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WOMEN AGES 50+ FOR AUGUST 2024
Replies
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Tracie ... I'm so sorry to read that your cancer made a return but am happy to hear that you and your medical team have beat it into remission! Prayers for continued healing.
Mia ... welcome and congratulations on the weight loss!
Barbie ... glad to hear Jake is headed home ...
Pip ... we most certainly do have Kylia in this group.
Beth near Buffalo6 -
cityjaneLondon wrote: »Flea - No I don't understand the deterioration either. My mother had strong bones, and I think most of these things are inherited. Why just those joints? My hips have never felt right, even in childhood. I am very knockkneed, and I have ankle weakness. I used to be 'double jointed' as a child. I'm a body of two halves!
My left knee has been a bother since I was 15. Unfortunately, I have passed on these problems to my younger son and Edie. They are not knockkneed, but have ligament problems. My son is on some advanced drugs, and has to have an MRI of his ankle. Edie often has a sore ankle and is far too bendy.
In normal circumstances, I do knee and and ankle exercises every day.
I was told after my chemo that I had strong bones and I normally do weight bearing exercises and dumbbells every day. Plus vit D.
Today I must have my first shower, so John will have to get the non-slip mat down. I hate showers, but I am looking forward to this one. I expect to be knackered afterwards. Then my Zoom with my old schoolfriends. Then off to the bbq. It will be nice to see someone other than John.
Last night my DSIL rang, and I could hear John was frustrated with our situation. We could both do with some other social input.
I have been incapacitated really since the middle of April. DSIL is coming at the weekend, bearing lasagne and salad. We will provide lunchtime rolls, and a fruit salad for dessert. I thought on Sunday, we might go to Fatto for early lunch before she sets off home. I told her to be ready for a carb coma, and she said she would stop on the way home for a nap. She often has to, as she has a tendency for microsleeps.
I also have a flying visit from G on Thursday. I may be up for going out, but we shall see. She's not super keen on eating at my house, because she loves restaurants, but she is happy to pop in for a while for tea or coffee. Sweet of her to come all this way.
So, things are opening up.
Tracey - I so hope you hear good news today.
Much love, Heather UK xxxxxxxx
Heather- for dh, his hips failed because of a birth defect. The joints were slightly out of round so they did not wear right. He had both of his done at I think 48 yrs old and then again five years later(the first set were the recalled ones and they failed).
Be sure to not over do it, dh did and still has pain.
Debbie
Napa , Ca
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thinking of everyone! but out of time.
Kim in N. California8 -
PackerFanInGB wrote: »Lisa - I am currently working on a disappearing 9-patch lap quilt for one of my granddaughters. I have the top done but cannot seem to get myself to sandwich and quilt it... I do straight line quilting on my regular sewing machine, but you can definitely tell I'm a beginner! LOL Although I refer to it as straight line quilting, there is nothing straight about it by the time I'm done! I love doing the piecing and sewing the tops, but I just dread the sandwiching piece. One of the things about this particular quilt top too is the colors are not "me"... I don't gravitate toward the black, white and red...so I'm just not drawn to work on it. But they're her dorm room colors, so that's what matters. I just need to suck it up and get it quilted! I think yours is beautiful. I really like it. It's on my bucket list someday...
About the cancer...I had stage 3 breast cancer in my right breast in 2011...had bilateral mastectomies, chemotherapy and radiation, then reconstruction. All was well for over 12 years until I had some swelling in my right armpit last October. Went in to see if I had fluid build-up since I have lymphedema in that arm, and long story short MRI showed a tumor on my chest wall. PET scan was done then and found another spot on my L4 disk. So, I was diagnosed with Stage 4 (metastatic) breast cancer. Last time it was being fed by estrogen. This time it was hormone negative but HER2 positive, so it was feeding off a different thing. I had a port placed again and started chemotherapy in November and finished in March. I now go for routine (every 3 weeks) immunobiology injections which target the protein that the cancer was feeding on. I do and will continue to have CT scans of my chest, abdomen and pelvis every 3 months going forward, and an MRI of my brain every 6 months. I also get a 3-month dose of Zometa which is for bone strength, because the injections I get routinely tend to suck the calcium from my body. Sorry if TMI. Anyway, it's been a long 10 months, trying to regain my health and strength. Chemo was definitely easier to tolerate in 2011 when i was 12 years younger! It really beat me up this time around. The GOOD news is that after only 5 chemo treatments, all evidence of disease disappeared on scans. My oncologist said it is 96% to completely gone at that point, and now the goal is to keep it in remission as long as possible. I'm shooting for at last 20 more years! I hope that wasn't too much information. Don't mean to overload or dump on anyone. It's just what I've been dealing with and am trying to recoup from! 
