so hungryyyyyyyyyyy

1246

Replies

  • amtyrell
    amtyrell Posts: 1,447 Member
    You were eating something to gain the weight you can eat that same thing just a bit less of it to lose the weight. 2lbs might be too agressive better to aim at 1lb and do it.
  • CharlieBeansmomTracey
    CharlieBeansmomTracey Posts: 7,682 Member
    thanks for your reply, I think I have very little stomach acid, not too much
    was advised a while ago for digestive enzymes but suggestion came with several others, and I want to know if what I add in is helping so want to add one thing at a time to be sure
    I was put on meds a couple months ago, not sure exactly what for, my memory is shocking so, might be worth checking that first but, not helped much :blush:
    God bless you
    xoxox

    only way to know its to get a scope done.Im glad I got mine done though. I was having such stomach issues and couldnt understand why. now I do.
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    amtyrell wrote: »
    You were eating something to gain the weight you can eat that same thing just a bit less of it to lose the weight. 2lbs might be too agressive better to aim at 1lb and do it.

    Thanks for your reply, I am eating less, just not losing weight, one week I lose the next I gain. Considering keto coffee for breakfast but, not sure how my body will cope with the coffee and fat https://draxe.com/recipe/keto-coffee-recipe/ only trying will tell, but not today as woke late due to a rough night so early lunch
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    thanks for your reply, I think I have very little stomach acid, not too much
    was advised a while ago for digestive enzymes but suggestion came with several others, and I want to know if what I add in is helping so want to add one thing at a time to be sure
    I was put on meds a couple months ago, not sure exactly what for, my memory is shocking so, might be worth checking that first but, not helped much :blush:
    God bless you
    xoxox

    only way to know its to get a scope done.Im glad I got mine done though. I was having such stomach issues and couldnt understand why. now I do.

    Thanks for replying. I am glad you got to the cause of yours, sadly a scope isnt safe for me due to a genetic condition as risk the scope will rupture however, doctor is sure its MCAD which makes sense, and fits the picture its just working the plan of food I can cope with out, to keep retrying in smaller quantities, or to let that food go Recommencing ketogenic when I return from my sisters funeral but, first need to use the meals carers have frozen for me

    Baby steps

    God bless you
    xoxox
  • try2again
    try2again Posts: 3,562 Member
    amtyrell wrote: »
    You were eating something to gain the weight you can eat that same thing just a bit less of it to lose the weight. 2lbs might be too agressive better to aim at 1lb and do it.

    Thanks for your reply, I am eating less, just not losing weight, one week I lose the next I gain. Considering keto coffee for breakfast but, not sure how my body will cope with the coffee and fat https://draxe.com/recipe/keto-coffee-recipe/ only trying will tell, but not today as woke late due to a rough night so early lunch
    xoxox

    Sounds like you might benefit from this thread:
    http://community.myfitnesspal.com/en/discussion/10084670/it-is-unlikely-that-you-will-lose-weight-consistently-i-e-weight-loss-is-not-linear/p1

    Add medical conditions in to a process that already experiences several natural fluctuations, and consistency and patience become all the more important when it comes to gauging results. Don't assume a particular food or calorie level is causing you to gain weight based a a few weeks of data.
  • CharlieBeansmomTracey
    CharlieBeansmomTracey Posts: 7,682 Member
    thanks for your reply, I think I have very little stomach acid, not too much
    was advised a while ago for digestive enzymes but suggestion came with several others, and I want to know if what I add in is helping so want to add one thing at a time to be sure
    I was put on meds a couple months ago, not sure exactly what for, my memory is shocking so, might be worth checking that first but, not helped much :blush:
    God bless you
    xoxox

    only way to know its to get a scope done.Im glad I got mine done though. I was having such stomach issues and couldnt understand why. now I do.

