What YOU should know about GLUTEN SENSITIVITY

ChubbyKazza

Well, I am not celiac but I can prove that I am gluten sensitive but the foul smelling gas that is emitted from my bowels when I eat gluten .... take my word for it or come visit after a cheat ... your choice :-)

For those of us that don't have 'wheat intolerance' but get wind because we are ordinary humans .....

Help get rid of bloating by cutting out fizzy drinks and foods that cause wind.
Sit down to eat, don't talk when chewing, don't chew gum and take regular exercise.

For excess wind cut down on foods known to cause wind and bloating, such as: beans onions broccoli cabbage sprouts and cauliflower - but make sure you still get fruit and veg in your diet

KseRz

Celiac disease is not gluten sensitivity. Totally different thing...because celiac disease is real.

I dont have it, therefore it doesnt exist.

ValGogo

Celiac disease is not gluten sensitivity. Totally different thing...because celiac disease is real.

You just made me giggle.

tkdgirlms

I have a friend in the medical profession and he says those who say they are gluten sensitive, are sensitive to life as everything about us has gluten of some fashion. There is no such thing as gluten sensitivity!

UpEarly

My family (genetically speaking) has tons of celiac. My dad, aunt, brother, and nieces all have been diagnosed as celiacs. (by both small intestine biopsy and blood tests).

Our family LOVES the emergence of the gluten-free trend. We don't care if it real or imaginary because it's opened up so many more options for eating out and buying food at a normal grocery store.

10-15 years ago, it was so hard to be a celiac and be part of 'normal society'. It was nearly impossible to go out to dinner as a family. We couldn't stay at hotels - we always had to rent places with a kitchen so we could prepare our own meals. We had to do most of our shopping at overpriced, natural food stores. My mom had to learn to bake with alternative flours and xanthan gum. Beer was off the menu.

It's so much easier for celiacs now! So, I say bring on the people that practice a gluten-free diet for whatever reason they choose!

ValGogo

in for bacon ....

Me too....move over...

LiftAllThePizzas

It doesn't exist.

This has been proven by the researchers who originally provided evidence of its existence. Their followup research shows that there is no such thing.

http://www.businessinsider.com/gluten-sensitivity-and-study-replication-2014-5

Statistics fail. Any study involving 37 people might show it's highly likely to be falsely diagnosed but doesn't prove that it doesn't exist at all.

Do you even math?

KseRz

It doesn't exist.

This has been proven by the researchers who originally provided evidence of its existence. Their followup research shows that there is no such thing.

http://www.businessinsider.com/gluten-sensitivity-and-study-replication-2014-5

Statistics fail. Any styudy involving 37 people might show it's highly likely to be falsely diagnosed but doesn't prove that it doesn't exist at all.

Do you even math?

No, but I get all my research info from businessinsider.com

:drinker:

poedunk65

Funny thing when I stop eating gluten all the pain in my hands, feet ,etc. went away. I stopped feeling sluggish and no gas!

arewethereyet

Selective science and hypochondria are fun combos...

"Science is wrong because <insert anecdotal observation>

Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?

I have never had a doctor have anything but a very positive reaction to my change in health.

Dragonwolf

"BACKGROUND & AIMS:

Patients with non-celiac gluten sensitivity (NCGS) do not have celiac disease but their symptoms improve when they are placed on gluten-free diets. We investigated the specific effects of gluten after dietary reduction of fermentable, poorly absorbed, short-chain carbohydrates (fermentable, oligo-, di-, monosaccharides, and polyols [FODMAPs]) in subjects believed to have NCGS."

My understanding of this is to test the effects of a low FODMAP diet in subjects believed to be NCGS (non-celiac gluten sensitive). To me, this says nothing of dispelling the idea of NCGS's existence.

...we found no evidence of specific or dose-dependent effects of gluten in patients with NCGS placed diets low in FODMAPs.

I read this as saying that there is no evidence of gluten effects in patients put on a low FODMAP diet.

In all participants, gastrointestinal symptoms consistently and significantly improved during reduced FODMAP intake, but significantly worsened to a similar degree when their diets included gluten or whey protein.

Gluten-specific gastrointestinal effects were not reproduced.

This is confusing to me. On one hand they say gluten increased symptoms, on the other they say they couldn't reproduce effects?

