Candida Infection

Options
124

Replies

  • ninerbuff
    ninerbuff Posts: 48,540 Member
    Options
    SCoil123 wrote: »
    ninerbuff wrote: »
    SCoil123 wrote: »
    I bounce around in my view of "woo". I'd much rather follow the advice of professional organizations who have reviewed the studies and come to thoughtful conclusions, than people who are using anecdotal evidence, intuition and word of mouth. But I also recognize that it takes a while for studies to get done (longer still if there's no benefactor willing to fund those studies), so it's possible that some of this "woo" will eventually be recognized as valuable.

    At the same time I watched a friend with cancer follow what I considered to be dangerous diet advice from another friend (who saw naturopaths almost exclusively), and witnessed the worst possible outcome. I think she straight up starved to death, but at the very least, her malnourishment was a factor in her death. It made me angry. "Woo" can be like a religion for some, emotionally defended, rather than based on evidence. It can be dangerous and deserves to be examined closely when it comes up in the forums.

    Back to Candida in the gut (and I might expand the discussion to include it's frequent friend increased permeability (aka leaky gut)). I just skimmed, but it seemed to be a factor primarily for people who have intestinal inflammation and ulcers. I have some struggles in this area so it's quite interesting to me. I didn't see any mention of these problems in the OPs post (although the fact that her dr ordered the test makes me wonder whether she has also had some problems). Perhaps bloating infers inflammation. I certainly bloat up horribly when I'm having problems.

    I have hashimotos as well as a history of GERD, gallstones, and ulcers. Originally I went in suspecting gallbladder issues because I felt sick similarly to how it felt when my first gallstones were discovered. My health has been problematic for a number of years with auto immune issues that started around the time I turned 30.
    So you only equate your slowed weight loss to "candida infection" and not the other host of health issues you have?

    A.C.E. Certified Personal and Group Fitness Trainer
    IDEA Fitness member
    Kickboxing Certified Instructor
    Been in fitness for 30 years and have studied kinesiology and nutrition

    9285851.png

    Where did I say that? Oh yeah. ..I didn't lol. It may be related as it contributes to bloat and digestive issues for some. I won't really know how it relates until I complete the medication in a few weeks.
    GERD would be your number one issue for digestive issues and not the likely "candida" diagnosis. The point is, don't jump onto a band wagon where the "woo" cause is the issue because of some weak information being put out.

    A.C.E. Certified Personal and Group Fitness Trainer
    IDEA Fitness member
    Kickboxing Certified Instructor
    Been in fitness for 30 years and have studied kinesiology and nutrition

    9285851.png

  • The_Enginerd
    The_Enginerd Posts: 3,982 Member
    edited October 2016
    Options
    Well the proof will be in the pudding John. We'll see if @SCoil123 symptoms clear up after this... I think there's a place for both natural and conventional medicines in this day and age.
    Too many doctors like to pump their patients full of drugs and send them on their way, never really addressing the route cause of their illness.
    That's not really "proof" though. Given:
    • the placebo affect
    • the symptoms could be caused by something else entirely not caught
    • that even if the symptoms do clear, they could have cleared on their own or due to other reasons not controlled for.
    • if the change in diet does legitimately cause symptom resolution, that it was due to a change in the candida levels. Changing to a very restrictive diet has many confounding variables.

    This is why science backed medicine is based on double blind studies, with controlled variables, has sample sizes large enough so a statistically significant result can be found, and the studies are peer reviewed and repeatable. The plural of anecdote is not data.
  • SCoil123
    SCoil123 Posts: 2,108 Member
    Options
    ninerbuff wrote: »
    SCoil123 wrote: »
    ninerbuff wrote: »
    SCoil123 wrote: »
    I bounce around in my view of "woo". I'd much rather follow the advice of professional organizations who have reviewed the studies and come to thoughtful conclusions, than people who are using anecdotal evidence, intuition and word of mouth. But I also recognize that it takes a while for studies to get done (longer still if there's no benefactor willing to fund those studies), so it's possible that some of this "woo" will eventually be recognized as valuable.