    Thanks for replying. I am glad you got to the cause of yours, sadly a scope isnt safe for me due to a genetic condition as risk the scope will rupture however, doctor is sure its MCAD which makes sense, and fits the picture its just working the plan of food I can cope with out, to keep retrying in smaller quantities, or to let that food go Recommencing ketogenic when I return from my sisters funeral but, first need to use the meals carers have frozen for me

    Baby steps

    God bless you
    xoxox

    yes but keto is low carb high fat.if you have gallbladder issues(or dont have one I cant remember if you said) then high fat is going to make you miserable. I would do low carb, moderate fat and protein. you dont have to be keto low in carbs,but anything under 150g is low carb.keto is under 50 net grams. its going to be hard for you to find a way or eating due to all your health issues,which I feel for you.talk to your doctor and see if they can find a registered dietitian who can work with you and help you figure out how to work things out food wise(if you havent done this already). there has to be something out there you can do without suffering one way or another.
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    try2again wrote: »
    amtyrell wrote: »
    You were eating something to gain the weight you can eat that same thing just a bit less of it to lose the weight. 2lbs might be too agressive better to aim at 1lb and do it.

    Thanks for your reply, I am eating less, just not losing weight, one week I lose the next I gain. Considering keto coffee for breakfast but, not sure how my body will cope with the coffee and fat https://draxe.com/recipe/keto-coffee-recipe/ only trying will tell, but not today as woke late due to a rough night so early lunch
    xoxox

    Sounds like you might benefit from this thread:
    http://community.myfitnesspal.com/en/discussion/10084670/it-is-unlikely-that-you-will-lose-weight-consistently-i-e-weight-loss-is-not-linear/p1

    Add medical conditions in to a process that already experiences several natural fluctuations, and consistency and patience become all the more important when it comes to gauging results. Don't assume a particular food or calorie level is causing you to gain weight based a a few weeks of data.

    Thanks so much, am bushed so will read tomorrow

    God bless you
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    thanks for your reply, I think I have very little stomach acid, not too much
    was advised a while ago for digestive enzymes but suggestion came with several others, and I want to know if what I add in is helping so want to add one thing at a time to be sure
    I was put on meds a couple months ago, not sure exactly what for, my memory is shocking so, might be worth checking that first but, not helped much :blush:
    God bless you
    xoxox

    only way to know its to get a scope done.Im glad I got mine done though. I was having such stomach issues and couldnt understand why. now I do.

    Thanks for replying. I am glad you got to the cause of yours, sadly a scope isnt safe for me due to a genetic condition as risk the scope will rupture however, doctor is sure its MCAD which makes sense, and fits the picture its just working the plan of food I can cope with out, to keep retrying in smaller quantities, or to let that food go Recommencing ketogenic when I return from my sisters funeral but, first need to use the meals carers have frozen for me

    Baby steps

    God bless you
    xoxox

    yes but keto is low carb high fat.if you have gallbladder issues(or dont have one I cant remember if you said) then high fat is going to make you miserable. I would do low carb, moderate fat and protein. you dont have to be keto low in carbs,but anything under 150g is low carb.keto is under 50 net grams. its going to be hard for you to find a way or eating due to all your health issues,which I feel for you.talk to your doctor and see if they can find a registered dietitian who can work with you and help you figure out how to work things out food wise(if you havent done this already). there has to be something out there you can do without suffering one way or another.

    Thanks, trouble is nothing is sustainable, that is why my GP doesnt go at me as she gets that I cant low carb high fat, I cant eat typical western diet, and low carb low fat moderate protein means I am around 900 cals a day

    Hopefully will find a way

    Keep persevering

    God bless you
    xoxox
  • jerb00
    jerb00 Posts: 155 Member
    So sorry to hear about your sister.
  • SLLRunner
    SLLRunner Posts: 12,942 Member
    I read another post where you mentioned you were aiming for a 2 pound a week weight lost. Since you're hungry consider adjusting it to 1 pound or 0.5 pounds and see how you feel :) you'll be able to eat more food.

