What YOU should know about GLUTEN SENSITIVITY
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I went to PF Changs once. Tried ordering their gluten free food. The waiter there told me I didnt need it. I was like excuse me, its on the menu, thats what I want. The little effer wouldnt serve it to me.
No tip for you DB.
I just wanted to taste what "gluten free" food tastes like as I highly doubt many people would recognize or know if their food was gluten free.
Similar to when Penn & Teller gave outside hose water to customers in a restaurant and listed it on the menu as from the Swiss Alps or something for $7 or $8 a glass. What was even funnier was when the wait staff brought the customers what they thought was a different type of water, but it was from the same hose and then they were somehow able to determine that one glass of water tasted different and was better than the other.
rice noodles, Tamari-style soy sauce , and veggies. All gluten free.
Now I would probably fall for the Penn and Teller water ruse0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones0 -
I've noticed a pattern in those who fight FOR the gluten existence. I'm not gonna tell what it is though.......:devil:
Please, do tell
nope! nopenopenope! haha
Ahhh, you are no fun! PM me! I would love to know what I have in common with the others (Promise not to get mad)0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones
OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.
I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.
I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?
I am a bit confused really by some of the responses :ohwell:0 -
Well, I am not celiac but I can prove that I am gluten sensitive but the foul smelling gas that is emitted from my bowels when I eat gluten .... take my word for it or come visit after a cheat ... your choice :-)
For those of us that don't have 'wheat intolerance' but get wind because we are ordinary humans .....
Help get rid of bloating by cutting out fizzy drinks and foods that cause wind.
Sit down to eat, don't talk when chewing, don't chew gum and take regular exercise.
For excess wind cut down on foods known to cause wind and bloating, such as: beans onions broccoli cabbage sprouts and cauliflower - but make sure you still get fruit and veg in your diet0 -
1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.
Huh. Well for me, I called "BS" to my son when he suggested I remove gluten just to see, I laughed at him. Pointed out that it is just a fad, no truth or science behind it.
Not eating gluten is one of the hardest things I have ever had to do. I love a hoagie, a plate of pasta. Can do without the cake and muffins, but it is really hard to not be in the party when everyone is eating it.
I did not think in a million years removing any food item would make me feel better, but the truth is it did. I SO didn't believe that gluten was the cause of my problems that after 6 months I went back to eating gluten (slowly- slice of bread here, pasta there) By the end of 2 weeks I as back to higher symptoms.
Some day we will know more thru science I am sure, but for now........for ME.........I will stay away from it and enjoy the side effects of my craziness
There was no implication in my post that I think anyone who avoids certain foods that cause them discomfort is crazy. To me it sounds as if wheat might be an issue for you. If you feel better avoiding it, awesome.
Would you mind telling me what 'better' means? I really am curious.
Yes, certainly, I posted it earlier.
Arthritis pain in hands and feet gone. Migraines with aura reduced significantly (there is a threshold factor here with many things adding to the actual onset of Migraine, so I do not say gluten caused mine, only that removing it reduced the threshold) and my IBS has gotten better.
Mainly though the migraines and arthritis symptoms are the most significant.0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones
OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.
I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.
I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?
I am a bit confused really by some of the responses :ohwell:
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.0 -
Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.
Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.
The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?
http://www.ncbi.nlm.nih.gov/pubmed/23648697
This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.
The problem with the study is it's still self identified (we all know how many hypochondriacs there are out there). I would love to see this study done on people whose medical conditions can be linked to a gluten sensitivity. I know for my wife's condition (postural orthostatic tachycardia syndrome), she has to eat low carb and gluten free. Discussions between a GI, Endo, Cardiologist, Electrophysiologist and POTS specialist all suggested the same diet. While the below is not a study, but the below link is informative in terms of diet for my wife's condition.
http://www.dysautonomiainternational.org/page.php?ID=44
I agree it seems to be more of an indictment of self-diagnosis than anything, although the results re: gluten vs. FODMAPS are interesting.
Personally I continue to be torn on most issues of this kind. I put my faith in science. However I also know what it's like to feel like science hasn't yet arrived at a satisfactory conclusion for a medical issue (I have been diagnosed with fibromyalgia and lupus, but neither diagnosis completely fits). I try not to fall into the mindset of "science must be wrong because of (insert anecdotal evidence here)" but I'm also not ready to write off the issues of a lot of people with genuine symptoms just yet.
Fibromyalgia is of great interest to me. It used to be a diagnosis when no other diagnosis fit, like IBS.
If you as the patient try different things to reduce your pain (from what I hear it is horrible :frown: ) and it works, but no doctor has told you that it will help.......or no scientific studies exist to say so, do you just pop the Lyrica? (not you per se)
It just seems very odd to me that so many people who do not suffer from my issues, can so blatantly insinuate I am a hypochondriac.