    At the same time I watched a friend with cancer follow what I considered to be dangerous diet advice from another friend (who saw naturopaths almost exclusively), and witnessed the worst possible outcome. I think she straight up starved to death, but at the very least, her malnourishment was a factor in her death. It made me angry. "Woo" can be like a religion for some, emotionally defended, rather than based on evidence. It can be dangerous and deserves to be examined closely when it comes up in the forums.

    Back to Candida in the gut (and I might expand the discussion to include it's frequent friend increased permeability (aka leaky gut)). I just skimmed, but it seemed to be a factor primarily for people who have intestinal inflammation and ulcers. I have some struggles in this area so it's quite interesting to me. I didn't see any mention of these problems in the OPs post (although the fact that her dr ordered the test makes me wonder whether she has also had some problems). Perhaps bloating infers inflammation. I certainly bloat up horribly when I'm having problems.

    I have hashimotos as well as a history of GERD, gallstones, and ulcers. Originally I went in suspecting gallbladder issues because I felt sick similarly to how it felt when my first gallstones were discovered. My health has been problematic for a number of years with auto immune issues that started around the time I turned 30.
    So you only equate your slowed weight loss to "candida infection" and not the other host of health issues you have?

    A.C.E. Certified Personal and Group Fitness Trainer
    IDEA Fitness member
    Kickboxing Certified Instructor
    Been in fitness for 30 years and have studied kinesiology and nutrition

    9285851.png

    Where did I say that? Oh yeah. ..I didn't lol. It may be related as it contributes to bloat and digestive issues for some. I won't really know how it relates until I complete the medication in a few weeks.
    GERD would be your number one issue for digestive issues and not the likely "candida" diagnosis. The point is, don't jump onto a band wagon where the "woo" cause is the issue because of some weak information being put out.

    A.C.E. Certified Personal and Group Fitness Trainer
    IDEA Fitness member
    Kickboxing Certified Instructor
    Been in fitness for 30 years and have studied kinesiology and nutrition

    9285851.png

    I'm working with a medical doctor, not jumping on any "woo". I trust my doctor to give me medical advice way more than anyone here. Not meant to be offensive, just truth. I started this post to share experience. I'm not looking for guidance, opinions, or advice. When it comes to my health I have a team of professionals I work with for that.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    edited October 2016
    Options
    CSARdiver wrote: »
    Just checking in here to reply to the people dealing with medical issues. I was extremely incorrectly overtreated with very powerful antibiotics. Then was given another med in reaction to the side effects. It's a long story. But, I was very injured and debilitated. I went from professional dancer to sitting in a chair for six months. I couldn't lie down to sleep (it increased nerve pain in my face), I couldn't eat normally. I didn't know I had developed malabsorption to certain carbohydrates. I was getting sicker and sicker. I was referred to a Rheumatologist because I developed somewhat elevated rheumatoid antibody factor (an inconclusive result, not positive or negative). She helped guide me through the medical injury. Kept a food diary. Tracked my diet and symptoms. Changed my diet. Now, I am doing very well recovering and back to dancing again. I also am taking part in a microbiome study. I don't know about Candida. But, I had dysbiosis of some sort. I was put on a waiting list (I live in Canada) to see a GI specialist. It's a year long wait. I have a couple months left on my wait. I do have scarring in my small intestines (showed on mri).

    You may have better luck contacting a university medical microbiology department. Physician training offers only 1 semester of microbiology and even infectious disease specialists focus on pathogenic strains. You need a medical microbiologist - someone who specializes in gastrointestinal flora in humans/swine. Are you able to do some medical tourism and visit the US?

