What YOU should know about GLUTEN SENSITIVITY

kgibbz

First of all, you probably shouldn't say an issue many people are dealing with doesn't exist. You may really upset some people. Also, this article is stupid because it says "science-it works" at the end but nothing in this article cited science. The subjects were "self-identified" as gluten insensitive. Also they cycled through high-gluten, low-gluten, and no-gluten meals blindly and their urine and stools were monitored for 9 days? Any gluten sensitive (professionally diagnosed) or celiac will tell you that 9 days is not long enough to get an accurate result. To have the tolerance testing you have to have had gluten in your diet for several weeks (at least).The urine and stool testing will only show proteins, ketones and malabsorbtion/malnourishment. If someone thinks they have celiac disease or are gluten intolerant they should see their doctor and not rely on a study published on Business Insider.

cmay89

Oh I am so in, this is gonna be good.

I'm with you on that one. Hello entertainment for the next day or so!

FunkyTobias

No correlation between gluten intake and symptoms at all.

snazzyjazzy21

Bacon. The answer to all of life's problems.

Betcha didn't know lots of bacon has gluten used in preparation...

Betcha I don't care. I LURV gluten!

wtf kinda bacon do you eat? None of the bacon I've ever bought had gluten in it...

psych101

in for bacon ....

EllieB_5

"BACKGROUND & AIMS:

Patients with non-celiac gluten sensitivity (NCGS) do not have celiac disease but their symptoms improve when they are placed on gluten-free diets. We investigated the specific effects of gluten after dietary reduction of fermentable, poorly absorbed, short-chain carbohydrates (fermentable, oligo-, di-, monosaccharides, and polyols [FODMAPs]) in subjects believed to have NCGS."

My understanding of this is to test the effects of a low FODMAP diet in subjects believed to be NCGS (non-celiac gluten sensitive). To me, this says nothing of dispelling the idea of NCGS's existence.

...we found no evidence of specific or dose-dependent effects of gluten in patients with NCGS placed diets low in FODMAPs.

I read this as saying that there is no evidence of gluten effects in patients put on a low FODMAP diet.

In all participants, gastrointestinal symptoms consistently and significantly improved during reduced FODMAP intake, but significantly worsened to a similar degree when their diets included gluten or whey protein.

Gluten-specific gastrointestinal effects were not reproduced.

This is confusing to me. On one hand they say gluten increased symptoms, on the other they say they couldn't reproduce effects?

Coincidentally, some of the largest dietary sources of FODMAPs -- specifically bread products -- are removed when adopting a gluten-free diet, which could explain why the millions of people worldwide who swear by gluten-free diets feel better after going gluten-free.

This makes perfect sense to me. Having confirmed IBS, and a low FODMAP diet allegedly reducing IBS symptoms, it makes complete sense that removing gluten and starches from my diet improves my symptoms drastically without having either NCGS nor a wheat allergy.


I'll remain on the fence about this one until more double-blind studies come out; about either NCGS or FODMAPs.

l3long

They also wonder why participants still experienced distress when both gluten and FODMAPS were removed but many gluten sensitive people will tell you that once their system is aggravated by gluten, it takes time for it to return to normal even if gluten is removed. For me, it usually takes 3-4 days of gluten free eating to recover after having eaten gluten.

EllieB_5

For me, it usually takes 3-4 days of gluten free eating to recover after having eaten gluten.

If I eat starchy/gluten-y foods once a week I never recover fully enough to tolerate large amounts of food. If I really trigger my IBS symptoms it can take at least a week to get under control - a week of very strict liquid dieting. The first time I went gluten/FODMAP-free it took weeks to feel fully normal.

agrafina

In to read later.

l3long

For me, it usually takes 3-4 days of gluten free eating to recover after having eaten gluten.

If I eat starchy/gluten-y foods once a week I never recover fully enough to tolerate large amounts of food. If I really trigger my IBS symptoms it can take at least a week to get under control - a week of very strict liquid dieting. The first time I went gluten/FODMAP-free it took weeks to feel fully normal.

I can certainly believe this. My symptoms are milder than yours and therefore I recover faster.

When I first suspected a food sensitivity, I eliminated all possible trigger foods for 3 weeks before slowly adding them back in one at a time. When I reacted to a food, I eliminated it again and gave myself a week without it before trying to add something new in again. It took a very long time to test everything but it also provided me with very good evidence of what foods bother my digestive system. No, I have not had a biopsy or blood test but I have thoroughly tested myself and I know what I can and cannot comfortably eat. That is good enough for me. Gluten and dairy are my trigger foods. Life is so much more enjoyable when I avoid these why would ever consider going back?

Platform_Heels

Bacon. The answer to all of life's problems.

Betcha didn't know lots of bacon has gluten used in preparation...

