What YOU should know about GLUTEN SENSITIVITY
Replies
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businessinsider.com?
I guess gluten sensitivity is big business now, huh?
oh you have no idea how much of a business it is, these shep think its cool to be gluten free because there farts smelled funny this time around and they feel the need to be special
little do they know that they are unnecessarily filling the pockets of some con-man who knows better
its really funny, especially if you just sit back and watch them through their money away at the expense of making them feel special0 -
Here we go… another person who tries to tell others that their physical symptoms aren't real.
Do you have Celiacs?
No. I have Crohn's and insulin resistance. Both of which require me to eat gluten free as gluten exacerbates the symptoms of Crohn's and insulin resistance.
Having Crohn's has nothing to do with gluten, nor has gluten been shown to exacerbate it.
Unlike the gluten-free diet for celiac sprue, which has a well-researched basis, and well-demonstrated track record for affecting the underlying mechanisms at work in the disease process, the SCD does not. Bottom line: it may be worth a try (there are plenty of other diets being touted in the marketplace), but do not abandon your conventional treatment, and keep in touch with your doctor.
http://www.ccfa.org/resources/diet-and-nutrition.html
As for insulin resistance and gluten, I can find zero research that shows going gluten-free helps PCOS symptoms.
You are free to your opinions, but not free to make up facts and state them as such.
I really don't care what you have to say or what research you're able to find or not find. You are not a doctor. All of my doctors told me gluten can exacerbate Crohn's and insulin resistance. That is why I eat gluten free.
P.s. You might want to do better research.
Our data support the beneficial effects of gluten-free diets in reducing adiposity gain, inflammation and insulin resistance. The data suggests that diet gluten exclusion should be tested as a new dietary approach to prevent the development of obesity and metabolic disorders.
Source: http://www.ncbi.nlm.nih.gov/pubmed/23253599
Although not all patients respond equally to diet, many simply remove symptom-provoking foods, such as dairy, wheat, corn and certain fruits and vegetables.
Source: http://www.ncbi.nlm.nih.gov/pubmed/20350266
Honest question - how would gluten exacerbate insulin sensitivity? Is it really the gluten that is the issue or is it the fact that gluten happens to be found in higher glycemic carbs? By eliminating gluten, you eliminate those high GI carbs, thus potentially gaining better blood sugar control.0 -
Wow. I need some popcorn...
ETA: gluten free, of course!0 -
Dang, pass the gluten popcorn to me, this is getting goooooooodWow. I need some popcorn...
ETA: gluten free, of course!0 -
OK, so somebody did some "research" and came to a "conclusion." So what? There are tons of studies out there and you can usually find one that supports your opinion, whatever side you're on. :yawn: If somebody feels less bloated (or whatever) when they skip certain foods, then why shouldn't they? People getting gassy from broccoli can go ahead and not eat it - why should we care? I think everyone should just do what works best for them, and not worry about other people's choices. This is what I think YOU should know about minding your OWN BUSINESS.
P.S. People sensitive to FODMAPS have to go gluten free anyway, since gluten containing foods have glucans. What difference does it make whether they say gluten sensitivity or FODMAP intolerance? The result is the same - avoiding gluten containing foods.1 -
Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.
Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.
The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?
http://www.ncbi.nlm.nih.gov/pubmed/23648697
This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.0 -
Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.
Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.
The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?
http://www.ncbi.nlm.nih.gov/pubmed/23648697
This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.
The problem with the study is it's still self identified (we all know how many hypochondriacs there are out there). I would love to see this study done on people whose medical conditions can be linked to a gluten sensitivity. I know for my wife's condition (postural orthostatic tachycardia syndrome), she has to eat low carb and gluten free. Discussions between a GI, Endo, Cardiologist, Electrophysiologist and POTS specialist all suggested the same diet. While the below is not a study, but the below link is informative in terms of diet for my wife's condition.
http://www.dysautonomiainternational.org/page.php?ID=440 -
OK, so somebody did some "research" and came to a "conclusion." So what? There are tons of studies out there and you can usually find one that supports your opinion, whatever side you're on. :yawn: If somebody feels less bloated (or whatever) when they skip certain foods, then why shouldn't they? People getting gassy from broccoli can go ahead and not eat it - why should we care? I think everyone should just do what works best for them, and not worry about other people's choices. This is what I think YOU should know about minding your OWN BUSINESS.
P.S. People sensitive to FODMAPS have to go gluten free anyway, since gluten containing foods have glucans. What difference does it make whether they say gluten sensitivity or FODMAP intolerance? The result is the same - avoiding gluten containing foods.
Do you seriously believe this? Because if so you definitely should avoid doctors and just treat yourself.0 -
I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.
I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.
However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.
And she got better.
I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?
could it be that her diet vastly improved not because gluten was cut out of her diet but because other variables changed in her diet as well?