    Hmm. Thanks for the info. Maybe I could try. I appreciate the info. I'm doing so much better now. Seems I am getting better. Close to all better. But, I will keep an eye on it. That's a good idea. Do you recommend anyone specific? It's ok if you don't know. My Rheumatologist did say that she doesn't think the GI specialist will be helpful. She will probably just want to give me a colonoscopy. At this point I am not sure I want any unnecessary medical procedures. In case something else terrible goes wrong. Eating lots of soluble fiber and cultured foods is helping me.
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Options
    CSARdiver wrote: »
    Just checking in here to reply to the people dealing with medical issues. I was extremely incorrectly overtreated with very powerful antibiotics. Then was given another med in reaction to the side effects. It's a long story. But, I was very injured and debilitated. I went from professional dancer to sitting in a chair for six months. I couldn't lie down to sleep (it increased nerve pain in my face), I couldn't eat normally. I didn't know I had developed malabsorption to certain carbohydrates. I was getting sicker and sicker. I was referred to a Rheumatologist because I developed somewhat elevated rheumatoid antibody factor (an inconclusive result, not positive or negative). She helped guide me through the medical injury. Kept a food diary. Tracked my diet and symptoms. Changed my diet. Now, I am doing very well recovering and back to dancing again. I also am taking part in a microbiome study. I don't know about Candida. But, I had dysbiosis of some sort. I was put on a waiting list (I live in Canada) to see a GI specialist. It's a year long wait. I have a couple months left on my wait. I do have scarring in my small intestines (showed on mri).

    You may have better luck contacting a university medical microbiology department. Physician training offers only 1 semester of microbiology and even infectious disease specialists focus on pathogenic strains. You need a medical microbiologist - someone who specializes in gastrointestinal flora in humans/swine. Are you able to do some medical tourism and visit the US?

    Hmm. Thanks for the info. Maybe I could try. I appreciate the info. I'm doing so much better now. Seems I am getting better. Close to all better. But, I will keep an eye on it. That's a good idea. Do you recommend anyone specific? It's ok if you don't know. My Rheumatologist did say that she doesn't think the GI specialist will be helpful. She will probably just want to give me a colonoscopy. At this point I am not sure I want any unnecessary medical procedures. In case something else terrible goes wrong. Eating lots of soluble fiber and cultured foods is helping me.

    It's so hard to make any sort of an assessment and I'm just speaking in generalities. Rheumatologists are going to be much closer with their specialty in immunological disorders, but would need to conduct a stool/LGI flora analysis, which is where you would want the microbiological expertise. I've worked with Nita Salzman, MD/PhD at the Medical College of Wisconsin - top of her field.

    Antibody factors, like hormones, requires multiple tests over time, so a snapshot is not going to tell you anything. Scarring is also inconclusive as there are several potential root causes that would need to be disproved one by one.

    Good news is that this is not Candida overgrowth.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    edited October 2016
    Options
    CSARdiver wrote: »
    CSARdiver wrote: »
    Just checking in here to reply to the people dealing with medical issues. I was extremely incorrectly overtreated with very powerful antibiotics. Then was given another med in reaction to the side effects. It's a long story. But, I was very injured and debilitated. I went from professional dancer to sitting in a chair for six months. I couldn't lie down to sleep (it increased nerve pain in my face), I couldn't eat normally. I didn't know I had developed malabsorption to certain carbohydrates. I was getting sicker and sicker. I was referred to a Rheumatologist because I developed somewhat elevated rheumatoid antibody factor (an inconclusive result, not positive or negative). She helped guide me through the medical injury. Kept a food diary. Tracked my diet and symptoms. Changed my diet. Now, I am doing very well recovering and back to dancing again. I also am taking part in a microbiome study. I don't know about Candida. But, I had dysbiosis of some sort. I was put on a waiting list (I live in Canada) to see a GI specialist. It's a year long wait. I have a couple months left on my wait. I do have scarring in my small intestines (showed on mri).

    You may have better luck contacting a university medical microbiology department. Physician training offers only 1 semester of microbiology and even infectious disease specialists focus on pathogenic strains. You need a medical microbiologist - someone who specializes in gastrointestinal flora in humans/swine. Are you able to do some medical tourism and visit the US?

