can I start a PCOS Vent your frustrations Thread? lol

DoReMiFaSoLaTiDo

my Dr is not even considering hysterectomy... mostly because though I have a LOT of cysts, they disappear ...if only they would STAY gone..... the CT Scan I had last week only showed one on the right.... I have 4 on the left 6 months ago that are now gone... on my next 6 months checkup it will be different numbers on either side... sometimes I get a count of ZERO....

despite wearing 2 extra long "Always" within one hour of being at work today Ive had an "accident"....damn clots!! Last month I took off work... I obviously cant do that every month....


My Dr has suggested uterine ablation surgery but that would only treat ONE symptom...

STRESSED!!

ifiwasurvampire

Hysterectomy shouldn't be an option to "cure" pcos. I am truly thankful I finally have a doc who is willing to listen to what I want instead of telling me bogus ways to help my symptoms. I have however for the pastfew days been getting cramping. Hoping I actually start and its not just a false alarm! Does anyone else have issues with skin tags showing up inn the weirdest spots?
I have shared this with anyone, when I was first diagnosed with pcos and my then gyno didn't expalin what it was. I researched after and told my mother what I had. I thought shed atleast comfort me but she didn't seem to care!
I am also sick of uneducation people saying I overeat! And that's what causes me to be "fat" uh excuse me? I have a hormone disorder thank yoou very much. Ohhh and I love looking like I'm pregnant, that is one symptom I wish would go away! No matter how much weight I lose my stomach doesn't seem to go down blah

astovey

Hysterectomy shouldn't be an option to "cure" pcos. I am truly thankful I finally have a doc who is willing to listen to what I want instead of telling me bogus ways to help my symptoms. I have however for the pastfew days been getting cramping. Hoping I actually start and its not just a false alarm! Does anyone else have issues with skin tags showing up inn the weirdest spots?
I have shared this with anyone, when I was first diagnosed with pcos and my then gyno didn't expalin what it was. I researched after and told my mother what I had. I thought shed atleast comfort me but she didn't seem to care!
I am also sick of uneducation people saying I overeat! And that's what causes me to be "fat" uh excuse me? I have a hormone disorder thank yoou very much. Ohhh and I love looking like I'm pregnant, that is one symptom I wish would go away! No matter how much weight I lose my stomach doesn't seem to go down blah

I remmeber having my first skin tag removed off my back when I was 10, one off my neck when I was 14, and was diagnosed when I was 16...I still have one on my shoulder....
I love (sarcasm) reading bookes telling me that I will not have an hour glass shape and will have an apple shape instead....
Why isn't there more research for PCOS??? It make me angry knowing that there are so many young girls suffering from this and many won't be diagnosed for years/ if ever.

ifiwasurvampire

Astro, google northwestern university pcos study. This is the only credible study I have found that you can participate in. I didn't qualify in my state bc I do not have high levels of male hormones. They do a bunch of diff studies some include children(if you have a daughter) to see if it is genetic. Out of my family I am the only one with pcos. But members in my family have diabetes so that may play a factor.

arosegeo

i hate this, but we can do it, my sister also has it and after much trying she is PREGO! we can beat it!

swest222

It took me 5 yrs of fertility meds and a rollercoaster to have my babies .. some days I thought I wasnt going to be a Mom.
PCOS is horrible, and now I begin my weightloss journey ...

shulaw

dear pcos
please can i have my body back i think you have had it long enough, i hate the facial hair ( is never good when u can grow a beard quicker then your husband) i hate the weight i put on though im slowly reclaiming my body from the fat . the worse thing is knowing i will prob never conceive and that hurts the most you took away the one thing i really wanted i could live with the other symptoms if i could just get pregnant.

my cycles are random, my mood swings are up and down and i have had enough!!

so prepare for war pcos becuase im gunning for you and i will win

shula

mara232

I have PCOS - gained 75lbs in 7 months 12 years ago. I struggled with infertility for 6 years and finally got pregnant with my son after I lost 50lbs. The doctor told my husband and I that IVF was our only hope but we were surprised when I conceived and carried my son to term. I was super healthy all through the pregnancy. With the weight gone - a lot of my symptoms disappeared. I let myself go a year and half back while in school and now am back to trying to getting healthy again. PCOS is a lifestyle change - I will never be able to go back to eating the way I did before. I know that now. Good Luck everyone!

mara232

Btw, the POCS diet is an excellent book, it is what I followed the first time I lost weight and got pregnant with my son. I got pregnant again 3 years later but had a miscarriage at 10 weeks - it can happen to anyone my doctor said and was not due to PCOS. Have faith!

ktanderson05

Dear PCOS,

*kitten* off.