It was only 10 years go that Fibromyalgia was thought of the same. Now we have more information, and KNOW it exists!
BTW, you are one of my heroes :drinker:0 -
Bacon. The answer to all of life's problems.
I have celiac and I really appreciate yummy, gluten free recipes like this. The pictures are especially helpful! :flowerforyou:0 -
I have no reason to not believe people that say that being gluten free has improved their health (easier digestion, less headaches etc.) because everyone's body reacts differently to food and if avoiding certain food (while still eating a well balanced diet) makes you feel better than knock yourself out. The only problem I have is when people claim that gluten free is the solution to weight loss. Whatever you avoid in your diet for other health reasons is not going to solve weight problems unless it also results in eating less or perhaps working out more if the food made you so uncomfortable or sick it limited your movement.
Gluten-free isn't the only highly touted "sensitiviity" or "intolerance" to be touted as a weight loss miracle rather than just a valid health concern for some people and it probably will not be last.0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones
OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.
I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.
I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?
I am a bit confused really by some of the responses :ohwell:
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
So, it would make sense to me that I am eating a better diet. If I haven't a piece of bread with the meal, I am indeed eating more chicken or veggies. No muffin, I am eating an apple. Makes sense.
BUT how about when I went into eff it mode due to comments here and other references, and added it back to my diet. The symptoms returned. Psychosomatic?
It certainly doesn't hurt me to not eat the things I have eliminated. I still eat enough fiber, macros are good (when I log them LOL)
What if I have a wheat allergy, how would I know this? Is using the word gluten what is so inflammatory?0 -
This actually completely pisses me off.
I am on the FODMAP diet and I follow it quite strictly.
I'm also gluten intolerant. I have both gene pairs for Celiac disease but my GI biopsy was negative for Celiac. When I eat any food with gluten in it, or food I eat comes in contact with gluten, I become ill for a day or two with pain,bloating, diarrhea, nausea, and fatigue. This is while still following my FODMAP diet.
Pretty sure this study is complete crap and proves nothing.0 -
I have no reason to not believe people that say that being gluten free has improved their health (easier digestion, less headaches etc.) because everyone's body reacts differently to food and if avoiding certain food (while still eating a well balanced diet) makes you feel better than knock yourself out. The only problem I have is when people claim that gluten free is the solution to weight loss. Whatever you avoid in your diet for other health reasons is not going to solve weight problems unless it also results in eating less or perhaps working out more if the food made you so uncomfortable or sick it limited your movement.
Gluten-free isn't the only highly touted "sensitiviity" or "intolerance" to be touted as a weight loss miracle rather than just a valid health concern for some people and it probably will not be last.
I agree, as I didn't lose a pound when I went GF. I waited to get healthier, then went on caloric reduction.
When someone questions how I have lost my weight I NEVER mention gluten. No way. I give them the MFP info, tell them to eat better and exercise more. That is how I lost the weight.0 -
OP: You have your diary open and I refuse to take any type of advice from someone who is not doing the right things to begin with. Please, if you post at least have some experience and be more of an expert in this area.
I have plenty of experience eating gluten. Is that what you mean?0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones
OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.
I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.
I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?
I am a bit confused really by some of the responses :ohwell:
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
So, it would make sense to me that I am eating a better diet. If I haven't a piece of bread with the meal, I am indeed eating more chicken or veggies. No muffin, I am eating an apple. Makes sense.
BUT how about when I went into eff it mode due to comments here and other references, and added it back to my diet. The symptoms returned. Psychosomatic?
It certainly doesn't hurt me to not eat the things I have eliminated. I still eat enough fiber, macros are good (when I log them LOL)
What if I have a wheat allergy, how would I know this? Is using the word gluten what is so inflammatory?
I don't know. I'm sorry, but I think being willing to say "I don't know" is an important part of problem solving. Too many times the chiropractor who refuses to stick with back adjustment or the homeopath suggests the flavor of the month boogeyman. And, to answer your last question, that is why the discussion of gluten has become inflammatory. Many of us recognize this as a trend. We've been down this road before with other foods and their supposed toxicity or miracle properties. Again, step back, rethink what may be really going on, and keep an open mind as the studies come in and give us a clearer picture.
ETA: have you ever been tested for allergies?0 -
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
Methinks you put a little too much faith in conventional/modern medicine, especially when it comes to systemic and neurological disorders (fibro, migraines, etc).
The simple truth of the matter is that modern medicine does not know nearly as much as people think it does, especially in the above two areas. Even the term "migraine" is a catch-all for a number of different subtypes, none of which have any officially known cause. Things like SIDS (and, as mentioned, IBS, and formerly fibro, among other things) are basically fancy terms for "we don't know WTF is going on, but nothing else that we know of fits." It used to be believed that females couldn't even have Autism, or that males could be anorexic (the mental disorder part). Even Celiac has actually been known about for millennia, and only in the past couple of decades have there been anything even remotely reaching a half-decent diagnosis rate (seriously, the Celiac societies are ecstatic to think that diagnostic accuracy will reach 50% a decade from now; that is abysmal).