Betcha there are brands that don't because my sister has celiacs and can eat bacon

FunkyTobias

They also wonder why participants still experienced distress when both gluten and FODMAPS were removed but many gluten sensitive people will tell you that once their system is aggravated by gluten, it takes time for it to return to normal even if gluten is removed. For me, it usually takes 3-4 days of gluten free eating to recover after having eaten gluten.

Hence the wash-out period. All of the subjects improved after returning to the baseline diet. During the 2nd intervention, they all reported worsening of symptons -- even those who consumed no gluten

This, ladies and germs, is the nocebo effect at work.

FunkyTobias

Gluten-specific gastrointestinal effects were not reproduced.

This is confusing to me. On one hand they say gluten increased symptoms, on the other they say they couldn't reproduce effects?

This was a crossover study. In the first phase there were two participants whose symptoms worsened when consuming gluten, but not with placebo.

The same was true for the second phase.

But they weren't the same two participants.

ChubbyKazza

I know I'll probably upset some people ....... Mostly quacks and charlatans and self diagnosers ............. So what!

" It is not known exactly how many people in the UK have a food allergy. Population studies in the UK using conventional testing procedures suggest that between 1 and 2 people in 100 (1-2%) have a food allergy that can be diagnosed reproducibly, whereas as many as 30 in 100 (20-30%) ‘believe’ themselves to be allergic or intolerant to one or more foods."

http://www.nutrition.org.uk/nutritionscience/allergy/what-is-food-allergy-and-intolerance

A lot of people in the Western World are making a lot of money out of a lot of people - at least 1 in 5 of Americans particularly, and it's getting that way here in the UK too unfortunately - nearly 1 in 3!!!

Oh and most people fart at least 18 times a day! And guess what - like crap it smells!

PS - I've had IBS for 30 + years - I went through the merry go round of eliminating this food and that and was thoroughly miserable doing it - turned out I had a serious illness!

Avoid quacks and charlatans and get properly diagnosed

FunkyTobias

Avoid quacks and charletans and get properly diagnosed

If you suspect you are sensitive to gluten, do NOT eliminate gluten before being tested for celiac. The test relies on detecting antibodies that only arise when gluten is consumed. If you have celiac and eliminate gluten before being tested, you may very well test false-negative.

Spreyton22K

It doesn't exist.

This has been proven by the researchers who originally provided evidence of its existence. Their followup research shows that there is no such thing.

http://www.businessinsider.com/gluten-sensitivity-and-study-replication-2014-5

My Doctors and my body will have to disagree with you and the writer on this one....and I too invite all brave Souls to come our house for the 'fallout' if said gluten is consumed. :explode: :blushing:

DavidSTC

I dunno.

I get bowel-related issues when I have too many wheat products. I wanted to say grains, but really it's wheat. I wonder if it's other stuff in the food other than gluten. It may just be the fillers.

We need more studies about the effects of artificial fillers.

ILiftHeavyAcrylics

First of all, you probably shouldn't say an issue many people are dealing with doesn't exist. You may really upset some people. Also, this article is stupid because it says "science-it works" at the end but nothing in this article cited science. The subjects were "self-identified" as gluten insensitive. Also they cycled through high-gluten, low-gluten, and no-gluten meals blindly and their urine and stools were monitored for 9 days? Any gluten sensitive (professionally diagnosed) or celiac will tell you that 9 days is not long enough to get an accurate result. To have the tolerance testing you have to have had gluten in your diet for several weeks (at least).The urine and stool testing will only show proteins, ketones and malabsorbtion/malnourishment. If someone thinks they have celiac disease or are gluten intolerant they should see their doctor and not rely on a study published on Business Insider.

The first study was published in Gastroenterology.

http://www.ncbi.nlm.nih.gov/pubmed/23648697

Here's the second:

http://ncp.sagepub.com/content/early/2014/04/15/0884533614529163.abstract


Neither was published in Business Insider, that's just where this particular article about those studies was published.

FunkyTobias

It doesn't exist.

This has been proven by the researchers who originally provided evidence of its existence. Their followup research shows that there is no such thing.

http://www.businessinsider.com/gluten-sensitivity-and-study-replication-2014-5

My Doctors and my body will have to disagree with you and the writer on this one....and I too invite all brave Souls to come our house for the 'fallout' if said gluten is consumed. :explode: :blushing:

Every single subject in the study would say the same thing.

And they were wrong.

SunofaBeach14

On second thought, "out for time with wife"

jofjltncb6

In...

...for science...


...and stuff.

arewethereyet

I didn't read the link because:

I have proven that there is such a thing. I was sick for 3 years. Serious migraines, IBS, reflux, my knuckles and feet hurt. Sometimes my feet hurt so badly, that I had to wait to walk up my stairs after working a short waitress shift.