Coincidentally, some of the largest dietary sources of FODMAPs -- specifically bread products -- are removed when adopting a gluten-free diet, which could explain why the millions of people worldwide who swear by gluten-free diets feel better after going gluten-free.

This makes perfect sense to me. Having confirmed IBS, and a low FODMAP diet allegedly reducing IBS symptoms, it makes complete sense that removing gluten and starches from my diet improves my symptoms drastically without having either NCGS nor a wheat allergy.


I'll remain on the fence about this one until more double-blind studies come out; about either NCGS or FODMAPs.

So, in other words, the media is misrepresenting the actual study findings.... yet again.

Go figure...

Science works. Unfortunately, so do yellow journalism and politics.

arewethereyet

Funny thing when I stop eating gluten all the pain in my hands, feet ,etc. went away. I stopped feeling sluggish and no gas!

:drinker:

ValGogo

I've noticed a pattern in those who fight FOR the gluten existence. I'm not gonna tell what it is though.......:devil:

arewethereyet

businessinsider.com?

I guess gluten sensitivity is big business now, huh?

oh you have no idea how much of a business it is, these shep think its cool to be gluten free because there farts smelled funny this time around and they feel the need to be special

little do they know that they are unnecessarily filling the pockets of some con-man who knows better

its really funny, especially if you just sit back and watch them through their money away at the expense of making them feel special

This sheep does not fart and I do not throw my money at anyone. I just don't eat items that contain gluten!

rotill

It doesn't exist.

This has been proven by the researchers who originally provided evidence of its existence. Their followup research shows that there is no such thing.

http://www.businessinsider.com/gluten-sensitivity-and-study-replication-2014-5

Actually, what that study shows is that there might be a lot of different stress factors in food, and that gluten may be one of them, or that gluten may be found in the same types of food as one of them, or that the other stress factors may lead to a reaction to gluten.

That isn't exactly the same as saying gluten sensitivity doesn't exist. What it does say (and I agree with) is that if you have the kind of symptoms which are today considered to be caused by gluten sensitivity, it's a good idea to reconsider your entire diet, and not just the gluten part. It may be that you will be able to tolerate gluten better if you remove other stress factors in your diet.

For us here at MFP, my take on this is that rather than thinking going gluten free is a miracle cure for everything, we should be more conscious about the general diet. To that extent I very much agree that the article is important. As for proving that gluten sensitivity doesn't exist? Nah, not convinced.

KseRz

I went to PF Changs once. Tried ordering their gluten free food. The waiter there told me I didnt need it. I was like excuse me, its on the menu, thats what I want. The little effer wouldnt serve it to me.

No tip for you DB.

I just wanted to taste what "gluten free" food tastes like as I highly doubt many people would recognize or know if their food was gluten free.

Similar to when Penn & Teller gave outside hose water to customers in a restaurant and listed it on the menu as from the Swiss Alps or something for $7 or $8 a glass. What was even funnier was when the wait staff brought the customers what they thought was a different type of water, but it was from the same hose and then they were somehow able to determine that one glass of water tasted different and was better than the other.

arewethereyet

I've noticed a pattern in those who fight FOR the gluten existence. I'm not gonna tell what it is though.......:devil:

Please, do tell

ValGogo

Selective science and hypochondria are fun combos...

"Science is wrong because <insert anecdotal observation>

Psst.....didn't you hear.....science killed God. (gasp)

ValGogo

I've noticed a pattern in those who fight FOR the gluten existence. I'm not gonna tell what it is though.......:devil:

Please, do tell

nope! nopenopenope! haha

Runfaster14

OP: You have your diary open and I refuse to take any type of advice from someone who is not doing the right things to begin with. Please, if you post at least have some experience and be more of an expert in this area.

arewethereyet

I went to PF Changs once. Tried ordering their gluten free food. The waiter there told me I didnt need it. I was like excuse me, its on the menu, thats what I want. The little effer wouldnt serve it to me.

No tip for you DB.

I just wanted to taste what "gluten free" food tastes like as I highly doubt many people would recognize or know if their food was gluten free.