    Hmm. Thanks for the info. Maybe I could try. I appreciate the info. I'm doing so much better now. Seems I am getting better. Close to all better. But, I will keep an eye on it. That's a good idea. Do you recommend anyone specific? It's ok if you don't know. My Rheumatologist did say that she doesn't think the GI specialist will be helpful. She will probably just want to give me a colonoscopy. At this point I am not sure I want any unnecessary medical procedures. In case something else terrible goes wrong. Eating lots of soluble fiber and cultured foods is helping me.

    It's so hard to make any sort of an assessment and I'm just speaking in generalities. Rheumatologists are going to be much closer with their specialty in immunological disorders, but would need to conduct a stool/LGI flora analysis, which is where you would want the microbiological expertise. I've worked with Nita Salzman, MD/PhD at the Medical College of Wisconsin - top of her field.

    Antibody factors, like hormones, requires multiple tests over time, so a snapshot is not going to tell you anything. Scarring is also inconclusive as there are several potential root causes that would need to be disproved one by one.

    Good news is that this is not Candida overgrowth.

    Yeah, scarring means something in the past. It doesn't mean anything about this present moment.

    I will get my antibodies tested again.

    Thanks for the info. Very helpful.

    It doesn't really matter what the dysbiosis is exactly. As long as I recover. I was in perfect health before I went to the doctor because I had a slight redness and pain inside my nose. My bacteria culture was completely negative. But, they decided to just try multiple strong antibiotics rather than refer me to an ENT. I did end up going to the US. My husband's best friend is an ENT (my husband is a scientist).

    I know that my Rheumatologist doesn't know about GI issues. But, she is the best doctor I have ever had. I trust her. In this crazy situation of bad doctor experiences. She listens. Understands. Is very educated and knowledgeable. And she learns more after talking with me. And she works to get me referrals. Her husband is my Neurologist. So, they work together to help me. I have severe Neurological pain (it's triggered by foods). They both went to Harvard.

    But, I did have my microbiome tested because I am in a microbiome study. Not sure how helpful that is. But, it's some info.

    Obviously I don't want to get into the details, but after the antibiotics I struggled with Candida in multiple locations (such as skin). I was treated for that. It took a long time. But, eventually got better. Only after my diet changes. Suffering from malabsorption took a serious toll on my health.
  • kshama2001
    kshama2001 Posts: 27,912 Member
    Options
    johnwelk wrote: »
    That's okay. Give it enough time and medicine will catch up with the rest of what people call "woo" around here. They usually do. :wink:
    Another baseless assertion from you. Shall we take a look at what the science says about woo.

    Let's start with homeopathy. Complete and utter nonsesnse, for it to work it would have to break many of the laws of physics and biology. It has failed miserably when studied:
    https://www.mja.com.au/journal/2010/192/8/homeopathy-what-does-best-evidence-tell-us
    http://www.publications.parliament.uk/pa/cm200910/cmselect/cmsctech/45/45.pdf

    Lets move on to acupuncture, another abysmal failure when studied.
    http://journals.lww.com/anesthesia-analgesia/pages/articleviewer.aspx?year=2013&issue=06000&article=00025&type=Fulltext

    How about reiki, pure quackery.
    http://jamanetwork.com/journals/jama/fullarticle/187390. This study is a study of therapeutic touch which is closely related to reiki. It is also by the youngest person to ever get published in JAMA.
    https://www.ncbi.nlm.nih.gov/pubmed/21531671
    We can design instruments that can measure movements that last only a millionth of a second and distances that are a billionth of a billionth of a meter, http://www.eetimes.com/author.asp?section_id=36&doc_id=1328533, yet we cant detect this imaginary human "energy field". Look up the definition of energy and field, these quacks can't even get their scientific terminology correct.

    Shall I go on?

    So, @ronjsteele1, since you are all knowing and have claimed to be a researcher extraordinaire, please do tell me what "woo" will medicine need to catch up with? This ought to be good as I will prove you wrong yet again. I'm sure you'll have your usual long winded ranting excuse as to why you can't produce any evidence.