    Thanks for your reply, I dont know how to adjust it, but I have over 200 lbs to lose and need to lose it as fast as safely possible as I need brain surgery
    xoxox

    Hi Victorious,

    I've been following along here, and it certainly sounds as if you are going through some struggles.

    If you need to lose the weight for brain surgery, and you need to lose it quickly, it seems to me that your doctor should have you working with closely with a dietitian to accomplish this. It seems to me you basically said upstream that the doctor and dietitians don't know how to help you with your weight loss journey, but if it's for surgery they have a duty to help you because the risk of losing weight is less than the risk of staying obese and not being able to have surgery.
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    jerb00 wrote: »
    So sorry to hear about your sister.

    Thank you
    It was a shock, no warning as sudden deaths are so a long wait for coroner report by time all sorted be a month since she has died which feels hard but, God in His wisdom is sustaining me thankfully
    God bless you
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    SLLRunner wrote: »
    I read another post where you mentioned you were aiming for a 2 pound a week weight lost. Since you're hungry consider adjusting it to 1 pound or 0.5 pounds and see how you feel :) you'll be able to eat more food.

    Thanks for your reply, I dont know how to adjust it, but I have over 200 lbs to lose and need to lose it as fast as safely possible as I need brain surgery
    xoxox

    Hi Victorious,

    I've been following along here, and it certainly sounds as if you are going through some struggles.

    If you need to lose the weight for brain surgery, and you need to lose it quickly, it seems to me that your doctor should have you working with closely with a dietitian to accomplish this. It seems to me you basically said upstream that the doctor and dietitians don't know how to help you with your weight loss journey, but if it's for surgery they have a duty to help you because the risk of losing weight is less than the risk of staying obese and not being able to have surgery.

    Thank you for your reply

    ha you would think so wouldnt you but it seems that isnt how the NHS service works Illogical I say esp as we have had two years of being able to watch and wait Strange system :-(
    God bless you
    xoxox
  • frannieshack
    frannieshack Posts: 327 Member
    kaizaku wrote: »
    Having fibre in your meals will help you stay bit full. But, I suggest you ease into the whole diet. Doing a drastic change overnight will do more harm than good. Whole life habits of eating can't be easily undone over night.

    Yes, this. Your body is not used to this calorie restriction yet, this is temporary. You could ease into it, or hang tough for a couple of days while you adjust. If you want to stick it out, this is what works for me. Personally, I start off with a 24 hour fast, to reset my system. My 24 hour fast: I eat dinner day 1, and have water only until dinner day 2. Generally to fight hunger try to drink water and more water, chew gum, break your meals down into smaller and more frequent meals.

    Don't be so hard on yourself, don't let it get you down! You can do it!
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.
  • CharlieBeansmomTracey
    CharlieBeansmomTracey Posts: 7,682 Member
    kaizaku wrote: »
    Having fibre in your meals will help you stay bit full. But, I suggest you ease into the whole diet. Doing a drastic change overnight will do more harm than good. Whole life habits of eating can't be easily undone over night.

    Yes, this. Your body is not used to this calorie restriction yet, this is temporary. You could ease into it, or hang tough for a couple of days while you adjust. If you want to stick it out, this is what works for me. Personally, I start off with a 24 hour fast, to reset my system. My 24 hour fast: I eat dinner day 1, and have water only until dinner day 2. Generally to fight hunger try to drink water and more water, chew gum, break your meals down into smaller and more frequent meals.

    Don't be so hard on yourself, don't let it get you down! You can do it!

    you dont reset your system,your body is not a computer you cant reset it. and she doesnt have to do this kind of fast.she has to find what works for her in order to lose the weight.having the health issues she does I would probably say fasting like this would not be a good idea for her.
  • SLLRunner
    SLLRunner Posts: 12,942 Member
    kaizaku wrote: »
    Having fibre in your meals will help you stay bit full. But, I suggest you ease into the whole diet. Doing a drastic change overnight will do more harm than good. Whole life habits of eating can't be easily undone over night.