Love,

Allyson

haha I love it! That is how I feel too about PCOS!

mara232

Im sort of in the same boat....I've lost nearly 30 pounds and still haven't seen much improvement other than an ALMOST normal period cycle....it comes every 2 months...but other than that hardly anything different with my symptoms of PCOS...I keep thinking I just have to lose all this weight for anything to happen. So Im gonna keep on truckin! Don't give up either way!

ps...as for cheating...try not to if you can! If you do don't over indulge and only do it once a week....cause it really will set you back. PCOS is NOTORIOUS for doing this. You have to work out longer/harder just to get the same results or less as a normal functioning body:( Good luck to you!

For me it wasn't only the weightloss that did it but they way I lost it. I cut all bad carbs out and made sure I ate a protein with every carb to balance the carb - this is the method described in the PCOS Diet book. It's a lot like clean eating, which I am trying to do now. It's so hard because I am a carb addict.

missziathediva

(awesome thread!)

Dear PCOS
As much as I love not getting my period (no mess or cramps) it sometimes makes me feel less then a woman. I hear my friends talk about how they get there period and I am "Nope not me, I don't get it because I am too fat". Thanks for all the "extra" hair and acne. I am always nervous about wearing light color clothing in thinking that I might just get her.

The only way I get you is by taking provera and I don't feel that I need drugs to bring on my period, but honestly I don't know what that drug is doing to my body. I have lost 31 pounds, you don't think that is enough to come back??

bosslady224

Dear PCOS,

Thanks for all the annoying side effects you brought along with you. The dramatic weight gain, the acne, the hair lose that randomly wants to spring on me every now and then. Thanks for Irregular periods, and increasing my chances of getting high blood pressure and diabetes. Thanks for the pills I have to take that don’t seem to do a thing! (aarrgh I hate taking pills too!). Thanks for pretty much taking my life from me; I spend more time trying to figure out ways to get rid of you instead of just enjoying life. You have truly made me feel so uncomfortable with myself. Oh yea, and Thanks for lowing my percentage of having kids.

Soooo, what I’m really trying to say to you PCOS is, thanks…………….FOR NOTHING!!!!!

Romee14

Dear PCOS,
You sure did sneak up on me, a defenseless child. Everyone was having periods and growing boobs. I was getting hairy and growing acne on my arms and skin tags. Girls were starting to date. I was going bald. Girls would have pool parties, I would cover up as much as possible because of the huge red lines all over my body from gaining weight so fast. Girls were very flirty with the guys, I had a man voice. Eventually I was diagnosed and told I would have problems conceiving. I thought you had got the best of me.

You didn’t. I lost the weight, I shave my arms, got those skin tags cut off, the stretch marks have faded, I can live with the man voice, no more acne and hair lose (thank god for birth control), I even bought myself some boobs, and I don’t want kids (yet). I got married even though you made me think no one would ever want me. I BEAT YOU. WINNING!
,
Allyson

Love it!

I LOVE LOVE this too!!

Mmmie

Dear PCOS,
Thanks for making gain weight and helping in being a Diabetic. Also for the facial hair and the inhabitability to get pregnant. and the change of no period this month.

Asomething

Dear PCOS,

You took 3 babies and several years & tears. BUT we won!! Faith & love saw us through and we now have 3 beautiful babies. I'll deal with the weird periods and facial hair and I'll take down the weight, eventually!!! You wont win!!!!!!!!!!!!!

Amanda

Melroxsox

I have a DR. appointment this coming monday. I am really interested to see what they have to say now that I've lost about 30 pounds..I have all sorts of questions about my metformin dosage as well. WE SHALL SEE! I will post when I have news....if any news at all........lol I know I have a LONG way to go! STAY STRONG CYSTERS!

Giggles27

PCOS>>>I HATE YOU...also would love to be friends with ppl who are dealing with the same issue...I have tons of questions...and really would love the advice

Melroxsox

PCOS>>>I HATE YOU...also would love to be friends with ppl who are dealing with the same issue...I have tons of questions...and really would love the advice

Thanks for the add:) feel free to ask any questions! Im sure there are so many of us that could help!

matwood74

I'm new, and very glad I read this thread. I'm happy to know I'm not alone in my PCOS struggles.
No one understands what it is, or how BAD I feel at times. It's horrible. I'm sorry so many
of you have this too.

hugs,
Michele

Melroxsox

glad you read this thread too! We gotta stick together:):tongue:

TLW77

Dear A**shole aka PCOS

I just want to tell you how much I appreciate the struggles you have put me through for the past 15 years. Thanks for all the missed and painful menstrual cycles, infertility problems(I did eventually get two beautiful children), and the lovely extra hair you thought I needed. The deeper voice and the extra pounds you gave me is also such a pleasure. I was thinking about the disagreements I have had with you twice before about all these "gifts" you share with me. I no longer wanted them but you keep showering me with them. I have decided I no longer need them and this time your not talking me out of it. Just to be perfectly clear, I no longer want your aches and pains, missed cycles, extra hair, deeper voice, and extra 108 lbs on my body. I shut you out of my life 100 days ago and finally have had a reguarly menstrual cycle and have lost lost 45 lbs. Thanks for ruining my last 15 years, but you won't get my next 15 or more years. Goodbye PCOS!

