can I start a PCOS Vent your frustrations Thread? lol

Melroxsox...Thanks for starting this thread!!! Us cysters need to stick together

Like many of you I was diagnosed with PCOS last year. I put on 30 pounds very fast and found out that was the reason why. PCOS sucks! We can do this!!!

Well i don't have PCOS but I do have a prolactin secreting pituitary adenoma (small mass pressing on my pituitary gland that throws all my female hormones out of whack, prolactin sky high all other hormones non existant). It seems to be a little less common then PCOS but does cause some of the same issues. Especially weight gain and infertility. I've been on medicine for about 2 months now and finally had my first normal realy cycle which I haven't had in over 6 years without being BC. But man let me tell you it was PAINFUL! That is one of the common side effects, horrible TOMs! I will take the pain any day if it allows me to conceive a child!

Blah I'm terrified my daughter will end up with pcos.

I feel the same way. I look at my precious little daughter and worry that she might have to endure the same things as me...and I will feel so guilty if that happens :frown:

PCOS never affected my ability to have children, despite not having regular periods for a decade, Ive managed to be pregnant 6 times with no medical intervention.

But I have a beard, am losing the hair on my head, dark patches between my legs....horrific acne, bacne ( despite my NEVER having either as a teen) never mind the merry-go-round of disappearing & re-appearing ovarian cysts.... and though for the past 24 months, Ive been getting my period on time like clockwork, the physical feeling of passing clots as if I am having another miscarriage several times that week leaves a LOT to be desired.... Oh and I will lose this weight!!

Dear PCOS,

Thank you for letting me gain 100 + pounds in 3 years, and making it nearly impossible to take it off (especially without metformin--too bad the side effects are so brutal that I've nearly *kitten* my pants too many times to count and have had some of the most embarrassing experiences of my life because of it). Thanks for being so difficult to understand and diagnose. Those 3 years I was gaining all that weight? I went to several doctors and had some tests run but was never diagnosed. Also, I appreciate the acne. The BCP's seem to help A LITTLE, but the acne is what killed my self-esteem. Thank you for that slice of humble pie. And let's not forget the facial hair that I wax and pluck on a near-daily basis. My life would not be complete without a beard. The cherry on top? Thank you for the high cholesterol. The several years worth of build up gives me oh-so-pleasant dreams of strokes and heart attacks--fantasies of an early death!

And I REALLY, REALLY can't thank you enough for not being a good enough "excuse" as to why I'm fat. I mean, seriously, when someone thinks I'm pregnant when I'm not, or thinks I'm fat, I can't say I have a metabolic disorder. Because EVERYBODY who is fat "has a metabolic disorder," right? Haha! Joke's on me.

The Luckiest Girl in the World,
Angela

P. f*ckin' S. Thank you for stealing the dreams of people I love, my cysters, who have been TTC for over a decade. Thank you for letting them suffer through several heartbreaking miscarriages, painful and costly fertility treatments, and for generally snatching their prayers from god's sight.

Also, ifiwasurvampire, are you getting a hysterectomy to remove your cyst-riddled ovaries in attempt to "cure" PCOS, or is it for other reasons? I know that's a personal question, but if you're trying to cure PCOS by getting rid of your ovaries, you may want to do some more research. Cystic ovaries are a SYMPTOM of the disease, NOT the CAUSE. I say this because I care, and I don't know what you know. I'm not trying to be a miss know-it-all. I say this because I care.

I'm not positive if it was the birth control or losing weight, maybe both, just glad to not have them anymore

PCOS causes the dark patches because that is where your body is storing isulan it can't use...or won't use. Sigh....mine are fading though.

Dear PCOS,

I beat you by having a child they said I would never have...you beat me when you took away the 2nd one I was carrying at 5 months. I hate you, but you will not win!

Thanks but no thanks
ME

Dear PCOS,

I hate that you took away any feelings of femininty I had.. and helped to make me obese with such a struggle to lose it.
I hate dealing with your symptoms daily.. it's tiring and sometimes exhausting. I hate you for making me so uncomfortable in public and so much less social than I used to be!

Juls

PS- I never even realized I had PCOS. It took me a year and a half to get pregnant with first child, who was born 3 months premature. When he was 4 we decided to try again.. took 7 years this time. I never tried anything.. never went to doctors to find out why it never happened. I thought I had one who was lucky to survive so if I had another fine, if not at least I had my first. So now I am about to hit 40 and have a 14 year old and a 3 year old! And hubby has a vesectomy just in case.. cuz those pregnancies were tough and wore me out!

Thank you for the concern. Thankfully I do not have cystic ovaries so that is not the reason. I have chosen to have a partial hysterectomy bc 1 I am fixed, I can not have any more children. 2 I am sick of taking provera in order to have a cycle and I do not want to relie on this medicine for the rest of my life. And 3 I am removing my uterus to decrese my chance of getting endometrial cancer, the longer you go without a cylce the higher the chance. My gyno is a life saver, so far the only one that seems to care what I want and not say I'm too young. Hell I've had my tubes tied since june 27th 2008. 7 days after I turned 21! There's no point in keeping the uterus if I do not need it. Plus ill love not worrying about even getting a cycle. Don't get me wrong I hate doing this and I'm terrified of being put under. But its the best choice right now. If my cycle becomes normal before june then maybe ill cancell the surgery, but that most likely won't happen. Even with normal cycles for me comes severe pain where I can't function to care for my disabled daughter. This surgery was the last resort for me. I am sick of under going laparscopic surgeries, saline ultrasounds, vag ultrasounds and uterine biopsies. Ahhh I'm rambling. I hope you can understand what I am trying to say. I absolutely despise pcos!

To be completely honest, I would do the exact same thing if I were in the position you seem to be in. My best wishes to you. I have hear A LOT, and I really mean A LOT, of women who think that getting hysterectomies will cure PCOS. OH.MY. GOD. I wish it were only that simple. I'd be under the knife ASAP.

I'm new to MyFitnessPal. Not new to PCOS. I just wanted to say that a hyseterectomy will protect you from uterine cancer but it will not remove PCOS. Even a full hysterectomy will not do that. I'm trying my darndest to beat the ***** that is PCOS with diet and excercise and I'm also taking Victoza. Just got completely serious about it recently. Best wishes to all of you. It is a horrific disorder that no one but someone who has it understands.

I was recently diagnosed with PCOS and it was a slap in the face. I finally decided to get back on the site and do something about it. I am told that for every 10% of my weight I lose, my symptoms will get better. Well, 1 more pound and I will have lost my original 10%... I do not see any signs of improvement.

I am really struggling with losing the weight. If I even "cheat" for a weekend I gain back any of the weight I lost for the week. I am told to treat myself as if I were "pre-diabetic". I have been severely limiting my carb intake. I hope to limit the amount of sugar next (one step at a time). I am not on any medications for the PCOS symptoms.

Any advice would help...

Thank you!!