gluten hates me...
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Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.0 -
Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.
why? if you feel better, why would you keep going to doctors?0 -
Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.
This.
Just because a doctor doesn't care enough to dig deeper to find out what the problem is doesn't mean you just take that answer and leave it at that. It's taken me 2 GP's and 2 OB/GYN's to finally have someone send me to an endocrinologist. Turns out I have PCOS (insulin resistance) and the start of Hashimoto's.
One of the OB/GYN's said outright to me "your levels are within range for my lab, so I'm not going to investigate further". The first GP told me "as long as you have 4 cycles a year I'm not concerned". Nope. Not acceptable to me. It's my body, I have to live with this day in and day out. I want to know how I need to take care of myself without playing guessing games.
Maybe I could have accepted what the other doctors said, and then I may have ended up as a diabetic with a failed thyroid. I chose not to, and now I'm being monitored by a medical professional who will ensure my body is functioning properly.0 -
Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.
Exactly! If your doctor isn't helping, fire his or her *kitten* and find another one.0 -
Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.
why? if you feel better, why would you keep going to doctors?
Just because you feel better does not mean damage isn't occurring. I'm a freaking poster child for looking pretty normal, but having insides that are quite broken.
I actually have a consult with a surgeon in just a few hours to see when they want to remove part of my colon. Again, I don't look like I have a chronic condition that puts me at risk for a ruptured colon at any time. Hell, I've lost nearly 30 pounds, by my outward appearance most people think I'm substantially healthier.0 -
PrizePopple wrote: »
Then you keep finding a doctor who will give you a yes or no on the whether they have this disease or not.
why? if you feel better, why would you keep going to doctors?
Just because you feel better does not mean damage isn't occurring. I'm a freaking poster child for looking pretty normal, but having insides that are quite broken.
I actually have a consult with a surgeon in just a few hours to see when they want to remove part of my colon. Again, I don't look like I have a chronic condition that puts me at risk for a ruptured colon at any time. Hell, I've lost nearly 30 pounds, by my outward appearance most people think I'm substantially healthier.
agree to disagree0 -
Just because you feel better doesn't mean damage is occurring.0
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tedboosalis7 wrote: »I find it interesting that when someone posts about being gluten free, be it by choice prompted by a medical condition and sensitivity, or just simply wanting to eliminate gluten from their diets but without any medical basis; that people have to chime in with bizarre comments showing they are the patron saints of defending gluten ie gluten is not the devil, don't buy into the hype etc. If someone decides to reduce or eliminate sugar, alcohol, caffeine, hydrogenated oil, high fructose corn syrup or whatever else is out there, who runs around defending those? No one, but for some reason people seem to have a need to pipe up with dissenting voices and commentaries whenever anyone claims to feel better after eliminating gluten. People have real medical issues with gluten and others just don't want to eat it. So what's the real issue for people resisting this? Just my 0.2 cents worth...
I think this is the post of the day. I applaud OPs dietary changes and condemn those on this forum for blasting it (or mocking it). If someone can't be inspired by this kind of story, go live in a hole.
Can I run an extension cord into my hole? I'd be awfully bored with no music or light to read with.0 -
Oh yay! Another gluten is the devil thread.
As someone who is a actually allergic (anaphylaxis) to gluten, wheat and oat, I really dislike when people make claims like this. It makes those with actual issues seem less sincere.
THIS^ yeah, what Elphie said up there.
So until your DOCTOR DIAGNOSES YOU with Celiac Disease, the only thing you have is "Oh I have the most popular syndrome of the year, ain't I cute and pay attention to me!" Yeah, people like this trivialize the real Celiac Disease. The rest of us eye roll at you.0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.-1
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It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".0 -
OMG so avoiding gluten makes her feel better, for whatever reason. THAT'S OKAY. The fad-ness of gluten free has made gluten-free options so much more widely available. Those of you hating on her can at least be thankful for that, can't you?
She wasn't telling everyone to stop eating gluten, she was looking for people with a similar experience to be her MFP friends.
If I decide tomorrow that I feel a thousand times better when I only eat orange foods, and start my oranges and sweet potato diet and come here to post about how great I feel, you don't have to come on here and spread the hate just because you are blue-food-intolerant and have been eating only orange for years. Especially if my diet catches on and now orange foods are available everywhere! everybody wins!
Lighten up! Sheesh.0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
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It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
and how do you know that?0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
Even assuming that's true (we have no way of knowing)...so what?
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Gluten sensitivity may not exist.
"when the placebo diet was identical to the baseline diet, subjects reported a worsening of symptoms! The data clearly indicated that a nocebo effect, the same reaction that prompts some people to get sick from wind turbines and wireless internet, was at work here. Patients reported gastrointestinal distress without any apparent physical cause. Gluten wasn't the culprit; the cause was likely psychological. Participants expected the diets to make them sick, and so they did."
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It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
Even assuming that's true (we have no way of knowing)...so what?