It's really hard to say. We already were eating pretty healthy to begin with, and, as I said, we had already tried, one by one, to eliminate other things before we took out gluten. Because she was so sick for so long, and is really afraid to be that sick again, she's very cautious about what she eats and we are pretty careful to not cross-contaminate...so I also don't think she is eating gluten (as other posters have mentioned) but just has the placebo effect of thinking that she's not. And on Thanksgiving, she did eat some, and she got sick. I do understand that this has become a total fad diet for many people but I also know we totally DID NOT want to do this because it is a major pain and inconvenience, but it is working and I have my healthy daughter back, and at the end of the day, people can argue all they want but in my house, this is working.0 -
Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.
Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.
The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?
http://www.ncbi.nlm.nih.gov/pubmed/23648697
This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.
The problem with the study is it's still self identified (we all know how many hypochondriacs there are out there). I would love to see this study done on people whose medical conditions can be linked to a gluten sensitivity. I know for my wife's condition (postural orthostatic tachycardia syndrome), she has to eat low carb and gluten free. Discussions between a GI, Endo, Cardiologist, Electrophysiologist and POTS specialist all suggested the same diet. While the below is not a study, but the below link is informative in terms of diet for my wife's condition.
http://www.dysautonomiainternational.org/page.php?ID=44
I agree it seems to be more of an indictment of self-diagnosis than anything, although the results re: gluten vs. FODMAPS are interesting.
Personally I continue to be torn on most issues of this kind. I put my faith in science. However I also know what it's like to feel like science hasn't yet arrived at a satisfactory conclusion for a medical issue (I have been diagnosed with fibromyalgia and lupus, but neither diagnosis completely fits). I try not to fall into the mindset of "science must be wrong because of (insert anecdotal evidence here)" but I'm also not ready to write off the issues of a lot of people with genuine symptoms just yet.0 -
Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.
Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.
The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?
http://www.ncbi.nlm.nih.gov/pubmed/23648697
This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.
The problem with the study is it's still self identified (we all know how many hypochondriacs there are out there). I would love to see this study done on people whose medical conditions can be linked to a gluten sensitivity.
And how do you propose they do this? There are no specific biomarkers for NCGS. The only diagnostic criteria is "symptoms improve when placed on a gluten-free diet".
Which was true for all the subjects in the study.0 -
Well, I am not celiac but I can prove that I am gluten sensitive but the foul smelling gas that is emitted from my bowels when I eat gluten .... take my word for it or come visit after a cheat ... your choice :-)
For those of us that don't have 'wheat intolerance' but get wind because we are ordinary humans .....
Help get rid of bloating by cutting out fizzy drinks and foods that cause wind.
Sit down to eat, don't talk when chewing, don't chew gum and take regular exercise.
For excess wind cut down on foods known to cause wind and bloating, such as: beans onions broccoli cabbage sprouts and cauliflower - but make sure you still get fruit and veg in your diet0 -
I didn't read the link because:
I have proven that there is such a thing. I was sick for 3 years. Serious migraines, IBS, reflux, my knuckles and feet hurt. Sometimes my feet hurt so badly, that I had to wait to walk up my stairs after working a short waitress shift.
The migraines were the worst, as I was unable to function with daily-sometimes 2-3x a day aura's and visual disturbances.
After treating with at least 4 different doctors, and being out on disability, my son suggested I had all the signs of gluten sensitivity. I figured it sure couldn't hurt.
The first thing I noticed after 2 weeks off was that my thumbs didn't hurt, then I realized my feet did not hurt. Both were written off as arthritis or some sort of ritis. This has never come back unless I go into eff it mode and eat gluten.
Then I noticed the IBS and Reflux was getting better-this took much longer to see.
Then the migraines became fewer. I still get them, but not 2-3 a day.
I know it is the gluten, because I have tested it over the past year and 3 months. At the 6 month mark I ate what I wanted and within one day my hands hurt, by the end of the week my migraines were slamming me.
When I accidently ingest a small amount, nothing really happens.
So, I am no scientific experiment or anything BUT no one is going to tell me that I do not feel better, and cut my meds almost completely since stopping Gluten. No one. :drinker:
'When I accidently ingest a small amount, nothing really happens. '
So...you only feel better when you knowingly cut out gluten? Or do you mean only large amounts effect you?
Good point, larger doses seem to have an effect on me. A build up, if you will.
It was stupid of me to try to go back, but reading articles and comments such as in this thread have lead me to say "Oh it is all in my head" and go back to eating bread and pasta. Within a week of build up I am starting my symptoms again.
My mom used to say if we all had a pill to take each morning that kept us healthy and live forever, we would all die. Why I would go back is a SMH moment.
Your question is valid. The conclusion is some people can eat an item manufactured in a factory with peanuts and have no allergic reaction. Yet eat 1 peanut and they are in the ER.
I truly believe that I have an allergy or gluten sensitivity.0 -
1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.
Huh. Well for me, I called "BS" to my son when he suggested I remove gluten just to see, I laughed at him. Pointed out that it is just a fad, no truth or science behind it.
