What YOU should know about GLUTEN SENSITIVITY

pulchradraco

Yes, and Doctors used to tell woman that cramps and other symptoms of periods, were in the ladies head. Something does not have to be scientifically PROVEN to be a real problem.

BTW I do not have gluten sensitivity. I just have common sense.

litajl

I am sorry but Gluten Sensitivity, Allergies are REAL! I have them and if I eat a small about, not only do I double over in pain but I also have digestive issues, and brain fog, joint pain and other issues. I removed the gluten and it goes away! Even if I mistakenly eat gluten I am sick with in 30 mins. SO to those of us that suffer it is real. OH not to mention that continual exposure to gluten for us can cause Intestinal Cancer. Those who don't suffer with it should call themselves blessed and stop passing judgment on others. Oh and the only way to get diagnosed with Celiac is to start eating gluten for 2 - 4 weeks and then have a biopsy of the small intestine done. I am not willing to suffer for that long to satisfy other people!

synchrohobbit

This. It also sounds like there are several people conflating proteins with sugars, and autoimmune reactions with malabsorption or an inability to digest a molecule.

I have no reason to not believe people that say that being gluten free has improved their health (easier digestion, less headaches etc.) because everyone's body reacts differently to food and if avoiding certain food (while still eating a well balanced diet) makes you feel better than knock yourself out. The only problem I have is when people claim that gluten free is the solution to weight loss. Whatever you avoid in your diet for other health reasons is not going to solve weight problems unless it also results in eating less or perhaps working out more if the food made you so uncomfortable or sick it limited your movement.

Gluten-free isn't the only highly touted "sensitiviity" or "intolerance" to be touted as a weight loss miracle rather than just a valid health concern for some people and it probably will not be last.

Unknown

This content has been removed.

jofjltncb6

The good news is in about a year a new fad will come along, this one will die off, and everyone suffereing from gluten sensitivity will be burdened with an entirely new disease they need to talk about constantly.

Not exactly the same, but related: I hope that "red meat is bad for you" cycles back around again. I'd like a slight depression in the price caused by decreased demand.

EllieB_5

I am sorry but Gluten Sensitivity, Allergies are REAL! I have them and if I eat a small about, not only do I double over in pain but I also have digestive issues, and brain fog, joint pain and other issues. I removed the gluten and it goes away! Even if I mistakenly eat gluten I am sick with in 30 mins. SO to those of us that suffer it is real. OH not to mention that continual exposure to gluten for us can cause Intestinal Cancer. Those who don't suffer with it should call themselves blessed and stop passing judgment on others. Oh and the only way to get diagnosed with Celiac is to start eating gluten for 2 - 4 weeks and then have a biopsy of the small intestine done. I am not willing to suffer for that long to satisfy other people!

Uhm, gluten sensitivity does not cause intestinal cancer nor damage nor does it appear on any test. Only Celiac does any of those things and Celiac is to gluten sensitivity what a broken leg is to a stubbed toe.

perseverance14

I know it is the gluten, because I have tested it over the past year and 3 months. At the 6 month mark I ate what I wanted and within one day my hands hurt, by the end of the week my migraines were slamming me.

When I accidently ingest a small amount, nothing really happens.

So, I am no scientific experiment or anything BUT no one is going to tell me that I do not feel better, and cut my meds almost completely since stopping Gluten. No one. :drinker:

I am just wondering if you have been tested (I mean REALLY tested like with a thyroid panel and antibody test) for thyroid disease, some of your symptoms are textbook, especially the foot pain. Celiac Sprue is common in people with thyroid disease, so if you have not had thorough testing (i.e., not just a tsh test, full T4, T3, antibody, etc.) you should ask your Doctor to do it or find one who will. Thyroid disease is progressive, it is best to have thorough testing if you may have it.

rondapasperry

Aren't we all just hopping on any food choice that will work for us when we try to diet? Whatever works; use it.

Some people fear fake sugar chemicals in their bodies due to research. Other people thrive while taking in synthetic sugar and it sure makes weight loss simple. Grilling meats causes carcinogens, but most of us still grill meet. The diet that humans consume to become their best all depends on what they can fit into their life. Each person should look at the studies of synthetic sugar, modified wheat, processed foods, soy, dairy, red meat, pork, etc. I think the real thing people need to do is have a clue what they are putting in their body and research the additives and how each item has been genetically modified in the last 100 years. If you want to eat it... know what you are eating.

perseverance14

I want to know why every time I try to go to page 5 of this topic, Google Chrome keeps giving me a malware warning, nowhere else, just page 5.

ValGogo

The good news is in about a year a new fad will come along, this one will die off, and everyone suffering from gluten sensitivity will be burdened with an entirely new disease they need to talk about constantly.

yes, YESSSSSS, that's exactly what I'm thinking! The same people.

rondapasperry

If you don't want to eat it, then don't! It is most likely a wise choice.

EllieB_5

Aren't we all just hopping on any food choice that will work for us when we try to diet? Whatever works; use it.