So you would be okay with someone going around saying they have cancer and have to eat xyz to stay healthy during chemo, when they do not? Just because that way of eating makes them feel better?0 -
It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
^This. 1000 this. Even as a celiac, the hidden gluten thing is dangerous, because repeated exposures mean more than just some unpleasantness in the bathroom.
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squirrelzzrule22 wrote: »OMG so avoiding gluten makes her feel better, for whatever reason. THAT'S OKAY. The fad-ness of gluten free has made gluten-free options so much more widely available. Those of you hating on her can at least be thankful for that, can't you?
She wasn't telling everyone to stop eating gluten, she was looking for people with a similar experience to be her MFP friends.
If I decide tomorrow that I feel a thousand times better when I only eat orange foods, and start my oranges and sweet potato diet and come here to post about how great I feel, you don't have to come on here and spread the hate just because you are blue-food-intolerant and have been eating only orange for years. Especially if my diet catches on and now orange foods are available everywhere! everybody wins!
Lighten up! Sheesh.
Welllllllll.... to an extent. Some of the "gluten-free" product availability? Isn't really gluten free.
Case in point: I bought a protein powder that said it was gluten free. It wasn't. There have been cases of restaurants serving gluten-filled pasta and claiming it was gluten-free. Farmer's markets selling gluteny rolls as gluten free. And why? Well, lack of regulation for one thing, but the other being the casual way gluten is being treated as a fad (not saying this is the case with the OP at this point, given her family history). Sooooo many people have jumped on the gluten free bandwagon and then turn around and ingest it anyway and unscrupulous types aren't unaware of that.
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It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
I think with her family history that the OP may very well have some issues. I still think she should find a competent GI and get a good diagnosis, though. She can get genetic testing at the very least.
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Dear als, I have too been having issues with gluten (I think) or maybe wheat. I am still dialing it in. I am 45 and have always struggled with my weight, and also had "tummy issues". I started a food journal and noticed a pattern with a lot of wheat products, (wheat bread, tortillas, etc.) and a lot of alcohol products. So I am in the process of slowing them down and eating more veggies and lean meats. I lost 10 pounds last month. I don't know if it's because of the better quality of calories, or it's the wheat and wine being out. Either way, I too feel better with a lot less tummy aches, so I am on the right track. Would love to hear more feedback and ideas. "I sent an add friend". PS, Congrats on the pounds lost!
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Gluten and/or wheat doesn't agree with me either. I have an autoimmune disease and I feel like my symptoms and pain are better when I don't eat grains at all. The medical community isn't interested in helping me figure out exactly why so I will just keep on avoiding it. I would rather feel better than not. I'm not a microbiologist so I can't tell you why it bothers me, just that it does. It may be the sugars, or a different protein, or a pesticide, or whatever. I don't really care, but I do listen to my body when it tells me not to eat something.
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Because you need to be in a deficit to lose weight........you know that science thing.prettykitty1515 wrote: »
The reason she lost weight is because she was in a deficit? How do you know that? Were you counting calories for her?
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It's like the people who get a formal diagnosis feel like they own this disease and nobody can get into their exclusive cool club without getting the permission of their doctor. Not sure why they are so threatened by these people who self diagnose.
Except I don't have celiacs. I have an actual allergy. If I so much as touch oat, my throat closes. Wheat and gluten I have to actually consume. I am not "threatened" by anyone. I get pissed off when people claim they have an illness or disease they were never diagnosed with, especially when it comes to food allergies. Do you know how many times I see people say they have a gluten issue, and then literally two minutes later consume a food with gluten in it? It is people like that, that make things worse. I can't tell you how many times a day someone says: well so and so eats _____ and they have an issue with gluten and they are okay- and it happens to be a food that contains "hidden" gluten. I have gotten to the point where I won't eat anything that I don't cook/prepare/take out of a package myself. Why? Because people assume if person "a" who really has no issue can eat it, it will not hurt me.
okay, I can understand being frustrated by that.
Yeah, I'd say it is "frustrating" to land in ICU on a ventilator for 5-7 days due to my airway closing.
Bottom line- if you do not have a certain medical condition diagnosed, do not say that you do based on you "think you do".
your frustration is clouding your judgment here. The o.p. is excited that she found something to make her feel better. That doesn't have to be a threat to you.
You have heard of the term placebo effect right? Where there is no real cause for them feeling better except that they believe they do? That's pretty much what this is.
Even assuming that's true (we have no way of knowing)...so what?
So you would be okay with someone going around saying they have cancer and have to eat xyz to stay healthy during chemo, when they do not? Just because that way of eating makes them feel better?
Not following. why would someone say they are getting chemo when they aren't? That sounds like a blatent lie. How is that comparable to this?0 -
prettykitty1515 wrote: »
The reason she lost weight is because she was in a deficit? How do you know that? Were you counting calories for her?
The reason anyone loses weight is because they're in a deficit.
The OP already said that she replaced gluten with vegetables and fruit. That would create a caloric deficit.
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This discussion has been closed.
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