By all means, work with your doctor to try to find the solve the problem. Just don't expect that there's always a known answer, or that there's some test that can confirm beyond a doubt that you have X disorder. The reality is that such things simply don't (yet) exist for a very large portion of non-communicable diseases/disorders.0 -
Selective science and hypochondria are fun combos...
"Science is wrong because <insert anecdotal observation>
Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?
I have never had a doctor have anything but a very positive reaction to my change in health.
That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.
Edit: typo . . . #problemswithsmartphones
OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.
I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.
I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?
I am a bit confused really by some of the responses :ohwell:
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
So, it would make sense to me that I am eating a better diet. If I haven't a piece of bread with the meal, I am indeed eating more chicken or veggies. No muffin, I am eating an apple. Makes sense.
BUT how about when I went into eff it mode due to comments here and other references, and added it back to my diet. The symptoms returned. Psychosomatic?
It certainly doesn't hurt me to not eat the things I have eliminated. I still eat enough fiber, macros are good (when I log them LOL)
What if I have a wheat allergy, how would I know this? Is using the word gluten what is so inflammatory?
I don't know. I'm sorry, but I think being willing to say "I don't know" is an important part of problem solving. Too many times the chiropractor who refuses to stick with back adjustment or the homeopath suggests the flavor of the month boogeyman. And, to answer your last question, that is why the discussion of gluten has become inflammatory. Many of us recognize this as a trend. We've been down this road before with other foods and their supposed toxicity or miracle properties. Again, step back, rethink what may be really going on, and keep an open mind as the studies come in and give us a clearer picture.
ETA: have you ever been tested for allergies?
First let me say "I don't know" is an acceptable answer.
This is my end result of 3 years of horrid health. For me, this is what makes me feel healthier. I am not sure where to go from this point and the doctors just say "IBS or Migraine, no cure here are some pills" Seriously, until I brought up diet changes not a one suggested it. Yet when I told them what I had been doing they scribbled furiously in the notes. Two of them spoke of on going studies. (Ortho and Neuro),
ETA: I have been tested for all types of allergies. The kind where my entire back and both arms were pricked. Mold and some grass. No food allergies where detected.0 -
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
Methinks you put a little too much faith in conventional/modern medicine, especially when it comes to systemic and neurological disorders (fibro, migraines, etc).
The simple truth of the matter is that modern medicine does not know nearly as much as people think it does, especially in the above two areas. Even the term "migraine" is a catch-all for a number of different subtypes, none of which have any officially known cause. Things like SIDS (and, as mentioned, IBS, and formerly fibro, among other things) are basically fancy terms for "we don't know WTF is going on, but nothing else that we know of fits." It used to be believed that females couldn't even have Autism, or that males could be anorexic (the mental disorder part). Even Celiac has actually been known about for millennia, and only in the past couple of decades have there been anything even remotely reaching a half-decent diagnosis rate (seriously, the Celiac societies are ecstatic to think that diagnostic accuracy will reach 50% a decade from now; that is abysmal).
By all means, work with your doctor to try to find the solve the problem. Just don't expect that there's always a known answer, or that there's some test that can confirm beyond a doubt that you have X disorder. The reality is that such things simply don't (yet) exist for a very large portion of non-communicable diseases/disorders.
Methinks you should read what I wrote0 -
No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.
As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.
Methinks you put a little too much faith in conventional/modern medicine, especially when it comes to systemic and neurological disorders (fibro, migraines, etc).
The simple truth of the matter is that modern medicine does not know nearly as much as people think it does, especially in the above two areas. Even the term "migraine" is a catch-all for a number of different subtypes, none of which have any officially known cause. Things like SIDS (and, as mentioned, IBS, and formerly fibro, among other things) are basically fancy terms for "we don't know WTF is going on, but nothing else that we know of fits." It used to be believed that females couldn't even have Autism, or that males could be anorexic (the mental disorder part). Even Celiac has actually been known about for millennia, and only in the past couple of decades have there been anything even remotely reaching a half-decent diagnosis rate (seriously, the Celiac societies are ecstatic to think that diagnostic accuracy will reach 50% a decade from now; that is abysmal).
By all means, work with your doctor to try to find the solve the problem. Just don't expect that there's always a known answer, or that there's some test that can confirm beyond a doubt that you have X disorder. The reality is that such things simply don't (yet) exist for a very large portion of non-communicable diseases/disorders.
Thank you for saying what I could not seem to put in words. I do not usually get into these discussions, because it is hard to prove that which cannot be proven.0 -
If there were a wheat "allergy," then why would this allergy not be testable like other known allergens? Why wouldn't gluten get a reaction in the IgE skin test?0
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