I'd better get busy now. I've been buying produce to cut up for salad bar fixin's in the fridge and then don't actually do it because my fingertips are sore (neuropathy from chemo). So, yep...I just threw out another batch of wilted veggies yesterday. I have to stop procrastinating on this. I hate wasting food!
Have a lovely day!
I'm sorry Tracie. I also have metastatic breast cancer, diagnosed de Novo just over three years ago. My last pet scan also shows no active cancer. The treatment can be rough. I had cancer at C7, T9, and 8th rib.
Flea
Willamette Valley OR10 -
Evening ladies
Sorry ive been out and about.
Went to see Urologist APRN and will get a ultrasound of bladder and kidneys and she wants me to take a daily cranberry supplement ,i was but not the right kind.
I was in and out in about 15 minutes.
Went to see my little guy today.
He sure is a ham!!
Tracy asked that we not speak of angel girl until after the baby is born its tough on her so ,I'll keep my mouth shut.. someone asked her C Section is September 16th she will be 37 weeks
They have the nursery basically set up. Im going to ask Tracy if there are any meals that they like that i can make that can just be heated up so she doesn't have to cook.
Barbie- so glad Jake is coming home !!10 -
Jake is home. We are all doing the happy dance. 17
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Tracie in GB - Thanks for letting us know. When you're dealing with a chronic illness, it's easy believing that everyone is tired of hearing about it. But there's a way out and through that incredibly draining definition of yourself in terms of your disease, and I think it's the sharing of it at the level you're comfortable. Shared pain is lessened, and when I use the spoiler like you did, it really helps me feel as if I give people the choice. Not too much information at all, because you've given us the choice of whether we want to read it or not. So glad you're here, and so glad your tests have shown you clear!
All my quilting these days is free-motion quilting or a bit of straight line with the binding strips on occasion. The free motion quilting is so much less stressful than trying to sew a straight line! 🤣🤷🏻♀️ I am also incapable of sewing straight, so my sympathies. I used a lot of scraps to get comfortable with it. There are quilting gloves which are able to grab the fabric and save your fingertips, and a pair of those has helped enormously.
Barbie - So glad Jake's home today... 🥰
Allie - Should be interesting when Miles figures out that he has to share the attention with his new sister.
Mia - Welcome! Lots of support here from all kind of directions...
Dinner's in the oven, Corey's taking his decompression walk out to the garden and around... the thermometer in full sun is registering 115 F - 46 C. But honestly, once it's past 100, it's a moot point. Hot is hot.
Later my dears,
Love,
Lisa in AR7 -
Heather: That first shower feels so good!
Virtual (((hugs))) held extra long and 🙏🏻🙏🏻🙏🏻
🙋♀️ Miele failte to the newbies.
☘️ Terri4 -
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Tracie ... I'm so sorry to read that your cancer made a return but am happy to hear that you and your medical team have beat it into remission! Prayers for continued healing.
Mia ... welcome and congratulations on the weight loss!
Barbie ... glad to hear Jake is headed home ...
Pip ... we most certainly do have Kylia in this group.
Beth near Buffalo
What’s her screen name0 -
Tracie ... I'm so sorry to read that your cancer made a return but am happy to hear that you and your medical team have beat it into remission! Prayers for continued healing.
Mia ... welcome and congratulations on the weight loss!
Barbie ... glad to hear Jake is headed home ...
Pip ... we most certainly do have Kylia in this group.
Beth near Buffalo
What’s her screen name
Kymarai is her screen name.
Okie in the TX Hill Country1 -
Flea - I’m so sorry to hear you have MBC also; diagnosed de Novo had to be a terrible shock! I’m so happy to hear that your PET scan showed no active disease. Are you on a maintenance treatment? 🫂💞
Beth. Thank you. Prayers are always welcome.