    I'll repeat it another time because it needs to be heard. There is a department within the NIH, now called the NCCIH. For 30yrs about 2billion taxpayer dollars have been wasted studying pseudoscience, fairies, and magic. Every study has been negative, every study ends up concluding "need for further research." 2 billion taxpayer dollars wasted on nothing. Its time to put it to bed. If it works its called medicine, everything else is pseudoscience and should be discarded.
    http://physics.gmu.edu/wp-content/uploads/2012/08/Measuring-Mythology.pdf

    I've gotten pain relief from acupuncture many times. The most notable occasion was when I worked in a factory and got carpal tunnel. Acupuncture worked for me while the women who had surgery for their carpal tunnel wished they hadn't.

    If "Theatrical Placebo" was going to work on me then I guess Reiki should have as well, yes?

    My last acupuncturist also used a TENS, the first one to do so. I've since bought a TENS and it also works well for pain. Motrin is doing nothing for my back today and I think I will break out the TENS.

  • goldthistime
    goldthistime Posts: 3,214 Member
    Options
    johnwelk wrote: »

    I'll repeat it another time because it needs to be heard. There is a department within the NIH, now called the NCCIH. For 30yrs about 2billion taxpayer dollars have been wasted studying pseudoscience, fairies, and magic. Every study has been negative, every study ends up concluding "need for further research." 2 billion taxpayer dollars wasted on nothing. Its time to put it to bed. If it works its called medicine, everything else is pseudoscience and should be discarded.
    http://physics.gmu.edu/wp-content/uploads/2012/08/Measuring-Mythology.pdf

    I checked out this link today. Scary stuff. Thanks for posting it.

  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    Options
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.
  • SCoil123
    SCoil123 Posts: 2,108 Member
    Options
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    I always prefer the most natural and least invasive treatment first. That's why in this case I tried the diet first. It was just too restrictive for me and I failed so I went back to try the medication. So far some relief with only a few days left and follow up appointment booked.
  • SCoil123
    SCoil123 Posts: 2,108 Member
    Options
    UPDATE: My follow up appointment is coming up Friday and I have 3 days left on the anti fungal meds. The distended belly with painful bloat is gone, the naseau when using the restroom and after eating is usually gone but last night I felt it, and the lower back/pelvic pressure is still present but much better. I finally broke my plateau too. It may or may not be related and I dont care. I just care that Im feeling better and seeing progress again.
  • MommyMeggo
    MommyMeggo Posts: 1,222 Member
    Options
    SCoil123 wrote: »
    I just care that Im feeling better

    Thats all that matters.
  • kshama2001
    kshama2001 Posts: 27,912 Member
    Options
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    Options
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Options
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.

    The problem isn't you or the neurologist, but the system. The problem with medicine is that demand has outpaced supply. Medical professionals have no choice but to employ a "treat 'em and street 'em" practice or they will never survive. Too many patients, too many regulations, too many parties trying to make a buck off of medical practice. Patients need to push back more often and ask informed questions. Sounds like you are doing this and establishing a relationship with your physicians.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    edited October 2016
    Options
    CSARdiver wrote: »
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.

    The problem isn't you or the neurologist, but the system. The problem with medicine is that demand has outpaced supply. Medical professionals have no choice but to employ a "treat 'em and street 'em" practice or they will never survive. Too many patients, too many regulations, too many parties trying to make a buck off of medical practice. Patients need to push back more often and ask informed questions. Sounds like you are doing this and establishing a relationship with your physicians.

    Yes, true. I thought I could trust doctors and that they did their best to heal and not harm. I thought that's what I was supposed to do. But, I understand now how they can prescribe things which can cause great harm. But, I would have been ok if the dermatologist hadn't wrongly prescribed the med when I was just dealing with the side effects from the antibiotics. The med she prescribed is only supposed to be prescribed to people that have moderate to severe non-transient facial redness. I had completely clear and pale skin. I had a slight numbness in my face. But the med she prescribed caused me long term debilitating nerve pain in my face. It was a topical. I had no idea. I thought it was just a face cream. It was when I was dealing with the pain that I was under extreme stress and I couldn't eat or sleep normally. And that's when I got very sick because I was already in recovery from the antibiotics. Any way. It's a very long and kind of complicated story. I was really angry. I'm trying to move past the anger.

