exermom wrote: »
M – I know around here the administering of the vaccine was determined by your age. For the first time ever, I didn’t mind admitting my age...lol Maybe it took so long because you are so young????
Poerava14 wrote: »
Hello Friends. I took today to catch up on over 350 messages here. It's been a tough month.On May 4th DH could not get himself out of bed. He had been walking more gingerly in the days leading up to this, but he was still mobile. EMTs took him to hospital ER where he was ultimately diagnosed with Parkinsons dementia. They also found a chronic slow bleed in his brain. He was put on meds for tremors and rigidity. Also aspirin to reduce blood clots since he was not moving. The care plan called for him to be transferred to a Skilled Nursing Facility for rehab. He was lucid, but due to pain and discomfort, not to mention fear and confusion, he was lashing out violently with the hospital staff whenever they tried to change his diaper. He also couldn't respond to the simplest movements attempted by the Physical and Occupational therapists. This was really not good. The docs started him on one drug, Seroquel. Made him more quiet, but he still fought the night crew who came and woke him up for his change. This narrative was making nursing home placement difficult. Very difficult. Enter Palliative doctor. He prescribed a stronger mood stabilizer, depokote. This ultimately did the trick, but after a few days, he had turned into a zombie. Palliative doctor was frank about his prognosis and we decided then a Hospice protocol was appropriate. He is never going to get better. Gulp. I knew this day would come, but everything was moving quickly. And DH was deteriorating more every day.
He was taken off the mood stabilizer and even after the drugs left his system, he slept everyday for 18-20 hours. We were now into our third week in the hospital, and the social worker was closing in on nursing home contracted by the VA. He was moved there on Wednesday of this week. Because he is not vaccinated against Covid, they have in isolation for 14 days. I am permitted to be with him only if I don full PPE, which I do. Since Wednesday he has continued to decline. I used to be able to get him to take his Parkinsons meds in applesauce and eat 3 meals.
As of this afternoon, he has completely stopped eating and drinking.
He is calm, no pain, and has strong vitals. I play his favorite music, show him photos of our life, and surround him with light and love. I've verbally given him permission to "take his final flight" to heaven. I mention reunions with his favorite people. I'm embracing the sacred and precious time we have right now. Hard, but comforting at the same time. Dementia is hell and whatever this dream state he is in has got to be better. I am with him for about 11 hours a day, and the staff has my number right over his bed in the event they see any signs he is actively transitioning.
I'm exhausted when I do get home every evening. I'm not eating well or exercising at all. My dear brother is still grappling with his own physical issues. In fact, he is going to ask his MD for referral to hospice and just try to live the remainder of his days with dignity and comfort.
Before anyone gives me the usual tender advice to take care of myself, just know I do! I have been indulging in a glass of red wine, a piece of dark chocolate and an episode of "Call My Agent" almost every night. It's just the mental escape I need before my head hits the pillow for a solid 7 hours of sleep.
I'm so sorry to read of the passing of Schooner, Bonnie and the handful of other loved ones. You have my heartfelt sympathy. I hope we all have brighter days ahead. Thank you for your continued prayers, good thoughts and friendship. Love you all.
Still Going with the Flow
auntiebk wrote: »
Ginger brava on the streak, boo hiss to the Dr dropping your insurance company and with no notice. If there is a VFW or similar organization in your town, they may have an ombudsman who can help with getting your father’s VA benefits.
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