    Yes, this. Your body is not used to this calorie restriction yet, this is temporary. You could ease into it, or hang tough for a couple of days while you adjust. If you want to stick it out, this is what works for me. Personally, I start off with a 24 hour fast, to reset my system. My 24 hour fast: I eat dinner day 1, and have water only until dinner day 2. Generally to fight hunger try to drink water and more water, chew gum, break your meals down into smaller and more frequent meals.

    Don't be so hard on yourself, don't let it get you down! You can do it!

    you dont reset your system,your body is not a computer you cant reset it. and she doesnt have to do this kind of fast.she has to find what works for her in order to lose the weight.having the health issues she does I would probably say fasting like this would not be a good idea for her.

    I concur with this.
  • SLLRunner
    SLLRunner Posts: 12,942 Member
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?
  • JenniferSchaffer1
    JenniferSchaffer1 Posts: 69 Member
    i know how you feel you can add me as a friend and we can talk if you would like.
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    kaizaku wrote: »
    Having fibre in your meals will help you stay bit full. But, I suggest you ease into the whole diet. Doing a drastic change overnight will do more harm than good. Whole life habits of eating can't be easily undone over night.

    Yes, this. Your body is not used to this calorie restriction yet, this is temporary. You could ease into it, or hang tough for a couple of days while you adjust. If you want to stick it out, this is what works for me. Personally, I start off with a 24 hour fast, to reset my system. My 24 hour fast: I eat dinner day 1, and have water only until dinner day 2. Generally to fight hunger try to drink water and more water, chew gum, break your meals down into smaller and more frequent meals.

    Don't be so hard on yourself, don't let it get you down! You can do it!

    you dont reset your system,your body is not a computer you cant reset it. and she doesnt have to do this kind of fast.she has to find what works for her in order to lose the weight.having the health issues she does I would probably say fasting like this would not be a good idea for her.

    thanks lovely

    fasting would be detrimental for me, thankfully I know this so wont attempt it

    finding my own ok is the key, right now using up whats in house, then when I return from sisters funeral a new plan step by step until find the key, biggest meal for me is breakfast never know what to have

    God bless you
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    SLLRunner wrote: »
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?

    Thanks for your reply, I am commenting here because the NHS is yes the one in England being referred to however, if one doctor does not work for you does not mean you find another. To see any specialist under the NHS system your GP has to refer you, if they feel indifferent, or it would be pointless because as in my case need surgery on my shoulder, and my brain but until I lose weight neither will be done, unless the tumour in my head grows and costs me my sight then they will operate Sadly no one wants to spend the resources getting me well, it is sadly common place in the system We dont have the choice to go elsewhere, it is GP referal or private which I cant afford, and most cant, and insurance in this country wont cover existing conditions so that means no medical care options privately for me Tough but sadly most people outside NHS systems really dont understand the restrictions (not minimising the blessings of it however by acknowledging the limits!
    God bless you
    xoxox
  • CharlieBeansmomTracey
    CharlieBeansmomTracey Posts: 7,682 Member
    SLLRunner wrote: »
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?

    Thanks for your reply, I am commenting here because the NHS is yes the one in England being referred to however, if one doctor does not work for you does not mean you find another. To see any specialist under the NHS system your GP has to refer you, if they feel indifferent, or it would be pointless because as in my case need surgery on my shoulder, and my brain but until I lose weight neither will be done, unless the tumour in my head grows and costs me my sight then they will operate Sadly no one wants to spend the resources getting me well, it is sadly common place in the system We dont have the choice to go elsewhere, it is GP referal or private which I cant afford, and most cant, and insurance in this country wont cover existing conditions so that means no medical care options privately for me Tough but sadly most people outside NHS systems really dont understand the restrictions (not minimising the blessings of it however by acknowledging the limits!
    God bless you
    xoxox

    and here I thought health care in the US was a joke,sorry you have to deal with this stupid way of so called healthcare
  • seska422
    seska422 Posts: 3,217 Member
    edited April 2017
    Bottom line: you need surgery and can't get surgery until you lose weight.