    Thanks for understanding and for your help. I really appreciate it. Yeah, I have good doctors now and I am very cautious.
  • CSARdiver
    CSARdiver Posts: 6,252 Member
    Options
    CSARdiver wrote: »
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.

    The problem isn't you or the neurologist, but the system. The problem with medicine is that demand has outpaced supply. Medical professionals have no choice but to employ a "treat 'em and street 'em" practice or they will never survive. Too many patients, too many regulations, too many parties trying to make a buck off of medical practice. Patients need to push back more often and ask informed questions. Sounds like you are doing this and establishing a relationship with your physicians.

    Yes, true. I thought I could trust doctors and that they did their best to heal and not harm. I thought that's what I was supposed to do. But, I understand now how they can prescribe things which can cause great harm. But, I would have been ok if the dermatologist hadn't wrongly prescribed the med when I was just dealing with the side effects from the antibiotics. The med she prescribed is only supposed to be prescribed to people that have moderate to severe non-transient facial redness. I had completely clear and pale skin. I had a slight numbness in my face. But the med she prescribed caused me long term debilitating nerve pain in my face. It was a topical. I had no idea. I thought it was just a face cream. It was when I was dealing with the pain that I was under extreme stress and I couldn't eat or sleep normally. And that's when I got very sick because I was already in recovery from the antibiotics. Any way. It's a very long and kind of complicated story. I was really angry. I'm trying to move past the anger.

    Thanks for understanding and for your help. I really appreciate it. Yeah, I have good doctors now and I am very cautious.

    Good to hear you are OK and doing better.

    The doctors are trying to do their best, but between two competing forces - potential suits and insurance/government regulation and oversight. Physicians are no longer the leaders they used to be and they are now second guessed by insurance professionals. They are pressured to push meds as this is considered to be the most cost effective approach. Just as in medical assessment - focus on the root cause and not the symptom.

    Some of the best physicians I know and going off grid so to speak. They are becoming employees of home associations and working in a cash only basis. No longer taking insurance or government payouts due to the countless and unnecessary regulations.
  • BinaryPulsar
    BinaryPulsar Posts: 8,927 Member
    Options
    CSARdiver wrote: »
    CSARdiver wrote: »
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.

    The problem isn't you or the neurologist, but the system. The problem with medicine is that demand has outpaced supply. Medical professionals have no choice but to employ a "treat 'em and street 'em" practice or they will never survive. Too many patients, too many regulations, too many parties trying to make a buck off of medical practice. Patients need to push back more often and ask informed questions. Sounds like you are doing this and establishing a relationship with your physicians.

    Yes, true. I thought I could trust doctors and that they did their best to heal and not harm. I thought that's what I was supposed to do. But, I understand now how they can prescribe things which can cause great harm. But, I would have been ok if the dermatologist hadn't wrongly prescribed the med when I was just dealing with the side effects from the antibiotics. The med she prescribed is only supposed to be prescribed to people that have moderate to severe non-transient facial redness. I had completely clear and pale skin. I had a slight numbness in my face. But the med she prescribed caused me long term debilitating nerve pain in my face. It was a topical. I had no idea. I thought it was just a face cream. It was when I was dealing with the pain that I was under extreme stress and I couldn't eat or sleep normally. And that's when I got very sick because I was already in recovery from the antibiotics. Any way. It's a very long and kind of complicated story. I was really angry. I'm trying to move past the anger.

    Thanks for understanding and for your help. I really appreciate it. Yeah, I have good doctors now and I am very cautious.

    Good to hear you are OK and doing better.

    The doctors are trying to do their best, but between two competing forces - potential suits and insurance/government regulation and oversight. Physicians are no longer the leaders they used to be and they are now second guessed by insurance professionals. They are pressured to push meds as this is considered to be the most cost effective approach. Just as in medical assessment - focus on the root cause and not the symptom.