Barbie. Yay! So happy for you all to have Jake back home! 👏
Lisa Thank you! I’m never sure whether to share because I don’t want to come across as a whiner and I certainly don’t want to make anyone uncomfortable, but sometimes it feels good to be able to share. I think any chronic illness can be lonely and scary, and sometimes it feels good just to be able to talk about it. For some reason, writing about it in a spoiler felt safest so that others could ignore or read it at their own comfort level. I don’t want to wear out my welcome to the group my first week back! 😂😬
FREE MOTION QUILTING! It’s actually my goal to learn how to do that! I’ve not had any luck—maybe because I’m afraid of ruining my quilt tops, so I give up at the first sign of imperfection (first few seconds?). I think I will make it my mission this week to sew some scraps together and practice, practice, practice. I actually think I’d enjoy doing the quilting if I could just meander around and not worry about my lines being wonky.
115° F? Oh my gosh. I just couldn’t…
Tracie in GB
4 -
Tracie and Flea, I am happy to hear that you both have kicked your MBC into remission. It gives me hope for my friend who is fighting the same thing. She just turned 50.
Barbie, I know you are happy to have Jake safe at home.
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Tracie -- yes. I am on Kisqali and letrozole. I was on Xgeva shots every three months, but since my last bone scan was clear, even before the PET, we elected to take me off of it. I was on the full dose of Kisqali (3 a day for 21 days; 7 days off), but I talked her into reducing it to 2 a day. I was so fatigued about 3-4 days a month, at the end of the 21 day cycle. It is much better now.
Katie -- My oncologist and I, at least for now, are treating this as a chronic disease, rather than a terminal disease. That is my hope for everyone with MBC. I pray treatment is working for your friend.
Allie -- What kind of cranberry juice were you supposed to be drinking?
In a sour mood right now about hubby. He's a hoarder, and every once in a while I just reach my limit. We ordered a large garbage container for four weeks (6 yards, I think?) and I've filled it up three times, but I have run out of things to throw in it until he decides to go through some of his things with me. He won't do it, and I'm frustrated. My side of the room looks so amazing. We can actually walk on the floor of our walk in closet now. The family room, the kids' rooms, the greenhouse -- all wonderful. We actually have a path we can walk through the garage now -- on the floor! I really wanted to get things looking nice. I got my hopes up.
He's lived like this his whole life. Was raised this way. He's 65, so he keeps telling me he's too old to change. But I still hate it. Just hate it. I need to stay away from him for a while so I don't say something mean to him. But he knows I am disappointed.
Flea
Willamette Valley, OR11 -
Pip It was me. I was a little late donating this year. Oops, life craziness. You are truly inspiring!
Tracie As Lisa said, sharing lessons the load. It also educates us. Happy for both your and Flea's current health!
Preparing to travel to see my sister. I am looking forward to the road trip. Just me, my miata, and my music!
Have finally caught up, but eyelids are heavy.
Healing thoughts!
Thankful for you all!
Lots of Love,
Kylia in Ohio
Oh, Michele...no toilet paper on the holder! Luckily when they unrolled it , it was close to needing changed. More kitty news later.4 -
Heather - I think you and John have both handled this well. Hopefully some socializing has helped with the frustrations. I’m glad you had a nice visit. I think that table sounds like a brilliant idea.
Lisa - I personally like the black, but the shiplap is pretty too. You need to just put it away for a bit.
Your granddaughter is adorable.
Do they have a time limit about how long they are in Hawaii? Do they get to come back stateside soon?
Living with gratitude sure makes a difference in our lives.
Rita - it’s good that your DH went to the clinic. Hopefully he starts feeling better soon.
Katie - “deer food garden” I had to laugh at that. My grandmother used to have a terrible time with deer.
Tracie - Hugs you’re doing so well.
Rebecca - that’s great that the new sitter is working well. Athena will surely be happy to have her panda home.
Barbie - I did a little jig to join in your happy dance!
Flea - Hugs that has to be difficult for you.
My DH is disappointing me right now too, but I can’t seem to come up with a way of saying anything without a fight and I’m not prepared for that.
Kylia - Have a wonderful trip! I’m so excited for you!
No call today. I also didn’t work on my table because it was calling for rain, it never did though.