    Your #1 priority is to lose the weight, no matter how you get there. Don't put up roadblocks for yourself by worrying about "processed" or "natural" or any food restrictions that aren't directly related to your health issues. Log everything that you consume that has calories before you consume it so that you can adjust your portion or choose something else before you eat or drink it. Measure as accurately as you possibly can, preferably with a food scale but at least with measuring cups/spoons. Double-check the MFP entries that you use for accuracy because they are mostly user-entered and may be inaccurate.

    You need to be persistent and consistent. You won't be perfect (no one is) but hop right back on the wagon if you fall off.

    It's hard but you can do it.
  • SLLRunner
    SLLRunner Posts: 12,942 Member
    SLLRunner wrote: »
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?

    Thanks for your reply, I am commenting here because the NHS is yes the one in England being referred to however, if one doctor does not work for you does not mean you find another. To see any specialist under the NHS system your GP has to refer you, if they feel indifferent, or it would be pointless because as in my case need surgery on my shoulder, and my brain but until I lose weight neither will be done, unless the tumour in my head grows and costs me my sight then they will operate Sadly no one wants to spend the resources getting me well, it is sadly common place in the system We dont have the choice to go elsewhere, it is GP referal or private which I cant afford, and most cant, and insurance in this country wont cover existing conditions so that means no medical care options privately for me Tough but sadly most people outside NHS systems really dont understand the restrictions (not minimising the blessings of it however by acknowledging the limits!
    God bless you
    xoxox

    I am so sorry.
  • jgnatca
    jgnatca Posts: 14,464 Member
    It seems to me it would be a shorter list of what you can eat/tolerate/afford.

    I might have some breakfast suggestions if you make up a short list.

    I suspect bulletproof coffee will set off your gall bladder.
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    SLLRunner wrote: »
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?

    Thanks for your reply, I am commenting here because the NHS is yes the one in England being referred to however, if one doctor does not work for you does not mean you find another. To see any specialist under the NHS system your GP has to refer you, if they feel indifferent, or it would be pointless because as in my case need surgery on my shoulder, and my brain but until I lose weight neither will be done, unless the tumour in my head grows and costs me my sight then they will operate Sadly no one wants to spend the resources getting me well, it is sadly common place in the system We dont have the choice to go elsewhere, it is GP referal or private which I cant afford, and most cant, and insurance in this country wont cover existing conditions so that means no medical care options privately for me Tough but sadly most people outside NHS systems really dont understand the restrictions (not minimising the blessings of it however by acknowledging the limits!
    God bless you
    xoxox

    and here I thought health care in the US was a joke,sorry you have to deal with this stupid way of so called healthcare

    bless you
    yes the belief in the US of free healthcare in the UK does not quite happen in the way its assumed, but that goes with a very different health system in the US being the basis for making assumptions for what we can and cant get For us we cant swap doctors too often, if we Dr swap or hop they start questioning why ;-) and many GP do not get the intricate issues as my doctor would say, and has many times said, including yesterday when saying someone suggested a soemac for my breathing issues as struggling with bipap ' .... team can advise you on that as they are the specialist' however, I like my GP and her honesty but, then I am one of the truly blessed ones who has a GP who cares, goes above and beyond the call of her job, and will do anything possible within her power to support and help me She is a gem and knowing the system her, I wouldnt swap Am however, rather snookered when she retires so think will convince her to continue to after I am gone ;-)
    God bless you
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    seska422 wrote: »
    Bottom line: you need surgery and can't get surgery until you lose weight.