Some people fear fake sugar chemicals in their bodies due to research. Other people thrive while taking in synthetic sugar and it sure makes weight loss simple. Grilling meats causes carcinogens, but most of us still grill meet. The diet that humans consume to become their best all depends on what they can fit into their life. Each person should look at the studies of synthetic sugar, modified wheat, processed foods, soy, dairy, red meat, pork, etc. I think the real thing people need to do is have a clue what they are putting in their body and research the additives and how each item has been genetically modified in the last 100 years. If you want to eat it... know what you are eating.

Can I just hate gluten because *kitten* gluten?

Michelle2W

Things are getting interesting????

litajl

Actually you can still do damage to your small intestine and it causes all of the other symptoms as well even if you have a sensitivity to gluten. Believe me I love regular bread, cakes, soy sauce, pizza, breaded chicken and all the things I can' t eat because it will make me sick. Most of us would not give up all of that for a fad. I LOVE TO EAT (which is why I am on here) LOL

Wenchilada

Bacon. The answer to all of life's problems.

Betcha didn't know lots of bacon has gluten used in preparation...

Betcha I don't care. I LURV gluten!

wtf kinda bacon do you eat? None of the bacon I've ever bought had gluten in it...

You wanna know what's really depressing and gave me some serious trust issues? I went to Famous Dave's with my folks for Father's Day last year - Dad's pick, which he kinda felt guilty about, but whatever. The waitress was insanely helpful when I told her I was Celiac and went so far as to give me this humongous 3-ring binder full of nutrition and ingredient information for every single thing on the menu, since they didn't have a separate gluten-free menu. Luckily, I was able to order a meal that was tasty and also didn't make me sick. But here's the real heartbreaker: On every ingredient list, next to bacon, there was an asterisk. And next to the asterisk at the bottom of the page, it helpfully informed me that "bacon strips are drained of grease on slices of white bread."

WHAT. NO. WHY.

I don't know if that's a common practice or not, but I don't really understand the logic behind it, unless they're using that bacon-grease-soaked bread for other recipes or something. I've never seen it in any other restaurant's documentation. I generally ask about a restaurant's cross-contamination avoidance practices anyway, especially if they claim to have a gluten-free menu - but I'd never come across that before, and I've never gotten sick off of bacon as far as I know. But I'm a hell of a lot more wary now at unfamiliar restaurants.

Wenchilada

I want to know why every time I try to go to page 5 of this topic, Google Chrome keeps giving me a malware warning, nowhere else, just page 5.

Something about content from Meme Generator having malware. Probably an image in someone's reply.

SunofaBeach14

I want to know why every time I try to go to page 5 of this topic, Google Chrome keeps giving me a malware warning, nowhere else, just page 5.

I blame Big Gluten

arewethereyet

Yes, and Doctors used to tell woman that cramps and other symptoms of periods, were in the ladies head. Something does not have to be scientifically PROVEN to be a real problem.

BTW I do not have gluten sensitivity. I just have common sense.

Same with post partum depression. 31 yrs ago I was sent home 5 days after giving birth via C-section with PPD. I was told "Your baby didn't die! He is healthy, suck it up and go take care of your healthy baby boy" I lie not! THESE WORDS!

I went home and locked myself in the bedroom, windows darkened, and breast fed my little boy. Only when I walked, zombie style to my mother and handed her my son, and then walked 3 miles to the beach did anyone take me seriously.

Thank goodness science keeps rolling on and studies are preformed to help people with real medical issues.

arewethereyet

This post does nothing but perpetuate *kitten* that trivializes and delegitimizes real people's medical issues.
Pulling studies out of your *kitten* isn't going to make millions of people's gluten intolerance magically disappear. Spreading this BS causes food service workers to ignore these concerns and end up endangering people and making them seriously ill because *kitten* like you think that they're faking it.

The study isn't saying that we're faking our symptoms, merely that what's causing our symptoms may be something other than NCGS. Maybe it's just me, but, I'd like to know the truth behind what makes me sick, not merely believe what makes me feel comfy to believe.

Cognitive dissonance is not flattering on anyone.

Edit:
Perhaps that is why ppl are getting all pissy; ppl are assuming the study says we're faking our symptoms when in fact it is not saying that at all. All it's saying is that gluten may not be the source of our symptoms. To me that is something to celebrate; being gluten-free is a hellish journey for which I truly respect Celiacs. Going FODMAP-free appears much easier.

Well said, thank you!

EllieB_5

Actually you can still do damage to your small intestine and it causes all of the other symptoms as well even if you have a sensitivity to gluten. Believe me I love regular bread, cakes, soy sauce, pizza, breaded chicken and all the things I can' t eat because it will make me sick. Most of us would not give up all of that for a fad. I LOVE TO EAT (which is why I am on here) LOL

Then I guess I need to go back to my GI specialist, the dude I actually allowed to test me, the dude that suggested I may have a gluten-sensitivity, and tell that quacker-jack all about how wrong he and his science is in that my proposed gluten-sensitivity has done zero damage to me and he had better shove yet another camera down my throat and look for the damage that eating gluten has done to me.

I mean, *kitten* science.