I ended up sorting and organizing stickers and sparkly gems for my scrapbooking.
The young lady in my life that had miscarriages around the same time as Kaitlyn and is now expecting twins informed me last night that the twins are girls and everything is going well. They are due on Boxing Day. Now if Kaitlyn and Brodey could just get the last bit of money together maybe they could have some good news too.
Well I should head to bed. I didn’t sleep well last night so I’m tired.
Tracey in Edmonton7 -
okiewoman510 wrote: »Tracie ... I'm so sorry to read that your cancer made a return but am happy to hear that you and your medical team have beat it into remission! Prayers for continued healing.
Mia ... welcome and congratulations on the weight loss!
Barbie ... glad to hear Jake is headed home ...
Pip ... we most certainly do have Kylia in this group.
Beth near Buffalo
What’s her screen name
Kymarai is her screen name.
Thank you!
Okie in the TX Hill Countryokiewoman510 wrote: »Tracie ... I'm so sorry to read that your cancer made a return but am happy to hear that you and your medical team have beat it into remission! Prayers for continued healing.
Mia ... welcome and congratulations on the weight loss!
Barbie ... glad to hear Jake is headed home ...
Pip ... we most certainly do have Kylia in this group.
Beth near Buffalo
What’s her screen name
Kymarai is her screen name.
Okie in the TX Hill CountryPip It was me. I was a little late donating this year. Oops, life craziness. You are truly inspiring!
Tracie As Lisa said, sharing lessons the load. It also educates us. Happy for both your and Flea's current health!
Preparing to travel to see my sister. I am looking forward to the road trip. Just me, my miata, and my music!
Have finally caught up, but eyelids are heavy.
Healing thoughts!
Thankful for you all!
Lots of Love,
Kylia in Ohio
Oh, Michele...no toilet paper on the holder! Luckily when they unrolled it , it was close to needing changed. More kitty news later.Pip It was me. I was a little late donating this year. Oops, life craziness. You are truly inspiring!
Tracie As Lisa said, sharing lessons the load. It also educates us. Happy for both your and Flea's current health!
Preparing to travel to see my sister. I am looking forward to the road trip. Just me, my miata, and my music!
Have finally caught up, but eyelids are heavy.
Healing thoughts!
Thankful for you all!
Lots of Love,
Kylia in Ohio
Oh, Michele...no toilet paper on the holder! Luckily when they unrolled it , it was close to needing changed. More kitty news later.
Thank you so much!!!!! You are not late, the ride is in September and I think we have until October to get donations to give us credit for this years ride. Your generous donation should be matched so that should give me a double donation!5 -
2 -
Tracey - I think you have waited long enough and are entitled to ring them and ask if they have made a decision yet. How enormously frustrating for you.
Tracie - It looks as if your treatment is going really well, like Flea. I like getting the information on any medical matters as it could happen to any one of us. I had breast cancer in 2007, with chemo, and always worry about it returning.
Flea - So sorry about your decluttering hitting the buffers.
It seems so many women have the same problem. Well done on getting your part sorted! That's a major achievement.
Love Heather UK xxxxxxxx4 -
So yesterday had quite a few firsts. First shower. First home manicure. First full makeup. First dress-up. First trip outside. First seeing the kids. Then I enjoyed my alcoholic drink at home for the first time. First time I changed into pyjamas for bed!
First time I got under the covers to sleep in the middle of the night.
Go me!
John told me, when he brought me my cup of tea this morning, that I had woken him up at half past midnight with loud screaming. He came to check on me, as he thought I might have fallen out of bed! I was just dreaming.
I have done this several times in the past and, when we share a bed, he wakes me up, but this time I was in the next room. I don't remember anything about it, but an hour later, I woke up in pain. Painkillers sorted me out, I read for a while, and that's when I got under the covers.
During our Zooms, my girlfriends and I often, always, share our medical problems. B never has any, though she has other things to worry about. This time she shared that she has a strange sensation in her feet/toes, as if she has thick paste around them. I looked it up, and I've seen it described as a feeling like a thick skin, or web. She has had nearly every test for what it could possibly be, and no-one is sure. Lymes came back negative, but they are going to test again in 4 weeks. The sensation is described as neurological.
Much love, Heather UK xxxxxxxx
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