The migraines were the worst, as I was unable to function with daily-sometimes 2-3x a day aura's and visual disturbances.

After treating with at least 4 different doctors, and being out on disability, my son suggested I had all the signs of gluten sensitivity. I figured it sure couldn't hurt.

The first thing I noticed after 2 weeks off was that my thumbs didn't hurt, then I realized my feet did not hurt. Both were written off as arthritis or some sort of ritis. This has never come back unless I go into eff it mode and eat gluten.

Then I noticed the IBS and Reflux was getting better-this took much longer to see.

Then the migraines became fewer. I still get them, but not 2-3 a day.

I know it is the gluten, because I have tested it over the past year and 3 months. At the 6 month mark I ate what I wanted and within one day my hands hurt, by the end of the week my migraines were slamming me.

When I accidently ingest a small amount, nothing really happens.

So, I am no scientific experiment or anything BUT no one is going to tell me that I do not feel better, and cut my meds almost completely since stopping Gluten. No one. :drinker:

snazzyjazzy21

I didn't read the link because:

I have proven that there is such a thing. I was sick for 3 years. Serious migraines, IBS, reflux, my knuckles and feet hurt. Sometimes my feet hurt so badly, that I had to wait to walk up my stairs after working a short waitress shift.

The migraines were the worst, as I was unable to function with daily-sometimes 2-3x a day aura's and visual disturbances.

After treating with at least 4 different doctors, and being out on disability, my son suggested I had all the signs of gluten sensitivity. I figured it sure couldn't hurt.

The first thing I noticed after 2 weeks off was that my thumbs didn't hurt, then I realized my feet did not hurt. Both were written off as arthritis or some sort of ritis. This has never come back unless I go into eff it mode and eat gluten.

Then I noticed the IBS and Reflux was getting better-this took much longer to see.

Then the migraines became fewer. I still get them, but not 2-3 a day.

I know it is the gluten, because I have tested it over the past year and 3 months. At the 6 month mark I ate what I wanted and within one day my hands hurt, by the end of the week my migraines were slamming me.

When I accidently ingest a small amount, nothing really happens.

So, I am no scientific experiment or anything BUT no one is going to tell me that I do not feel better, and cut my meds almost completely since stopping Gluten. No one. :drinker:

'When I accidently ingest a small amount, nothing really happens. '

So...you only feel better when you knowingly cut out gluten? Or do you mean only large amounts effect you?

QuietBloom

1. Celiacs =/= gluten sensitivity.
2. Gluten sensitivity =/= gluten allergy or wheat allergy.
3. Yeah, pretty much the latest studies have shown that people are very bad when it comes to self diagnosis, which is the only way to test for 'gluten sensitivity'. Pretty much, if you *think* you have it, you will think you feel better when you don't eat it.

random_user75

Oh I am so in, this is gonna be good.

Pretty much this.

Off topic, nice photo. My husband has gone absolutely bonkers over Night Vale. He relates bits of the stories to me as if he were talking about people we know. I'm a little concerned (not really).

Now, back to the topic. Gluten!

QuietBloom

No correlation between gluten intake and symptoms at all.

Nice. What year was that done?

ebailey710

Lactose intolerant means that you can't digest lactose. The result is foul smelling gas, loose bowel movements, vomiting, etc. If gluten produces the same symptoms, you would naturally consider yourself to be gluten intolerant. Seems like a simple conclusion.

I agree. I am lactose intolerant, but apparently not to gluten, and people who have issues with gluten complain about similar symptoms to mine.

Also, many people who don't eat gluten don't even know what gluten is. They're just following along with everyone else because it's cool. Like the cottage cheese diet in the 60s....or Atkins.

writer4him

I have found all of these articles that are suddenly coming out very interesting...because about 2 years ago, my (then) 14-year-old daughter started becoming very sick a lot of time time - bloating, diarrhea, vomiting, weight loss, etc. Over the course of those 2 years, we had her tested for everything under the sun - infections, parasites, allergies, etc. and everything came out negative.

I tried to eliminate various things in her diet one by one - processed foods, dairy, high fructose corn syrup - all to no avail - but I did NOT want to eliminate gluten because I knew it would be HARD and I just didn't want to do it.

However, finally, after things escalated to the point where she was down to 96 pounds and I was literally scraping her off the floor every day after she violently threw up and I actually was afraid she would die of malnutrition, we took gluten out of her diet.

And she got better.

I can't believe this is all in her head. But every test says she does not have celiac or an allergy. What gives?

FatFreeFrolicking

Here we go… another person who tries to tell others that their physical symptoms aren't real.

ILiftHeavyAcrylics

No correlation between gluten intake and symptoms at all.

Nice. What year was that done?

If it's from the study in the article it's from 2013.