showed some suspicious signs, but it wasn't totally typical. He put my history together with my test results to diagnose me. I am eternally grateful. This, btw, was almost 20 years ago.

    Thank you both so much. I'll get a second opinion.
  • Need2Exerc1se
    Need2Exerc1se Posts: 13,575 Member
    pennyparker28 wrote: »
    tcunbeliever wrote: »
    fat is an essential nutrient - you can't have a no fat diet, that can't be right

    as for no gluten - Udi's has what I think is good gluten-free bread. There are lots of things to eat that don't come from wheat in the first place like eggs or meat or fruit or veggies or cheese.
    TavistockToad wrote: »
    pennyparker28 wrote: »
    I can't even have peanut butter. Any fat makes me sick. So gluten and fat free together is very difficult.

    Not sure why? It's not like you would usually replace the food that contains gluten with high fat stuff.

    So gluten free carb sources, and low fat. Focus on your protein and fruit and veg.

    Mostly I'm finding dinners to be the hardest, meats and carbs usually have some fat in them. I'll try Udi's. It's weird you wouldn't expect gluten free recipe's to have so much fat, but alot of them are over compensating for the taste.

    Lean meats, beans, lentils, rice, quinoa, buckwheat (or other gluten free grains), vegetables, fruits.

    You can make so many meals with those ingredients! It seems like your problem is looking for prepackaged foods. It should be easy to make gluten and nearly fat free meals from scratch.
  • GrowingGlow
    GrowingGlow Posts: 10 Member
    edited January 2017
    Your favorite food website is going to be ohsheglows.com this lady has it all and everything is delicious. A lot of recipes are low fat, gluten free, dairy free, nut free, the whole nine yards. I can't do gluten and found that it was a habit that needed to be changed. I started replacing those habits with ones that fit in my bounds. One of my biggest habit changes was getting rid of my latte and pastry at the cafe. I can't do gluten, dairy, or caffeine (even decaf although I cheat on occasion) anymore. When I head out to the cafe it's tea time only. There are a lot of grains out there that you can use as a filler to your meal instead of bread and all the standard gluten things. Teff is an amazing grain that not a lot of people know about. You can make all sorts of things with the grain or flour. And when it comes to pasta things, you can make everything the same, just don't bother with noodles anymore. Add more mushrooms, vegetables, protein, or grains. To me it makes no sense to eat a lot of these other faux foods as they are often unhealthy. I'd rather switch a gluten item with a vegetable item and not an imitation.

    I've found that when it comes to food restrictions it takes a lot more thought to eat healthy. No more easy late night pizzas!

    Doing a detox or cleanse may be a good idea to get you on track to help heal your insides. When I had done my first detox it changed my life. There's potential for dangerous side effects. Who those happen to, I'm not sure as I haven't met anyone else that's done one. Be warned, there's a lot of garbage information out there. My first detox was a radical 3 days of nothing but fresh squeezed lemon in water followed by a week of vegetable broth that I made at home. Yeah this is a hardcore one, it's almost impossible to do, but it worked magic on me. I'm considering doing it again in the next few months since my IBS is raging. When you finish the detox, you reintroduce foods slowly to see what sets you off.

    Another thought is to do the vegetable juice cleanse and supplement with protein. An amazing movie to watch is "Fat Sick and Nearly Dead." These guys went from being on medication for autoimmune disease and all sorts of things to healthy and medication free. This would be great since it's gluten free and low fat. I've heard your hormones can go out of whack if you have no fat. Perhaps different fats you can handle better.

    If a detox or cleanse is something you won't stick with, then an elimination diet is definitely key. You start with a few safe things that are known to not bother you. Again, there's a lot of bad information out there so read up.

    When it comes to a diagnosis, I wouldn't get hung up on that. You get a diagnosis, a label, and then so what? I had several tests done for my IBS to rule out anything that could be life threatening. In the end, you need to get off the caboose and start making changes.

    Food is medicine and I hope you find your way to a happier and healthier you.
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