Shannmarrs

I am really glad I found this thread Glad to know I'm not alone...

navajoon

Melroxsox, this is awesome.

Dear PCOS:

Thanks for the beard, which I've had to laser off. Thanks for the lack of periods, which I've had to be on BC pills since I was 14 for. Thanks for the hairloss, which took my beautiful, thick, black hair and transformed it into the thin, gnarly mess I have now. Thanks for the three different prescriptions I have to take for this, which take a giant chunk out of my wallet every three months. And thanks for the fear that someday I won't be able to have kiddos, which I've wanted my whole life.

Man, what a bag of poo you are.

Love,
Nava

PS... Thyroid, you can eat a bowl of ****ens too.

clala82

Why PCOS sucks:

Makes you feel out of whack when you rarely, if ever, have a period. You have facial hair sprout on your chin. Weight gain. Sweating. Insulin resistance. Can't look at a carb without gaining weight. Lack of concentration. Mood swings. Acne. Thinning hair. Infertility. The list goes on and on...PCOS just sucks the big one!

mustnothrowcantelopes

Dearest PCOS ,

I wanted to tell you what a darling, gem of a friend you are , really! You came into my life , unexpectedly, when I was but 14 years old, in the bloom of youth, and took me under your wing. Through my experience you have not only affected my self esteem but my relationship with others!

You guided me to the realization that because I do not get a period, have excessive hair growth on my arms, butt, face, and on my back in patches and the testosterone level of a 16 year old boy, I am not in fact female , but secretly a man, masquerading as a woman. Through your love and care, I have to the realization that depression, BPD and Anxiety are my true friends. My "normal" friends are the enemy. And why bother being at a normal , healthy weight. I need all the extra body mass and insulation I can get. Thank You PCOS , you have made sure that I would 'love' myself just the way that I am and any time that I tried to change that , by losing the smallest bit of weight, I would get a reproachful slap on the stomach or the arm or the thigh.

You have further proven to me that spending money on things such as birth control, diabetic medication, anti-depressants , acupuncture, herbal supplements and going to doctors is a serious waste of my precious time because no matter what I do, it will not work, but once again, YOU will always be there for me! And of course, children, who needs 'em , when we have each other.

Sincerely,
A

mom23nuts

Yeah thanks PCOS for a rocky start to a maiirage where I first discovered you were part of my life at my premarital blood testing and physical.

Thanks for the extra hair where no ladies should have it and the months of no periods thinking I was pregnant taking test after test only to find that it was just my messed up hormones.

You may be a battle I have to fight for the rest of my life, but you will not win the war.

Finaly we have 3 great kids after many false starts and losses and I am SLOWLY reaching my goal weight, no thank to you and all the extras i have to do to lose a lb in comparisson to other ladies!

mericksmom

While I havent been diagnosed for PCOS. I am hormone sensitive I have all the same issues from the MONTHS of not seeing a period to the MONTH long times I do, the cysts that burst on my overies and the ACNE . I CANT even take Birth control to control my hormones because I become psycotic. and I am tired of my DRS thinking that I am there just for MEDS..(I am not a druggy, I do not want to take your drugs...I didnt even wanted to take the BC you put me on..)


I have found Vitex, while not being a cure-all it does help regulate my periods and is a natural suppliment from GNC. I heard about it from the PCOS web site and it helps wonderfully .

Andee08

Dear PCOS,

Thank you for making feel like I am out of my mind half the time. Thank you for ruining great relationships before I realized I had you. Thank you for this 30 pounds that I cant seem to shake. Oh and just to top it off, I blame you for having my sister live with me who has Hyperthyroidism, whom of which thinks it is normal to consume 5,000 calories a day and not gain a single pound. I will beat you no matter how sick the Metformin makes me, how long I have to run for everyday, and how careful I have to be with my diet! I WILL win!

uubulldawg06

dear pcos,
thanks for all the lovely times we have had since i was 15. thanks for finally putting me through enough that my dr decided i had to have a hysterectomy before i got to complete my family. I really am thankful for the one time you were nice to me and allowed me to conceive my precious son, but other than that i HATE you. You have caused so much pain, misery, financial strain, emotional strain, and just complete and utter chaos in my life. I for one am glad i no longer have to deal with you but am constantly mourning the lost of the children i could have had.