    Your #1 priority is to lose the weight, no matter how you get there. Don't put up roadblocks for yourself by worrying about "processed" or "natural" or any food restrictions that aren't directly related to your health issues. Log everything that you consume that has calories before you consume it so that you can adjust your portion or choose something else before you eat or drink it. Measure as accurately as you possibly can, preferably with a food scale but at least with measuring cups/spoons. Double-check the MFP entries that you use for accuracy because they are mostly user-entered and may be inaccurate.

    You need to be persistent and consistent. You won't be perfect (no one is) but hop right back on the wagon if you fall off.

    It's hard but you can do it.

    Thank you for your reply. I have been persistent for years but, sadly do not lose as I should according to science however, I have considered a different website which costs to use it but, I feel is more accurate on calories but, not until I get back from sisters funeral Ahh indeed no one is perfect absolutely hence preserving For me because I get a histamine/allergy reaction that causes inflammation and causes pain plus weight gain so, the picture is blurred as they say but it is a nightmare that is for sure Looking forward to switching to optimal ketogenic living when I return with hope that works if not, its back to strict aip/low fodmap/histamine free/nightshade free/low carb which is really strict and has worked in past but, is also very very very expensive!
    God bless you
    xoxox
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    SLLRunner wrote: »
    SLLRunner wrote: »
    Fuzzipeg wrote: »
    NHS here too, I had one set of information from a professor in immunology re salicylate, food reactions and things which was totally contradicted by both the GP and the local Endo! Who would you believe? The professor of course. I have even been working with a private nutritionist and she says I have been teaching her about histamine intolerance, chemical sensitivity and many other food reactions. My dentist says people such as Victorious and I are canaries in the coal mine. The standard NHS fill your plate in this fashion does not work for everyone.

    Wait a minute. You won't listen to your doctor and endocrinologist, but you'll take the advice of a "professor"? Your dentist is also giving advice on an area where he/she does not practice? I am genuinely confused about this.

    Presuming that the NHS referred to here is the National Health System in England, it seems to me they would not survive if they did not have competent doctors. If one doctor does not work for you, or even with you, can't you find another?

    Thanks for your reply, I am commenting here because the NHS is yes the one in England being referred to however, if one doctor does not work for you does not mean you find another. To see any specialist under the NHS system your GP has to refer you, if they feel indifferent, or it would be pointless because as in my case need surgery on my shoulder, and my brain but until I lose weight neither will be done, unless the tumour in my head grows and costs me my sight then they will operate Sadly no one wants to spend the resources getting me well, it is sadly common place in the system We dont have the choice to go elsewhere, it is GP referal or private which I cant afford, and most cant, and insurance in this country wont cover existing conditions so that means no medical care options privately for me Tough but sadly most people outside NHS systems really dont understand the restrictions (not minimising the blessings of it however by acknowledging the limits!
    God bless you
    xoxox

    I am so sorry.

    No need to be sorry, just aware different systems in discussion here and from my experience people outside the NHS system have a sense of how easy it is to see a doctor of any speciality which is not the case esp if like me you have rare conditions
    Same time we have a system that wont leave us without care based on not being able to pay although there is still some charge involved if you need medicines but, doctor time is free
    God bless you
    xoxox
  • Fuzzipeg
    Fuzzipeg Posts: 2,301 Member
    edited April 2017
    The professor was in IMMUNOLOGY (at the specialist, regional hospital). IMMUNOLOGY takes into consideration all the systems in the body because of the impact each has on the other when it impacts on the immune system. The dentist, (I looked for after visiting the Professor to remove my amalgam fillings). This dentist is a highly educated medical man, who looks further than this filling or that. He knows how dental problems can impact on the body. How metal fillings stress they thyroid/endocrine system making many other things happen. He explained to me how the line of my teeth denotes poor thyroid health from infancy. A dentist needs to be his own anaesthetist, needs to be able to prescribe antibiotics understand the causes of inflammation and the like so he is every bit as educated as any doctor, but probably more so.