Not eating gluten is one of the hardest things I have ever had to do. I love a hoagie, a plate of pasta. Can do without the cake and muffins, but it is really hard to not be in the party when everyone is eating it.
I did not think in a million years removing any food item would make me feel better, but the truth is it did. I SO didn't believe that gluten was the cause of my problems that after 6 months I went back to eating gluten (slowly- slice of bread here, pasta there) By the end of 2 weeks I as back to higher symptoms.
Some day we will know more thru science I am sure, but for now........for ME.........I will stay away from it and enjoy the side effects of my craziness0 -
1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.
Huh. Well for me, I called "BS" to my son when he suggested I remove gluten just to see, I laughed at him. Pointed out that it is just a fad, no truth or science behind it.
Not eating gluten is one of the hardest things I have ever had to do. I love a hoagie, a plate of pasta. Can do without the cake and muffins, but it is really hard to not be in the party when everyone is eating it.
I did not think in a million years removing any food item would make me feel better, but the truth is it did. I SO didn't believe that gluten was the cause of my problems that after 6 months I went back to eating gluten (slowly- slice of bread here, pasta there) By the end of 2 weeks I as back to higher symptoms.
Some day we will know more thru science I am sure, but for now........for ME.........I will stay away from it and enjoy the side effects of my craziness
You do realize that there are components in wheat other than gluten, right?
You do realize that wheat isn't the only food item that contains gluten, right?
If avoiding wheat alleviates your symptoms, by all means do it. I don't think anyone is suggesting otherwise. But you cannot definitively say that gluten is causing your symptoms (which was the entire point of this study).0 -
I will say this. Gluten continues to deliver - the entertainment!
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1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.
Huh. Well for me, I called "BS" to my son when he suggested I remove gluten just to see, I laughed at him. Pointed out that it is just a fad, no truth or science behind it.
Not eating gluten is one of the hardest things I have ever had to do. I love a hoagie, a plate of pasta. Can do without the cake and muffins, but it is really hard to not be in the party when everyone is eating it.
I did not think in a million years removing any food item would make me feel better, but the truth is it did. I SO didn't believe that gluten was the cause of my problems that after 6 months I went back to eating gluten (slowly- slice of bread here, pasta there) By the end of 2 weeks I as back to higher symptoms.
Some day we will know more thru science I am sure, but for now........for ME.........I will stay away from it and enjoy the side effects of my craziness
There was no implication in my post that I think anyone who avoids certain foods that cause them discomfort is crazy. To me it sounds as if wheat might be an issue for you. If you feel better avoiding it, awesome.
Would you mind telling me what 'better' means? I really am curious.
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Celiac disease is not gluten sensitivity. Totally different thing...because celiac disease is real.
I dont have it, therefore it doesnt exist.0 -
Self-diagnosis is seriously prone to error and harmful, scary business. Misdiagnosis often results in improper health care, including the wrong treatments and lack of care for serious medical conditions. Why, without any background in medicine whatsoever, would you believe yourself to be a superior source of knowledge to a peer-reviewed scientific study or a medical professional? Stop it. And it is especially unacceptable coming from a moderator of the site.
Yes I am a volunteer mod, but only a member just like yourself.
I am not self diagnosed, and have not started to take medication off the black market
All I did was take all the info I had to my doctors, asked if removing this item from my diet could 'hurt' me and of course it cannot.
My neurologist (migraines) said the studies are ongoing. He agreed with me that if the removal of gluten was the only change, it is likely it is helping with my migraine threshold
My gastro tested me for celiac, I had an endo and colonoscopy, and blood test for allergies 1 month AFTER I stopped gluten. I refused to go back on for a month so they could draw my blood again to see if I came back positive. He agreed this change in diet 'could' be helping me, but without the blood test would not confirm. He was, however happy with the results.
The ortho said that he is excited about the information coming around about gluten and it's effect on the body. Mainly the inflammation it can cause. He of course could not confirm removing gluten was the cause of my no longer having pain in my hands and feet, but is hopeful.
Not one doctor of mine said "BS go eat some bread and a muffin!"
So I hope this clears things up. I am a volunteer moderator-and I am indeed not self diagnosed, I have been to many doctors who agree with my issues and that removal of this item will in no way hurt me.0 -
Well, I am not celiac but I can prove that I am gluten sensitive but the foul smelling gas that is emitted from my bowels when I eat gluten .... take my word for it or come visit after a cheat ... your choice :-)
For those of us that don't have 'wheat intolerance' but get wind because we are ordinary humans .....
Help get rid of bloating by cutting out fizzy drinks and foods that cause wind.
Sit down to eat, don't talk when chewing, don't chew gum and take regular exercise.
For excess wind cut down on foods known to cause wind and bloating, such as: beans onions broccoli cabbage sprouts and cauliflower - but make sure you still get fruit and veg in your diet0
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