    Some of the best physicians I know and going off grid so to speak. They are becoming employees of home associations and working in a cash only basis. No longer taking insurance or government payouts due to the countless and unnecessary regulations.

    It's a little different in Canada. But, we have our own problems. There is a doctor shortage combined with overpopulation in the major city areas. They have to deny referrals as much as possible with waits as long as a year to see a specialist even for something acute. They aren't afraid of overprescribing and getting sued. It's very hard to sue the medical system here. The doctor shortage also means less good doctors at times. My good doctors have all said things like "I know it's really hard to find a good doctor that's accepting patients" and "Well, welcome to our medical system" in response to my difficulties getting correct medical care.
  • deksgrl
    deksgrl Posts: 7,237 Member
    Options
    OP, also try apple cider vinegar (organic) in water. Some people might call it "woo", but it is not harmful, so why not. Tons of at least anecdotal evidence that it helps introduce good bacteria and helps with digestion.
  • CorneliusPhoton
    CorneliusPhoton Posts: 965 Member
    Options
    CSARdiver wrote: »
    CSARdiver wrote: »
    kshama2001 wrote: »
    Not so sure about the "if it works it's called medicine and everything else is pseudoscience". Unless this includes things like preventative medicine. I was in perfect health until I was medically injured. And they just kept wanting to throw more and more meds at me to treat the side effects from the meds I didn't need, and injured me worse and worse. Medicine is very important of course. But, should be used responsibly. We don't need to fix what isn't broken with overkill. And you certainly can't recover from medical injury with more and more meds. But, thankfully I have an intelligent doctor now.

    Ya, my SO's mother is over-medicated. She was on three different benzos a day at one point. smh.

    My Neurologist wanted me to take pain meds. I know it's because he cares. And I don't know what the right thing is. But, after everything I don't want to take meds unless it's actually helping me. I can handle pain.

    I did get some very helpful info in this thread about testing with a university medical microbiologist. I'm going to look further into that option.

    The problem isn't you or the neurologist, but the system. The problem with medicine is that demand has outpaced supply. Medical professionals have no choice but to employ a "treat 'em and street 'em" practice or they will never survive. Too many patients, too many regulations, too many parties trying to make a buck off of medical practice. Patients need to push back more often and ask informed questions. Sounds like you are doing this and establishing a relationship with your physicians.

    Yes, true. I thought I could trust doctors and that they did their best to heal and not harm. I thought that's what I was supposed to do. But, I understand now how they can prescribe things which can cause great harm. But, I would have been ok if the dermatologist hadn't wrongly prescribed the med when I was just dealing with the side effects from the antibiotics. The med she prescribed is only supposed to be prescribed to people that have moderate to severe non-transient facial redness. I had completely clear and pale skin. I had a slight numbness in my face. But the med she prescribed caused me long term debilitating nerve pain in my face. It was a topical. I had no idea. I thought it was just a face cream. It was when I was dealing with the pain that I was under extreme stress and I couldn't eat or sleep normally. And that's when I got very sick because I was already in recovery from the antibiotics. Any way. It's a very long and kind of complicated story. I was really angry. I'm trying to move past the anger.

    Thanks for understanding and for your help. I really appreciate it. Yeah, I have good doctors now and I am very cautious.

    Good to hear you are OK and doing better.

    The doctors are trying to do their best, but between two competing forces - potential suits and insurance/government regulation and oversight. Physicians are no longer the leaders they used to be and they are now second guessed by insurance professionals. They are pressured to push meds as this is considered to be the most cost effective approach. Just as in medical assessment - focus on the root cause and not the symptom.

    Some of the best physicians I know and going off grid so to speak. They are becoming employees of home associations and working in a cash only basis. No longer taking insurance or government payouts due to the countless and unnecessary regulations.

    Yes. "Concierge doctors" are popping up a lot around my area. The up front cost makes it prohibitive to many - you typically pay a bunch up front and get a year of care and routine tests. I came *thisclose* to signing up. But there was a waiting list and wound up going to another off-grid doctor who was pay per visit. The US healthcare system is so sad and frustrating.