_Pseudonymous_

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

If your daughter is on a Gluten Free diet and you are testing for Celiac's then the results will come back negative. They need to be on a regular diet to be able to receive accurate results.

arewethereyet

I am sorry but Gluten Sensitivity, Allergies are REAL! I have them and if I eat a small about, not only do I double over in pain but I also have digestive issues, and brain fog, joint pain and other issues. I removed the gluten and it goes away! Even if I mistakenly eat gluten I am sick with in 30 mins. SO to those of us that suffer it is real. OH not to mention that continual exposure to gluten for us can cause Intestinal Cancer. Those who don't suffer with it should call themselves blessed and stop passing judgment on others. Oh and the only way to get diagnosed with Celiac is to start eating gluten for 2 - 4 weeks and then have a biopsy of the small intestine done. I am not willing to suffer for that long to satisfy other people!

This is what I said when they ran my blood test. I advised the dr twice I had not eaten gluten in over a month. He ran the test, it was negative. (Cleveland Clinic) I asked another gastro about this and he said "Oh no, of course it was negative!"

I asked if it was important for me to do this, because the thought of being so sick again made me sick LOL. He said "If you are getting better, no reason to go through all that"

He did not take a biopsy of the duodenum to confirm I didn't have celiac because I didn't have the other symptoms. I have a friend with it and she was sick in a way different way than I was. She was not absorbing any vitamins or minerals. Thank goodness they found it.

Blah blah......sorry I get off track. I was agreeing with you :laugh:

arewethereyet

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

If your daughter is on a Gluten Free diet and you are testing for Celiac's then the results will come back negative. They need to be on a regular diet to be able to receive accurate results.

Even the biopsy for Celiac's? (just curious)

jofjltncb6

I want to know why every time I try to go to page 5 of this topic, Google Chrome keeps giving me a malware warning, nowhere else, just page 5.

I blame Big Gluten

(Shhh!

They'll hear you.)

arewethereyet

The good news is in about a year a new fad will come along, this one will die off, and everyone suffering from gluten sensitivity will be burdened with an entirely new disease they need to talk about constantly.

I am sure all my symptoms will miraculously disappear if they say that sugar is causing all my problems. I will immediately grab a loaf of bread to wolf down, and throw out all my foods that have sugar in my house.

Really, Brett are you putting every person in this category simply because you do not believe it to be so?

_Pseudonymous_

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

If your daughter is on a Gluten Free diet and you are testing for Celiac's then the results will come back negative. They need to be on a regular diet to be able to receive accurate results.

Even the biopsy for Celiac's? (just curious)

Not sure about the biopsy, just referencing the blood antibody test.

http://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/

arewethereyet

The good news is in about a year a new fad will come along, this one will die off, and everyone suffereing from gluten sensitivity will be burdened with an entirely new disease they need to talk about constantly.

Not exactly the same, but related: I hope that "red meat is bad for you" cycles back around again. I'd like a slight depression in the price caused by decreased demand.

Back in the day I remember they said
red food dye would kill ya, I quit eating red dye
they then said that grilled meat was full of cancer, I quit eating grilled meat

it then came out that sex causes cancer....................


I went back to dyed burgers on the grill. :drinker:

arewethereyet

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

If your daughter is on a Gluten Free diet and you are testing for Celiac's then the results will come back negative. They need to be on a regular diet to be able to receive accurate results.

Even the biopsy for Celiac's? (just curious)

Not sure about the biopsy, just referencing the blood antibody test.

http://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/

I will look it up too, and follow your link. I think an educated patient is the best kind. :drinker: thanks for the info!

arewethereyet

I know it is the gluten, because I have tested it over the past year and 3 months. At the 6 month mark I ate what I wanted and within one day my hands hurt, by the end of the week my migraines were slamming me.

When I accidently ingest a small amount, nothing really happens.

So, I am no scientific experiment or anything BUT no one is going to tell me that I do not feel better, and cut my meds almost completely since stopping Gluten. No one. :drinker:

I am just wondering if you have been tested (I mean REALLY tested like with a thyroid panel and antibody test) for thyroid disease, some of your symptoms are textbook, especially the foot pain. Celiac Sprue is common in people with thyroid disease, so if you have not had thorough testing (i.e., not just a tsh test, full T4, T3, antibody, etc.) you should ask your Doctor to do it or find one who will. Thyroid disease is progressive, it is best to have thorough testing if you may have it.

Yes. Thank you for asking. I may ask again to be sure of the sub categories you suggested. But I do remember TSH, and antibodies.

_Pseudonymous_

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

If your daughter is on a Gluten Free diet and you are testing for Celiac's then the results will come back negative. They need to be on a regular diet to be able to receive accurate results.

Even the biopsy for Celiac's? (just curious)

Not sure about the biopsy, just referencing the blood antibody test.

http://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/

I will look it up too, and follow your link. I think an educated patient is the best kind. :drinker: thanks for the info!

Totally agree. Just be careful about what you read because you have to trudge through the bad and the good. I can't tell you how much crap I read when I was diagnosed with Hashimoto's. Most of the things I found were trying to sell me on stuff. It was always a relief to find stuff online that were legitimate science.