Similar to when Penn & Teller gave outside hose water to customers in a restaurant and listed it on the menu as from the Swiss Alps or something for $7 or $8 a glass. What was even funnier was when the wait staff brought the customers what they thought was a different type of water, but it was from the same hose and then they were somehow able to determine that one glass of water tasted different and was better than the other.

rice noodles, Tamari-style soy sauce , and veggies. All gluten free.

Now I would probably fall for the Penn and Teller water ruse

SunofaBeach14

Selective science and hypochondria are fun combos...

"Science is wrong because <insert anecdotal observation>

Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?

I have never had a doctor have anything but a very positive reaction to my change in health.

That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.

Edit: typo . . . #problemswithsmartphones

arewethereyet

I've noticed a pattern in those who fight FOR the gluten existence. I'm not gonna tell what it is though.......:devil:

Please, do tell

nope! nopenopenope! haha

Ahhh, you are no fun! PM me! I would love to know what I have in common with the others (Promise not to get mad)

arewethereyet

Selective science and hypochondria are fun combos...

"Science is wrong because <insert anecdotal observation>

Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?

I have never had a doctor have anything but a very positive reaction to my change in health.

That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.

Edit: typo . . . #problemswithsmartphones

OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.

I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.

I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?

I am a bit confused really by some of the responses :ohwell:

ChubbyKazza

Well, I am not celiac but I can prove that I am gluten sensitive but the foul smelling gas that is emitted from my bowels when I eat gluten .... take my word for it or come visit after a cheat ... your choice :-)

For those of us that don't have 'wheat intolerance' but get wind because we are ordinary humans .....

Help get rid of bloating by cutting out fizzy drinks and foods that cause wind.
Sit down to eat, don't talk when chewing, don't chew gum and take regular exercise.

For excess wind cut down on foods known to cause wind and bloating, such as: beans onions broccoli cabbage sprouts and cauliflower - but make sure you still get fruit and veg in your diet

arewethereyet

1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.

Huh. Well for me, I called "BS" to my son when he suggested I remove gluten just to see, I laughed at him. Pointed out that it is just a fad, no truth or science behind it.

Not eating gluten is one of the hardest things I have ever had to do. I love a hoagie, a plate of pasta. Can do without the cake and muffins, but it is really hard to not be in the party when everyone is eating it.

I did not think in a million years removing any food item would make me feel better, but the truth is it did. I SO didn't believe that gluten was the cause of my problems that after 6 months I went back to eating gluten (slowly- slice of bread here, pasta there) By the end of 2 weeks I as back to higher symptoms.

Some day we will know more thru science I am sure, but for now........for ME.........I will stay away from it and enjoy the side effects of my craziness

There was no implication in my post that I think anyone who avoids certain foods that cause them discomfort is crazy. To me it sounds as if wheat might be an issue for you. If you feel better avoiding it, awesome.

Would you mind telling me what 'better' means? I really am curious.

Yes, certainly, I posted it earlier.

Arthritis pain in hands and feet gone. Migraines with aura reduced significantly (there is a threshold factor here with many things adding to the actual onset of Migraine, so I do not say gluten caused mine, only that removing it reduced the threshold) and my IBS has gotten better.

Mainly though the migraines and arthritis symptoms are the most significant.

SunofaBeach14

Selective science and hypochondria are fun combos...

"Science is wrong because <insert anecdotal observation>

Out of curiosity, would you suggest that this hypochondriac just go on eating the gluten and suffer the symptoms, because 'science' has not proven that my symptoms were indeed caused by the gluten?

I have never had a doctor have anything but a very positive reaction to my change in health.

That's not the same as a diagnosis. If I were you I'd keep trying to determine what the issue is. The studies above show no evidence of gluten sensitivity, which is definitely not the same as proving it doesn't exist, but it should at least make you question what is really going on.

Edit: typo . . . #problemswithsmartphones

OK, so are you saying I should go ahead and eat the gluten and wait for someone to give me a 'gluten whatever' diagnosis.

I do have diagnosis: Migraine, complicated by aura and visual disturbances, IBS, Reflux (hiatal hernia) and arthritis. All diagnosed with blood tests, xrays, CT scans, MRI, MRA and scopes.

I suppose my biggest issue on the thread is what does it matter if I do not eat gluten. What am I missing other than filler?