    The upshot is, following the thread of hope given to me by the Professor of IMMUNILOGY, being refused the opportunity to go back to him to address the issues with him which caused me to be HOUSE BOUND and in pain by sensitivity to environmental chemicals, salicylate and histamine in foods and all, working with the dentist and a private nutritionist, and findings of my own I AM GETTING MY LIFE BACK. Left in the hands of my local doctor and endo I would still be "sick euthyroid" it is a medical term and my life would not be worth living. Like victorious I knew I could get well doing the "right for me" things. The problem is in the NHS you have to fit the right box, if you don't............... there is noting.

    The endocrinologist told me the salicylate in my food would not cause me a problem. The professor of immunology told me people like me are unable to eliminate the salicylate from food like other members of society and as such we are "at the edge of science". The cause was in his view, thyroid endocrine orientated, a deep seated long undiagnosed problem.

    Here in the UK it is impossible to have your full endocrine function investigated properly. There is what seemed to be a blanket ban on testing the t3 levels. As far back as the 1990's this test was not done often enough. T3 is the most active thyroid hormone essential to the brain. The production of t3 is influenced by the inputs of the adrenals and pituitary as well as other endo glands. Now even those poor soles who have been prescribed t3 for years are being deigned it, as far as they can see its on the grounds of expense.

    If one were to take enough interest reading open access medical papers, primarily American ones, you can read the commonly titled, "Thyroid" causes, respiratory problems, circulatory problems, both impact the lungs and heart, digestive problems which can include Irritable bowel problems, contributes to diabetes, Gaul stones because bile products are not thin as they should be. The reduced digestive transit reduces the number of digestive microbes the body can support continual to this the bodies ability to produce the range of digestive enzymes to eat normal foods. The thyroid is involved in ME, fibromyalgia, muscular/skeleatal and other pain related problems; this pain reduces mobility; this impacts on the lymphatic system, having no pump of its own relies on movement to aid the elimination of toxins. The thyroid is also responsible for the production of growth hormone, this comes into the range of cell replacement, sometimes poor cell replacement causes cancers of the benign and less often the more aggressive forms. It is also involved in our own reproduction. Pregnancies fail for lack of t3, it may also be involved in the rise of Autistic characteristics. Women are subject to years of pain as well as being exposed to endometrial cancer.

    I am appalled that so much pain, damage and expense can begin with poor thyroid function which could be righted by ensuring everyone has the correct nutritional information to enable themselves to ensure they have the right vitamins and minerals in their food to ensure they can make the t3 and keep their other endocrine glands working properly.

    This has turned into a rant. It is something I feel passionately about. Forget my personal problems. What inflames me is the way people like Victorious are condemned to suffer because our system is penny wise Pound foolish. Imagine if everyone was able to achieve a healthy hormone system.

    Can we really afford, as a nation, as a world, to ignore this system and continue to trivialise it as we do?

    ets, finding of my own.
  • jgnatca
    jgnatca Posts: 14,464 Member
    What does hormone systems have to do with immunology?

    How can a strict ketogenic diet help a person with gall bladder attacks?
  • VictoriousBeauty
    VictoriousBeauty Posts: 135 Member
    edited April 2017
    jgnatca wrote: »
    What does hormone systems have to do with immunology?

    How can a strict ketogenic diet help a person with gall bladder attacks?

    Hi
    as for hormones, they control EVERYTHING in the body according to my endo, and the big centre or control is the pituitary gland (we had this discussion as I have a tumour on my pituitary gland preventing release of appropriate hormones affecting all aspects of my health

    Personally and illogically according to medicine, I get a higher reaction on gallbladder with carbs and fats combined with low protein say like nuts, or carbs alone than I do say a keto coffee The one fits all is beginning to be acknowledge by medics but, slowly A keto diet is low carb, moderate protein, slight lower than protein in fats if you aiming for weight loss so for me (I am short) I would have 88 grams protein, 22 carbs, and 66 fats but, thats for my height so, each person would have to check for their height what works, I am not keto yet however, hope to be in a week or so!
    xoxox