I am a bit confused really by some of the responses :ohwell:

No. I'm not saying that you should ignore what your body is telling you. Even if it is completely psychosomatic, and I'm not saying that, but I would continue to search for what is really going on. I had a similar effect from the Fit for Life Diet many years ago, and after reading the refutation of the theory behind it I finally concluded that my improvements were a combination of simply eating better and, perhaps, psychosomatic. I also went through a similar search when I was a kid for my severe allergy and asthma triggers. This area is, for me, very interesting.

As far as the responses in here, they are from both ends of the spectrum and everywhere in between. Typical and definitely to be expected.

arewethereyet

Soo what i took from the original article is that they are arguing the accuracy of self diagnosis as the problem, not a whole lot of concrete evidence to support whether the sensitivity itself exists or not. Just a bunch of manipulation of words by mainstream media. 147 completed the survey. 62% actually had celiac disease and the majority of the rest just seemed like a process of elimination because they didn't meet the proper criteria to be apart of the experiment.

Not to mention an experiment done on 147 people (130 of which are female) and all from Melbourne, Australia.... IMO the trial size is too small, lacks randomization and the majority of the subjects are considered not fit for the study, so it's not 100% valid in my books. I do agree that some self diagnosed gluten sensitivities may actually be caused by allergies or diseases other than gluten, but i don't know if i can agree that the sensitivities don't exist at all. Considering the symptoms i experience, I'm definitely not touching it. Of course because science can't test for it yet it'll probably go back and forth for a while until it can be proved either way. Sort of like she "proved" it one way for so many years and now is trying to take it back.

The body is amazing thing! Far beyond our understanding in many ways that's for sure. Has anyone found any additional peer reviewed articles on this topic ooor?

http://www.ncbi.nlm.nih.gov/pubmed/23648697


This one still has a very small sample size (37) but it seems well controlled, at least to my admittedly untrained eye.

The problem with the study is it's still self identified (we all know how many hypochondriacs there are out there). I would love to see this study done on people whose medical conditions can be linked to a gluten sensitivity. I know for my wife's condition (postural orthostatic tachycardia syndrome), she has to eat low carb and gluten free. Discussions between a GI, Endo, Cardiologist, Electrophysiologist and POTS specialist all suggested the same diet. While the below is not a study, but the below link is informative in terms of diet for my wife's condition.


http://www.dysautonomiainternational.org/page.php?ID=44

I agree it seems to be more of an indictment of self-diagnosis than anything, although the results re: gluten vs. FODMAPS are interesting.

Personally I continue to be torn on most issues of this kind. I put my faith in science. However I also know what it's like to feel like science hasn't yet arrived at a satisfactory conclusion for a medical issue (I have been diagnosed with fibromyalgia and lupus, but neither diagnosis completely fits). I try not to fall into the mindset of "science must be wrong because of (insert anecdotal evidence here)" but I'm also not ready to write off the issues of a lot of people with genuine symptoms just yet.

Fibromyalgia is of great interest to me. It used to be a diagnosis when no other diagnosis fit, like IBS.

If you as the patient try different things to reduce your pain (from what I hear it is horrible :frown: ) and it works, but no doctor has told you that it will help.......or no scientific studies exist to say so, do you just pop the Lyrica? (not you per se)

It just seems very odd to me that so many people who do not suffer from my issues, can so blatantly insinuate I am a hypochondriac.

It was only 10 years go that Fibromyalgia was thought of the same. Now we have more information, and KNOW it exists!

BTW, you are one of my heroes :drinker:

PJPrimrose

Bacon. The answer to all of life's problems.

I have celiac and I really appreciate yummy, gluten free recipes like this. The pictures are especially helpful! :flowerforyou:

NextPage

I have no reason to not believe people that say that being gluten free has improved their health (easier digestion, less headaches etc.) because everyone's body reacts differently to food and if avoiding certain food (while still eating a well balanced diet) makes you feel better than knock yourself out. The only problem I have is when people claim that gluten free is the solution to weight loss. Whatever you avoid in your diet for other health reasons is not going to solve weight problems unless it also results in eating less or perhaps working out more if the food made you so uncomfortable or sick it limited your movement.

Gluten-free isn't the only highly touted "sensitiviity" or "intolerance" to be touted as a weight loss miracle rather than just a valid health concern for some people and it probably will not be last.